International Commission on the Clinical Use of Human Germline Genome Editing

Webinar

Heritable Human Genome Editing: Rare Disease Week Discussion - Virtual Event

February 26, 2021

9:00 AM - 10:30 AM (ET)

Past

Agenda

About

Heritable human genome editing has been proposed as a means of helping parents with a known risk of passing on a genetic disease to avoid that risk. But can the technology be used safely and if so, in what circumstances should it be considered for any initial use?

On February 26, 2021, members of the International Commission on the Clinical Use of Human Germline Genome Editing participated in an online discussion of the implications of this technology for genetic disease and disability communities.

At the webinar, Commission members discussed with participants recommendations from its 2020 report around the following questions:

What are existing and potential options for parents at risk of passing on a genetic disease?
Is heritable human genome editing safe and effective enough to be used clinically?
What criteria may be required for initial human uses of heritable editing, should a society permit them?
How should any future use of heritable human genome editing be governed?

The session was moderated by Sharon Terry, Genetic Alliance. She was be joined by Commission members Kay Davies, University of Oxford, Richard Lifton, Rockefeller University, Andy Greenfield, MRC Harwell Institute, Jeffrey Kahn, Johns Hopkins University, and Anna Wedell, Karolinska Institute.

View video of the event athttps://vimeo.com/showcase/8231735.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Dominic LoBuglio

GeneEditing@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Webinar

International Commission on the Clinical Use of Human Germline Genome Editing - Report Release Webinar

September 3, 2020

10:15 AM - 11:15 AM (ET)

Past

About

This webinar presented the findings and recommendations of the International Commission on the Clinical Use of Human Germline Genome Editing.

View video of the event here: https://vimeo.com/showcase/7518014

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Dominic LoBuglio

GeneEditing@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Webinar

International Commission on the Clinical Use of Human Germline Genome Editing - Webinar on Validating On-target and Off-target Edits

October 15, 2019

9:00 AM - 10:00 AM (ET)

Past

About

This webinar was an information gathering event for the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It featured invited speaker Jin-Soo Kim, Seoul National University. Following his presentation, commissioners engaged in a question and answer session.

Watch the video recording.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Webinar

International Commission on the Clinical Use of Human Germline Genome Editing - Webinar on Homology Directed Repair and Single Cell Genomics

October 9, 2019

8:00 AM - 11:00 AM (ET)

Past

About

This webinar was an information gathering event for the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It featured invited speakers Shoukhrat Mitalipov, Oregon Health & Science University and Xiaoliang Sunney Xie, Peking University. Following speaker presentations, commissioners engaged in a question and answer session.

Watch the video recording.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Webinar

International Commission on the Clinical Use of Human Germline Genome Editing - Webinar on Editing in Embryos and in Spermatogonial Stem Cells

October 7, 2019

8:00 AM - 9:00 AM (ET)

Past

About

This webinar was an information gathering event for the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It featured invited speakers invited speakers Kathy Niakan, Francis Crick Institute and Kyle Orwig, Magee-Womens Research Institute. Following speaker presentations, commissioners engaged in a question and answer session.

Watch video recording

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Webinar

International Commission on the Clinical Use of Human Germline Genome Editing - Webinar on Informed Consent

October 4, 2019

10:00 AM - 11:00 AM (ET)

Past

About

This webinar was an information gathering event for the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It featured invited speakers Ellen Clayton, Venderbilt University and Robert Klitzman, Columbia University. Following the presentations, ommissioners engaged in a question and answer session.

