THE NATIONAL ACADEMIES
Institute of Medicine
Board on Health Sciences Policy
Board on Health Care Services
Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule
Beyond the HIPAA Privacy Rule:
Enhancing Privacy, Improving Health Through Research
The Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule is intended to ensure protection of patients' personal health information while allowing the flow of health data needed for health research. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, a new report from the Institute of Medicine, examines the extent to which the Privacy Rule meets these dual goals and recommends ways to improve the regulation and its implementation. It also speaks to the security of health information databases and data transfers.
These series of briefings were for members of Congress and congressional staff only. The report was publicly released on February 4, 2009 and can be found, in its entirety, on the Web site of the National Academies Press.