Completed
The Centers for Disease Control and Prevention estimates that approximately 40 million people in the United States suffer from a serious illness that limits their daily activities. However, significant disparities exist across different communities in the quality and access to care for these illnesses. Factors such as race, ethnicity, gender, geography, socioeconomic status, or insurance status exacerbate these complex disparities.
On April 4, 2019, The National Academies of Sciences, Engineering, and Medicine convened a workshop to investigate barriers, policy initiatives, and opportunities for improving access to and equity of care for people living with a serious illness.
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Workshop
·2019
The Centers for Disease Control and Prevention estimates that approximately 40 million people in the United States suffer from a serious illness that limits their daily activities. These illnesses include heart and lung disease, cancer, diabetes, and Alzheimer's disease and other forms of dementia....
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Description
An ad hoc committee will plan and host a one-day workshop whose agenda will examine access to and equity of care for people with serious illness. The workshop will feature invited presentations and panel discussions on topics that may include:
- Barriers that impede access to care for serious illness (e.g., advance care planning, palliative care, and hospice) among vulnerable populations and strategies to address those barriers
- Strategies to build trust and effectively engage patients, families, and caregivers in diverse cultural, ethnic, racial and socioeconomic environments, in order to communicate with patients and families in a culturally competent manner regarding expectations and values related to end-of-life care, and to ensure that treatment is aligned with preferences
- Approaches to enhancing the diversity of the workforce providing care to people with serious illness
- Models of care delivery that currently serve vulnerable populations with serious illness, including public-private partnerships and community-level interventions such as use of community health coaches for peer-to-peer interventions, and partnering with faith-based organizations
- Research gaps and key questions for further research
The planning committee will develop the agenda for the workshop, select speakers and discussants, and moderate the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
Contributors
Sponsors
Aetna (different from the Aetna Foundation)
Altarum Institute
American Academy Of Hospice And Palliative Medicine
American Cancer Society
American Geriatrics Society
Anthem
Ascension Health
Association of Professional Chaplains
Association of Rehabilitation Nurses
Blue Cross and Blue Shield of North Carolina
Blue Cross Blue Shield Association
Blue Cross Blue Shield of Massachusetts
Bristol Myers Squibb
Cambia Health Solutions
Cedars-Sinai Health System
Center to Advance Palliative Care
Centers for Medicare & Medicaid Services
Coalition to Transform Advanced Care
Excellus BlueCross BlueShield
Federation of American Hospitals
Gordon and Betty Moore Foundation
Hospice and Palliative Nurses Association
Kaiser Permanente
National Academy of Medicine
National Coalition for Hospice and Palliative Care
National Hospice and Palliative Care Organization
National Institute of Nursing Research
National Institutes of Health
National Palliative Care Research Center
National Patient Advocate Foundation
National Quality Forum
New York Academy of Medicine
Oncology Nursing Society
Patient-Centered Outcomes Research Institute
Private: For Profit
Private: Non Profit
Social Work Hospice and Palliative Care Network
Supportive Care Coalition
Susan G. Komen
The California State University Institute for Palliative Care
The Greenwall Foundation
The John A. Hartford Foundation
Staff
Laurene Graig
Lead