Watch video recording

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 18

August 7, 2020

9:00 AM - 11:00 AM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Richard Lifton
Michele Ramsay
Andy Greenfield
Dana Carroll
Jeff Kahn
Bartha Knoppers
BK Thelma
Rahman Jamal
Susan Golombok
Hide Akutsu
Doug Turnbull
Haoyi Wang

The following topics were discussed in the closed sessions:

The Commission discussed its draft report

The following materials (written documents) were made available to the committee in the closed sessions:

None

Date of posting of Closed Session Summary:

August 07, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 17

August 6, 2020

8:30 AM - 9:30 AM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Richard Lifton
Dana Carroll
BK Thelma
Andy Greenfield
Doug Turnbull
Hide Akutsu
Jeffrey Kahn
Susan Golombok
Anna Wedell
Rahman Jamal
Haoyi Wang
Rob Califf
Bartha Knoppers
Michele Ramsay

The following topics were discussed in the closed sessions:

The Commission discussed its draft report

The following materials (written documents) were made available to the committee in the closed sessions:

None

Date of posting of Closed Session Summary:

August 06, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 16

July 31, 2020

9:00 AM - 11:00 AM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Richard Lifton
Jeff Kahn
Anna Wedell
Andy Greenfield
Rob Califf
Dana Carroll
Eric Lander
Susan Golombok
Hide Akutsu
Bartha Knoppers
Doug Turnbull
Michele Ramsay
BK Thelma
Jinsong Li
Haoyi Wang
Julie Steffann

The following topics were discussed in the closed sessions:

The Commission discussed its draft report.

The following materials (written documents) were made available to the committee in the closed sessions:

None.

Date of posting of Closed Session Summary:

July 31, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 15

July 24, 2020

9:00 AM - 11:00 AM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Richard Lifton
Julie Steffann
Susan Golombok
Hide Akutsu
Haoyi Wang
Anna Wedell
BK Thelma
Dana Carroll
Doug Turnbull
Jeff Kahn
Michele Ramsay
Rahman Jamal
Bartha Knoppers
Eric Lander
Rob Califf

The following topics were discussed in the closed sessions:

The Commission discussed its draft report.

The following materials (written documents) were made available to the committee in the closed sessions:

None.

Date of posting of Closed Session Summary:

July 31, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 14

July 10, 2020

9:00 AM - 11:00 AM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Richard Lifton
Andy Greenfield
Dana Carroll
Anna Wedell
Bartha Knoppers
Doug Turnbull
Rob Califf
Julie Steffann
Michele Ramsay
BK Thelma
Eric Lander
Jeff Kahn
Susan Golombok
Hide Akutsu
Haoyi Wang

The following topics were discussed in the closed sessions:

The Commission discussed its draft report.

The following materials (written documents) were made available to the committee in the closed sessions:

None.

Date of posting of Closed Session Summary:

July 10, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 13

June 26, 2020

9:00 AM - 11:00 AM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Richard Lifton
Andy Greenfield
Dana Carroll
Hide Akutsu
Doug Turnbull
Michele Ramsay
Anna Wedell
BK Thelma
Haoyi Wang
Julie Steffann
Jeff Kahn
Susan Golombok
Jinsong Li
Bartha Knoppers
Rahman Jamal
Eric Lander
Rob Califf

The following topics were discussed in the closed sessions:

The Commission discussed its draft report

The following materials (written documents) were made available to the committee in the closed sessions:

None.

Date of posting of Closed Session Summary:

June 26, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 12

June 19, 2020

9:00 AM - 11:00 AM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Richard Lifton
Andy Greenfield
Bartha Knoppers
Rob Califf
Dana Carroll
Doug Turnbull
Eric Lander
Jeff Kahn
Jinsong Li
Julie Steffann
Michele Ramsay
BK Thelma
Rahman Jamal
Haoyi Wang
Susan Golombok

The following topics were discussed in the closed sessions:

The commission discussed its draft report.

The following materials (written documents) were made available to the committee in the closed sessions:

None.

Date of posting of Closed Session Summary:

June 19, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 11

June 12, 2020

9:00 AM - 11:00 AM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Richard Lifton
Bartha Knoppers
Dana Carroll
Jinsong Li
Andy Greenfield
Hide Akutsu
Doug Turnbull
Haoyi Wang
Julie Steffann
Anna Wedell
Michele Ramsay
Jeff Kahn
BK Thelma
Eric Lander
Susan Golombok

The following topics were discussed in the closed sessions:

The Commission discussed its draft report.

