The National Academies of Sciences, Engineering and Medicine
HUMAN GENE-EDITING INITIATIVE

Latest News

Feb. 7, 2017
Consensus Report to Be Released

Human Genome Editing: Science, Ethics, and Governance, the new report of the NAS-NAM Human Gene Editing Initiative, will be publicly released on Tuesday, Feb. 14. Members of the committee that wrote the report will present their findings and recommendations at a public briefing beginning at 11 a.m. EST in the Lecture Room of the National Academy of Sciences building, 2101 Constitution Ave., N.W., Washington, D.C. Those who cannot attend may view a live webcast.


March 7, 2016
Upcoming Public Meeting in Paris

The consensus committee will host a public meeting in Paris on April 29 focusing on the principles underlying human gene editing governance and policy. This event will be held one day after a workshop on the current scientific activities and regulatory landscape for human gene editing in the European Union, organized by the Federation of European Academies of Medicine. Both meetings will be held at the French National Academy of Medicine. 'Subscribe for Updates' to receive updates about the meeting agendas, speakers, and webcast availability.


March 7, 2016
Slides and Videos from the February Meeting

On Feb. 11, the NAS/NAM Human Gene Editing consensus committee heard input from select stakeholder groups, including public engagement experts, affected communities, industry, regulatory bodies, and members of the public who came to share their perspectives. Presentation slides and recorded videos of the talks and discussions are now available online.


Feb. 8, 2016
Summary of International Summit Now Available

A Meeting in Brief is now available that summarizes the December International Summit on Human Gene Editing.


Feb. 1, 2016
Consensus Study - Feb. 11 Public Meeting

NAS/NAM consensus study committee is holding an information-gathering meeting on Thursday, Feb. 11. Invited experts will discuss perspectives from the Sickle Cell Foundation of Tennessee, Parent Project Muscular Dystrophy, District of Columbia Association of the Deaf, and other potentially affected groups; how public attitudes and decision making intersect with science policy; and the potential for developing therapeutics using gene-editing technologies. Tune in for the live webcast.  Read Announcement


Dec. 8, 2015
Study on Human Gene Editing Begins

NAS and NAM are now moving forward with the second component of the Academies' Human Gene Editing Initiative, an in-depth, comprehensive review of the science and policy of human gene editing. Read Announcement


Dec. 3, 2015
International Summit Concludes

The U.S. National Academy of Sciences, U.S. National Academy of Medicine, Chinese Academy of Sciences, and the U.K.'s Royal Society co-hosted a three-day international summit where global experts discussed the scientific, ethical, and governance issues associated with these new and emerging human gene-editing technologies. Visit the summit page for photos, videos, and much more.


Nov. 9, 2015
Agenda for International Summit Available; Media Registration Open

Registration for the media and for the general public to attend the three-day international summit is now open. At the summit, experts will discuss the scientific, ethical, and governance issues associated with these new and emerging human gene-editing technologies. Seating is limited; reporters must register in advance. [Public Registration is now Closed]

Media Registration
Draft Agenda Available


Oct. 19, 2015
Videos Available From Human Gene Editing Information-Gathering Meeting

To inform a committee planning the December international summit on human gene editing, NAS and NAM held a meeting on Oct. 5 to provide an overview of the state of the science. Videos are now available of presentations from the event.


Sept. 25, 2015
Human Gene Editing Information-Gathering Meeting on Oct. 5

To inform a committee that is planning the December international summit on human gene editing, NAS and NAM are holding a meeting on Oct. 5 to provide an overview of the state of the science. Invited experts will discuss human gene-editing technologies, their efficiency and utility, the historical context of embryo and gene manipulation, approaches to treat and prevent genetic diseases, and China’s contributions to gene-editing research. Learn More | Agenda


Sept. 14, 2015
Chinese Academy and Royal Society to Join in Convening International Summit; Organizing Committee Named

The Chinese Academy of Sciences and the U.K.'s Royal Society are joining NAS and NAM in co-hosting an international summit on human gene editing to be held Dec. 1-3 in Washington, D.C. An organizing committee has been appointed. Read full announcement


June 16, 2015
NAM President Testifies at Hill Hearing

The House Subcommittee on Research and Technology held a hearing where NAM President Victor J. Dzau provided testimony about the Academies’ initiative. Watch the hearing | Read the testimony


June 15, 2015
Advisory Group Named

An advisory group was announced today to counsel the NAS and NAM presidents on their new initiative on human gene editing.  Read announcement


May 18, 2015
NAS and NAM Announce New Initiative

The National Academy of Sciences and National Academy of Medicine launched a major initiative regarding human gene-editing research. Read presidents' joint statement 

About This Initiative

Powerful new gene-editing technologies, such as CRISPR-Cas9, hold great promise for advancing science and treating disease, but they also raise concerns and present complex challenges, particularly because of their potential to be used to make genetic changes that could be passed on to future generations, thereby modifying the human germline.

The National Academy of Sciences and the National Academy of Medicine's human gene-editing initiative will provide researchers, clinicians, policymakers, and societies around the world with a comprehensive understanding of human gene editing to help inform decision making about this research and its application.

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