Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer - Workshop Summary
||November 4, 2013
Note: Proceedings contain the opinion of the presenters, but do NOT reflect the conclusions of the Health and Medicine Division or the National Academies. Learn more about the differences between Reports and Proceedings.
Cancer is the leading disease-related cause of death in adolescents and young adults (AYAs). Each year, nearly 70,000 AYAs between the ages of 15 and 39 are diagnosed with cancer. Adolescents and young adults face a variety of unique short- and long-term health and psychosocial issues, such as difficulty reentering school, the workforce, or the dating scene; problems with infertility; cardiac, pulmonary, or other treatment repercussions; psychiatric conditions such as anxiety and depression; and secondary malignancies. Many programs for cancer treatment, survivorship care, and psychosocial support do not focus on the specific needs and risks of AYA cancer patients.
On July 15-16, 2013, the IOM’s National Cancer Policy Forum held a workshop to facilitate discussion about gaps and challenges in caring for AYA cancer patients and potential strategies and actions to improve the quality of their care. The workshop featured discussion panels as well as presentations from clinicians, researchers, AYA cancer survivors, and health advocates working to improve the care and outcome for adolescents and young adults with cancer.