The following materials (written documents) were made available to the committee in the closed sessions:

None.

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 10

June 5, 2020

9:36 AM - 10:00 AM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Richard Lifton
Bartha Knoppers
Dana Carroll
Hide Akutsu
Andy Greenfield
Jeffrey Kahn
Anna Wedell
Susan Golombok
Doug Turnbull
Rahman Jamal
Julie Steffann
Haoyi Wang
BK Thelma
Eric Lander

The following topics were discussed in the closed sessions:

The Commission discussed its draft report.

The following materials (written documents) were made available to the committee in the closed sessions:

None.

Date of posting of Closed Session Summary:

June 08, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 9

April 24, 2020

10:00 AM - 12:00 PM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Richard Lifton
Andy Greenfield
Anna Wedell
Dana Carroll
Susan Golombok
Hide Akutsu
Rahman Jamal
B.K. Thelma
Doug Turnbull
Bartha Knoppers
Eric Lander
Rob Califf
Haoyi Wang
Michele Ramsay
Julie Steffann

The following topics were discussed in the closed sessions:

The Commissioners discussed their draft report

The following materials (written documents) were made available to the committee in the closed sessions:

none.

Date of posting of Closed Session Summary:

April 24, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Teleconference 8

April 17, 2020

10:00 AM - 12:00 PM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Bartha Knoppers
Eric Lander
Dana Carroll
Andy Greenfield
Anna Wedell
Hide Akutsu
Julie Steffann
Jeff Kahn
Rahman Jamal
Haoyi Wang
Rob Califf
Doug Turnbull
Susan Golombok
Michele Ramsay
B.K. Thelma

The following topics were discussed in the closed sessions:

The Commissioners discussed their draft report.

The following materials (written documents) were made available to the committee in the closed sessions:

none.

Date of posting of Closed Session Summary:

April 24, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Commission Teleconference 7

March 20, 2020

10:00 AM - 11:00 AM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies, Richard Lifton, Hide Akutsu, Dana Carroll, Susan Golombok, Andy Greenfield, Jeffrey Kahn, Bartha Knoppers, Eric Lander, Michele Ramsay, Julie Steffann, BK Thelma, Doug Turnbull, Haoyi Wang, Anna Wedell.

The following topics were discussed in the closed sessions:

The Commission discussed its draft report.

The following materials (written documents) were made available to the committee in the closed sessions:

none.

Date of posting of Closed Session Summary:

March 23, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Commission Teleconference 6

March 2, 2020

10:00 AM - 12:00 PM (ET)

Past

About

This will be a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It will be closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Commission Teleconference 5

February 21, 2020

10:00 AM - 12:00 PM (ET)

Past

About

This was a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It was closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Hidenori Akutsu
Dana Carroll
Andy Greenfield
Jeffrey Kahn
Bartha Knoppers
Eric Lander
Michelle Ramsey
Julie Steffann
Haoyi Wang
Anna Wedell

The following topics were discussed in the closed sessions:

Draft report

Date of posting of Closed Session Summary:

February 28, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Commission Meeting 3

January 22 - 23, 2020

Past

About

This was the third meeting of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). The meeting was closed in it's entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies
Richard Lifton
Hidenori Akutsu
Robert Califf
Dana Carroll
Andy Greenfield
Susan Golombok
Rahman Jamal
Jeffrey Kahn
Bartha Maria Knoppers
Eric Lander
Jinsong Li
Michele Ramsay
Julie Steffann
B.K. Thelma
Doug Turnbull
Haoyi Wang
Anna Wedell

The following topics were discussed in the closed sessions:

Draft report.

