Integrating Health Care and Social Services for People with Serious Illness: Proceedings of a Workshop


Note: Proceedings contain the opinion of the presenters, but do NOT reflect the conclusions of the Health and Medicine Division or the National Academies. Learn more about the differences between Reports and Proceedings.

The Roundtable on Quality Care for People with Serious Illness of the National Academies of Sciences, Engineering, and Medicine held a public workshop on July 19, 2018 to explore the challenges and opportunities related to integrating health care and social services for people with serious illness. The workshop opened with an interview that highlighted the personal lived experiences of a family facing serious illness, the challenges of full-time caregiving, and the difficulty of securing needed social supportive services. Speakers examined the rationale for integration of health care and social services for people with serious illness, explored examples of innovative partnerships and collaborations that provide integrated services, and discussed the potential policy challenges and opportunities for integrating health care and social services. The workshop also featured a session devoted to the unique role and needs of family caregivers, who often serve as a bridge between the health care and social services sectors. The workshop convened stakeholders with a broad range of perspectives, including patient advocates, clinical care team members, health care payers, researchers, policy analysts, family caregivers, and representatives of federal agencies.