June 12, 2014
Natcher Conference Center
Masur Auditorium
Irvine, CA
| 1:00 p.m. | Welcome and Introductions |
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AUBREY MILLER Senior Medical Advisor National Institute of Environmental Health Sciences, National Institutes of Health |
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| 1:15 p.m. | Moving Forward: Implementing a Research Agenda in Disasters |
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NICOLE LURIE
Assistant Secretary for Preparedness and Response, Department of Health and Human Services |
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| 2:00 p.m. | Plenary Session: Overview of Case Studies Demonstrating Health Research Needs, Actions, and Lessons Learned |
Goal: Explore past research responses, needs, and priority issues of concern for framing the workshop sessions and discussions.
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Overview and Introductions/Facilitator
BOB URSANO, Director, Center for the Study of Traumatic Stress, Uniformed Services University of the Health Sciences |
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Lessons from Katrina
DAVID ABRAMSON, Deputy Director, National Center for Disaster Preparedness at Columbia University |
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Research Following September 11, 2001
DAVID PREZANT, Chief Medical Officer of the Fire Department of the City of New York |
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Hurricane Sandy
LEWIS GOLDFRANK, Professor, Department of Emergency Medicine at New York University |
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| 4:45 p.m. | Concluding Remarks |
| DONALD A. B. LINDBERG Director, National Library of Medicine, National Institutes of Health |
June 13, 2014
Natcher Conference Center
Main Auditorium
Irvine, CA
Plenary Session 2: Morning Speakers
Goal: Identifying data gaps in disasters and implementing research looking forward.
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FRANCIS COLLINS Director National Institutes of Health |
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LINDA BIRNBAUM Director National Institute of Environmental Health Sciences |
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JOHN HOWARD Director National Institute for Occupational Safety and Health, Centers for Disease Control and Prevention |
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| Morning Concurrent Panel Sessions |
PANEL 1: ADDRESSING INSTITUTIONAL REVIEW BOARD BARRIERS TO HEALTH RESEARCH IMPLEMENTATION
Facilitator:
DIANE DIEULIIS, Deputy Director, Office of Policy and Planning, Assistant Secretary of Preparedness and Response
Goals: Explore strategies to balance human subject protections while enabling timely IRB review of research protocols, discuss strategies to obtain informed consent in emergency situations, and consider the ethics of data collection for special populations in disasters.
- MICHAEL GOTTESMAN, Deputy Director for Intramural Research, National Institutes of Health
- NELL ALLBRITTON, IRB Director, Louisiana Department of Health and Hospitals
- HOLLY TAYLOR, Core Faculty, Johns Hopkins Berman Institute of Bioethics
PANEL 2: PARTNERING WITH THE COMMUNITY TO ENABLE ACCESS AND BASELINE DATA
Facilitators:
JOSEPH “CHIP” HUGHES, Program Director, Worker Education and Training Branch, NIEHS
JACK HERRMANN, Senior Advisor & Chief, Public Health Programs, NACCHO
Goals: Explore how to effectively engage community and citizen scientists in disaster research. Consider strategies to strengthen the interface and collaborations with first responders and emergency management, health departments, workers, and others to promote successful disaster research.
- DAVID LAKEY, Commissioner, Texas Department of State Health Services
- STEPHEN BRADBERRY, Executive Director, Alliance Institute
- CRAIG SLATIN, Principal Investigator and Director of The New England Consortium
- ANTHONY SPEIER, Associate Professor of Clinical Psychiatry, Louisiana State University Health Sciences Center
PANEL 3: IMPROVING DATA COLLECTION CAPABILITIES AND INFORMATION RESOURCES
Facilitator:
STEVEN PHILLIPS, National Library of Medicine, NIH
Goals: Explore new data collection tools and strategies, infrastructure needs to enable effective and accessible data sharing, and field implementation.