The following materials (written documents) were made available to the committee in the closed sessions:

Draft report

Date of posting of Closed Session Summary:

February 28, 2020

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Commission Teleconference 4

October 21, 2019

11:00 AM - 12:30 PM (ET)

Past

About

This was a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It was closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies, Richard Lifton, Hidenori Akutsu, Dana Carroll, Susan Golombok, Andy Greenfield, Rahman Jamal, Jeffrey Kahn, Eric Lander, Michelle Ramsay, Julie Steffann, BK Thelma, Doug Turnbull, Anna Wedell

The following topics were discussed in the closed sessions:

The Commissioners discussed the agenda and invited speakers for their upcoming meeting in London.

The following materials (written documents) were made available to the committee in the closed sessions:

agenda

Date of posting of Closed Session Summary:

October 23, 2019

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing - Commission Teleconference 2

July 18, 2019

11:00 AM - 12:30 PM (ET)

Past

About

This was a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It was closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies, Richard Lifton, Robert Califf, Dana Carroll, Susan Golombok, Andy Greenfield, Rahman Jamal, Jeffrey Kahn, Bartha Knoppers, Eric Lander, Jinsong Li, Michele Ramsay, Julie Steffann, B.K. Thelma, Doug Turnbull, Haoyi Wang, Anna Wedell

The following topics were discussed in the closed sessions:

The commission discussed topics to be covered in addressing its statement of task, as well as preparations for upcoming commission calls and meetings.

Date of posting of Closed Session Summary:

July 19, 2019

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Tele Conference Closed

International Commission on the Clinical Use of Human Germline Genome Editing: Commission Teleconference 1

May 28, 2019

9:00 AM - 11:00 AM (ET)

Past

About

This was a conference call of the international commission developing a framework for considering technical, scientific, medical, regulatory, and ethical requirements for germline genome editing (should society conclude such applications are acceptable). It was closed in its entirety.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Kay Davies, Richard Lifton, Hidenori Akutsu, Robert Califf, Dana Carroll, Susan Golombok, Andy Greenfield, Rahman Jamal, Jeffery Kahn, Bartha Knoppers, Eric Lander, Julie Steffann, B.K. Thelma, Doug Turnbull, Haoyi Wang, Anna Wedell.

The following topics were discussed in the closed sessions:

The commission discussed its task and composition.

The following materials (written documents) were made available to the committee in the closed sessions:

Statement of task and provisional roster for the commission.

Date of posting of Closed Session Summary:

June 10, 2019

Contact

Dominic LoBuglio

dlobuglio@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Log In

Sign in to access your saved publications, downloads, and email preferences.

Former MyNAP users: You'll need to reset your password on your first login to MyAcademies. Click "Forgot password" below to receive a reset link via email. Having trouble? Visit our FAQ page to contact support.

Members of the National Academy of Sciences, National Academy of Engineering, or National Academy of Medicine should log in through their respective Academy portals.

Email (required)
Password (required)

Don't have an account?

Register

Email (required)
New password (required)
Retype password (required) Password must be at least 8 characters
I accept the terms of use
terms of use

Thank You

Thank you for creating a MyAcademies account!

Enjoy free access to thousands of National Academies' publications, a 10% discount off every purchase, and build your personal library.

Forgot Password

Enter the email address for your MyAcademies (formerly MyNAP) account to receive password reset instructions.

Reset Requested

We sent password reset instructions to your email . Follow the link in that email to create a new password. Didn't receive it? Check your spam folder or contact us for assistance.

Reset Password

New password (required)
Retype password (required) Password must be at least 8 characters

Reset Password

Your password has been reset.

Log In

Verify email

Verify Your Email Address

We sent a verification link to your email. Please check your inbox (and spam folder) and follow the link to verify your email address. If you did not receive the email, you can request a new verification link below

Subscribe

First Name
Last Name
Email (required)
I agree to receive emails from the National Academies (required)

We respect your privacy and will never share your information.

My Academies

International Commission on the Clinical Use of Human Germline Genome Editing

Dropdown items

Heritable Human Genome Editing: Rare Disease Week Discussion - Virtual Event