Diagnostic Criteria for ME/CFS - Committee Meeting 3

When: May 5, 2014 - May 6, 2014 (8:00 AM Eastern)

Topics Diseases, Select Populations and Health Equity
Activity: Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Board: Board on the Health of Select Populations

The third meeting of the Committee on Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be held on May 5-6, 2014, at the NAS building, Room 120, located at 2101 Constitution Ave NW, in Washington, DC. On May 5, there will be an afternoon-long session that is open to the public. Members of the public may participate in person or via webcast. Persons who plan on attending the meeting in person are requested to register in advance prior to April 30, 2014.  Registration for attending the meeting in person will be open until seating capacity for the conference room is reached. All persons may participate via webcast. The webcast will be available on the meeting webpage on May 5, 2014. On May 6, the committee and staff will meet in closed session.




Public Comments:

Written comments may be submitted to the committee at any time during our study process. There is no deadline or character limit to submit comments. As with any information sent to inform the committee, all written comments will be placed in a Public Access File in compliance with Section 15 of the Federal Advisory Committee Act.

If you would like to submit written comments for the open meeting, please use the email ( Please focus your comments on the following questions:

1)    In your opinion, what are the most important issues that healthcare providers should be educated about when it comes to diagnosis of ME/CFS?

2)    What are your thoughts on the current terminology used to describe this disease:Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? If you could suggest new terminology, what would you suggest and why?

Written comments received by April 23, 2014 will be distributed to the committee before the meeting on May 5, 2014. After April 23, written comments should be sent to the project email address ( All comments will be considered by the committee, but those received after the April 23 deadline may be distributed after the meeting is adjourned. 

Frequently Asked Questions:

What is the location and time of the open meeting?

The open meeting will be held on May 5, 2014 from 1:00 PM to 5:00 PM.  It will be held in the NAS building, Room 120. The address of the NAS building is 2101 Constitution Ave NW, Washington, DC 20418.

How does the public check in for the meeting?

Visitors to the NAS building must sign in with the security desk in the front lobby.  Once you have signed in at the front door, you may proceed to the registration table outside of the entrance to the meeting room (NAS 120). It is recommended that attendees arrive 20 to 30 minutes early for the open session to facilitate the check-in process.  

Is there a room where attendees can rest before or during the open meeting?

Beginning at 12:00pm, rooms 119 and 123 will be available for attendees.

Where are the restrooms located?

Restrooms and water fountains are located on the same floor as the open meeting, directly across the hall from NAS 120.

What are the food and drink options available within the building and in the surrounding neighborhood?

The cafeteria on the lower level is open from 7:00 AM until 2:00 PM.  Choices available for purchase include a salad and sandwich bar as well as hot entrees, drinks, and snacks.  In addition, there are food and drink vending machines located near the elevators on the third floor.  

If I have any questions while in the building, who should I ask?

The security guards and program staff at the NAS building are available to direct attendees upon request.

Who is able to participate via webcast?

The webcast will be open to all users.

Can the public submit comments during the open meeting?

The public may submit comments via the email (  All written comments will be included in the Public Access File created for the study.

Previous Meetings for this Activity

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