March 5, 2018
Now Available: Archived February Webinar About Developments and Advancements in Human Genome Editing
With the recent scientific advances making genome editing more efficient, precise, and flexible than ever before came an explosion of interest from around the globe in the possible ways human genome editing can improve human health. As part of the Human Gene-Editing Initiative, the National Academy of Sciences and National Academy of Medicine released a consensus study report last year exploring the scientific underpinnings of human gene-editing technologies, their potential applications in biomedical research and medicine, and the clinical, ethical, legal, and social implications of their use.
On Thursday, Feb. 22, 2018, NAS/NAM and the Biotechnology Innovation Organization (BIO) co-hosted a webinar to learn about issues and recommendations discussed in the 2017 NAS/NAM report, breakthroughs and next steps in gene editing of somatic cells, and the regulatory framework for therapies that make use of genome editing.
Participants in the webinar included:
Matthew Porteus, Stanford University (consensus study committee member)
Sandy Macrae, Sangamo Therapeutics
Peter Marks, U.S. Food and Drug Administration
Nov. 17, 2017
ISSR Session on CRISPR/Cas and Human Germline Gene Editing
Human Genome Editing: Science, Ethics, and Governance calls for inclusive public discussion and debate about the potential uses of technologies such as CRISPR/Cas9 to make changes to human DNA. Engaging diverse viewpoints will be particularly critical to debates about uses that would raise complex societal and ethical issues, such as the creation of heritable genetic changes (also referred to as germline genome editing).
With support from NAM's Kellogg Health of the Public Fund, the National Academies were pleased to support a webcast of “CRISPR/Cas and Human Germline Gene Editing: Possibilities and Perspectives,” a session during the International Society of Science and Religion (ISSR) meeting, held in association with the annual meeting of the American Academy of Religion in Boston on Nov. 17, 2017. Speakers were NAS/NAM committee chair Richard Hynes, committee member John H. Evans, and Ronald Cole Turner and Laurie Zoloth.
Feb. 14, 2017
Consensus Report to Be Released
Human Genome Editing: Science, Ethics, and Governance, the new report of the NAS-NAM Human Gene Editing Initiative, will be publicly released on Tuesday, Feb. 14. Members of the committee that wrote the report will present their findings and recommendations at a public briefing beginning at 11 a.m. EST in the Lecture Room of the National Academy of Sciences building, 2101 Constitution Ave., N.W., Washington, D.C. Those who cannot attend may view a live webcast.
March 7, 2016
Upcoming Public Meeting in Paris
The consensus committee will host a public meeting in Paris on April 29 focusing on the principles underlying human gene editing governance and policy. This event will be held one day after a workshop on the current scientific activities and regulatory landscape for human gene editing in the European Union, organized by the Federation of European Academies of Medicine. Both meetings will be held at the French National Academy of Medicine. 'Subscribe for Updates' to receive updates about the meeting agendas, speakers, and webcast availability.
March 7, 2016
Slides and Videos from the February Meeting
On Feb. 11, the NAS/NAM Human Gene Editing consensus committee heard input from select stakeholder groups, including public engagement experts, affected communities, industry, regulatory bodies, and members of the public who came to share their perspectives. Presentation slides and recorded videos of the talks and discussions are now available online.
Feb. 8, 2016
Summary of International Summit Now Available
A Meeting in Brief is now available that summarizes the December International Summit on Human Gene Editing.
Feb. 1, 2016
Consensus Study - Feb. 11 Public Meeting
NAS/NAM consensus study committee is holding an information-gathering meeting on Thursday, Feb. 11. Invited experts will discuss perspectives from the Sickle Cell Foundation of Tennessee, Parent Project Muscular Dystrophy, District of Columbia Association of the Deaf, and other potentially affected groups; how public attitudes and decision making intersect with science policy; and the potential for developing therapeutics using gene-editing technologies. Tune in for the live webcast. Read Announcement
Dec. 8, 2015
Study on Human Gene Editing Begins
NAS and NAM are now moving forward with the second component of the Academies' Human Gene Editing Initiative, an in-depth, comprehensive review of the science and policy of human gene editing. Read Announcement
Dec. 3, 2015
International Summit Concludes
The U.S. National Academy of Sciences, U.S. National Academy of Medicine, Chinese Academy of Sciences, and the U.K.'s Royal Society co-hosted a three-day international summit where global experts discussed the scientific, ethical, and governance issues associated with these new and emerging human gene-editing technologies. Visit the summit page for photos, videos, and much more.
Nov. 9, 2015
Agenda for International Summit Available; Media Registration Open
Registration for the media and for the general public to attend the three-day international summit is now open. At the summit, experts will discuss the scientific, ethical, and governance issues associated with these new and emerging human gene-editing technologies. Seating is limited; reporters must register in advance. [Public Registration is now Closed]
Oct. 19, 2015
Videos Available From Human Gene Editing Information-Gathering Meeting
To inform a committee planning the December international summit on human gene editing, NAS and NAM held a meeting on Oct. 5 to provide an overview of the state of the science. Videos are now available of presentations from the event.
Sept. 25, 2015
Human Gene Editing Information-Gathering Meeting on Oct. 5
To inform a committee that is planning the December international summit on human gene editing, NAS and NAM are holding a meeting on Oct. 5 to provide an overview of the state of the science. Invited experts will discuss human gene-editing technologies, their efficiency and utility, the historical context of embryo and gene manipulation, approaches to treat and prevent genetic diseases, and China’s contributions to gene-editing research. Learn More | Agenda
Sept. 14, 2015
Chinese Academy and Royal Society to Join in Convening International Summit; Organizing Committee Named
The Chinese Academy of Sciences and the U.K.'s Royal Society are joining NAS and NAM in co-hosting an international summit on human gene editing to be held Dec. 1-3 in Washington, D.C. An organizing committee has been appointed. Read full announcement
June 16, 2015
NAM President Testifies at Hill Hearing
June 15, 2015
Advisory Group Named
An advisory group was announced today to counsel the NAS and NAM presidents on their new initiative on human gene editing. Read announcement
May 18, 2015
NAS and NAM Announce New Initiative
The National Academy of Sciences and National Academy of Medicine launched a major initiative regarding human gene-editing research. Read presidents' joint statement