Neuroscience Data in the Cloud: A Workshop
On September 24, 2019, the Forum on Neuroscience and Nervous System Disorders will host a public workshop that will convene stakeholders involved in cloud-based neuroscience initiatives and research. The workshop will explore the burgeoning use of cloud technology to advance neuroscience research and share approaches to addressing current barriers. Participants will include individuals from academia, government, foundations, pharmaceutical and information technology industries, and the legal system.
Invited presentations and discussions will be designed to:
- Review the landscape of major neuroscience cloud-based initiatives and other uses of cloud technology within neuroscience research.
- Discuss aspirational goals for maximizing benefit from data and compute in the cloud by empowering broad and meaningful data sharing and fostering open science.
- Consider best practices and policies that would increase efficiencies within and across cloud resources, including around aspects such as:
- Authorization by data sources for and accessibility to a variety of data types by a variety of users
- Resharing of derived data
- Funding, sustainability, and governance
- Protection of privacy (Scope of distribution and type of data may affect the degree of privacy protection)
- Regulatory compliance (HIPAA, Common Rule, FDA, etc.)
- Consent to allow broad sharing and use of data
- Data use agreements
- Assignment of credit, ownership, and licensing
- Ownership of data sources (participants, researchers, agencies)
- Authorization for derivative uses
- Acknowledgment of funding sources
- Publication: scope and form of citation
- Technical issues
- Formatting standards (where they exist)
- Validation standards (where they exist)
- IT standards (communication and security protocols)
- Archiving practices (types, locations, and parties responsible)
- Researcher support and training
- Explore potential next steps to move the field forward to develop and deploy best practices in the service of achieving the aspirational goals.
This workshop will be discussion-based and participant-driven, with a focus on active participation by workshop attendees in breakout sessions. The capacity for in-person attendance is limited, but the workshop will be open broadly to the public to view via webcast.