- AUBREY MILLER, Senior Medical Advisor, NIEHS
- MICHAEL HEUMANN, Oregon Public Health, Council of State and Territorial Epidemiologists
- GAMUNU WIJETUNGE AND ELLEN SCHENK, NHTSA
- LAUREN LEWIS, Chief of Health Studies Branch, National Center for Environmental Health (NCEH/CDC)
Lunch
Afternoon Concurrent Panel Sessions
PANEL 4: CONSIDERATIONS FOR RAPID AND SUSTAINED FUNDING MECHANISMS FOR RESEARCH IN DISASTERS
Facilitator:
GWEN COLLMAN, Director, Division of Extramural Research and Training, NIEHS
Goals: Consider rapid funding mechanisms to enable nimble and flexible grant distribution. Discuss strategies for designing funding mechanisms that would allow for sustainable disaster research protocols, which have the flexibility to immediately activate additional protocols during a disaster.
- DENNIS WENGER, Program Director, Infrastructure Systems Management and Extreme Events, National Science Foundation
- FAITH MITCHELL, President and CEO, Grantmakers In Health
- SARAH LISTER, Specialist in Public Health and Epidemiology, Congressional Research Service
PANEL 5: IMPROVING THE ROLE OF EXTRAMURAL CLINICAL AND ACADEMIC RESEARCHERS, CENTERS, AND NETWORKS
Facilitator:
DAVID ABRAMSON, Deputy Director, National Center for Disaster Preparedness
Goals: Explore the essential role for the academic and clinical research community and other partners in collecting data, data sharing, communications, and other priorities to enable timely
research. Discuss multiple institutions working together as one entity, and the characteristics of an ongoing, sustained research network.
- LORI PEEK, Codirector, Center for Disaster and Risk Analysis, Colorado State University
- GARY MACHLIS, Colead of Strategic Sciences Group, U.S. Department of the Interior
- PAUL SELIGMAN, Executive Director, Global Regulatory Policy, Amgen
- SHARON CROISANT, Associate Professor, Community Outreach and Education Program of the NIEHS Center in Environmental Toxicology, University of Texas Medical Branch (UTMB)
PANEL 6: COORDINATING LOGISTICS TO EXECUTE RAPID RESEARCH IN DISASTER RESPONSE
Facilitator:
HOWARD ZUCKER, Acting Commissioner, New York State Department of Health
Goals: Discuss triggers for go/no-go scenarios, just-in-time training for research responders, integration of disaster research response into the ICS structure, and corresponding logistical needs when working in disaster settings.
- SHELLEY DUTEAUX, Assistant Deputy Director of Public Health Emergency Preparedness, California Department of Public Health
- CHARLES CAIRNS, Associate Director, U.S. Critical Illness and Injury Trials Group
- JOSEPH “CHIP” HUGHES, Program Director, Worker Education and Training Branch, NIEHS
- JOSEPH BARBERA, CoDirector of the Institute for Crisis, Disaster and Risk Management at George Washington University
Break
Plenary Session 3: Wrap Up and Next Steps
Main Auditorium
Goals: Provide bold strategies for improved inclusion and integration of all stakeholders to support the timely identification of health research priorities, and collection of longer-term data to understand health impacts, efficacy of responses, and risk factors to strengthen resiliency and future preparedness.
REPORT BACK FROM PANEL DISCUSSIONS
Goal: Top 5 action items from each category for a 5-year horizon to improve our health research response capabilities
CLOSING RESPONSE PANEL: ACTIONS TO BUILD THE FUTURE FOR DISASTER RESEARCH
Facilitator:
BERNARD GOLDSTEIN, Emeritus Professor and Dean,
University of Pittsburgh Graduate School of Public Health
- MARCIA MCNUTT, Editor-in-Chief, Science
- JACK HERRMANN, Senior Advisor and Chief, Public Health Programs, NACCHO
- IRWIN REDLENER, Director, National Center for Disaster Preparedness
- SALLY PHILLIPS, Acting Deputy Assistant Secretary, Office of Health Affairs, DHS
- PAUL BIDDINGER, Medical Director for Emergency Preparedness, Massachusetts General Hospital and Partners Healthcare
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