Research Workshop on Adolescent Health Care Services and Systems

January 22, 2007

Keck Center of The National Academies

Washington, DC

Workshop Goal:

Engage in presentations and discussion on examining the research base on the organization and delivery of adolescent health care services in the following areas:

1. Identify current models of adolescent health care delivery.

2. Examine how measures of quality (as defined by the Institute of Medicine and adapted to adolescents) apply to adolescent health care delivery.

3. Explore the evidence base for the quality of health care and different types of health care systems and the research needs for measuring this quality now and in the future.

4. Examine the methods in which health care can and should be delivered to special populations of adolescents now and in the future.

5. Identify research needs and gaps on models, quality, and delivery of adolescent health care.

Welcome, Introduction, and Overview

Moderator: Robert Lawrence, MD, Committee Chair

Background and Overview of the Workshop

Frederick Rivara, MD, MPH, Committee Member

PANEL 1 Overview of Adolescent Health Care and Adolescent Health Care Systems

Moderator: Burton Edelstein, DDS, MPH, Committee Member

Adolescent Population: Health Status, Utilization of Health Care Services, and Indicators of Need

Adolescent Population: Connection of Needs of Services to Health Care Systems

The Adolescent Health Care Systems

Structure of and Settings for Adolescent Health Care Services: Comparison with Pediatric and Adult Health Care

Prevention in Adolescent Health Care: Needs, Opportunities, and Long-Term Impact

Discussion of Panel 1

PANEL 2 Quality in the Delivery of Adolescent Health Care: Safety, Timeliness, Efficiency, Clinical Effectiveness, Equity, and Patient-Centeredness

Moderator: Mark Schuster, MD, PhD, Committee Member

Safety, Timeliness, Efficiency, and Clinical Effectiveness

Patient-Centeredness

Equity

Discussion of Panel 2

PANEL 3 Evidence-Base for Service Delivery Models or Systems of Care

Moderator: Genevieve Kenney, PhD, Committee Member

Models or Systems of Care in the Public and Private Sector

Community Models or Systems of Care

Health Care Using New Technologies

Discussion of Panel 3

PANEL 4 Assessing Effective Health Care Systems for Special Adolescent Populations

Moderator: Laurie Chassin, PhD, Committee Member

Youth with Substance Use Disorders

Youth with Mental Illness

Incarcerated, Foster Care, and Homeless/Runaway Youth

Lesbian, Gay, Bisexual, and Transgender Youth

Discussion of Panel 4

CLOSING

Trina Anglin, Office of Adolescent Health, Maternal and Child Health Bureau, Health Resources and Services Administration

Chrisa Arcan, University of Minnesota

Winnetta Baker, Center for Treatment Research on Adolescent Drug Abuse, University of Miami

Anne Beal, The Commonwealth Fund

Linda H. Bearinger,* School of Nursing, University of Minnesota

Kelly Betha, Maria Fareri Children’s Hospital, West Chester Medical Center

Christine Bethell, Child and Adolescent Health Measurement Initiative and Oregon Health and Science University

Shay Bilchik,* Center for Juvenile Justice Reform and Systems Integration, Georgetown University

Robert Blum, The Johns Hopkins Bloomberg School of Public Health

Wendy Braund, American College of Preventive Medicine

Claire Brindis, University of California, San Francisco

Debra Brinson, School-Community Health Alliance of Michigan

Sarah Brown,* The National Campaign to Prevent Teen Pregnancy

Richard Catalano, School of Social Work, University of Washington

Rosemary Chalk, Board on Children, Youth, and Families

Laurie Chassin,* Department of Psychology, Arizona State University

Anita Chandra, RAND Corporation

Lynn Choromanski, University of Minnesota

Gordon H. DeFriese, University of North Carolina at Chapel Hill

Mark Del Monte, Department of Federal Affairs, American Academy of Pediatrics

Elise Desjardins, Grantmakers in Health

Thomas DeWitt, Cincinnati Children’s Hospital Medical Center

Denise Dougherty, Agency for Healthcare Research and Quality

Nancy Dubler,* Montefiore Medical Center

Burton Edelstein,* College of Dental Medicine, Columbia University

Abigail English, Center for Adolescent Health and the Law, Chapel Hill, North Carolina

Dianne Ewashko, New York State Office of Children and Family Services

Carol Ford, University of North Carolina at Chapel Hill

Harriette Fox,* Maternal and Child Health Policy Research Center

Robert Garofalo, Children’s Memorial Hospital, Chicago

Leandrea Gilliam, Sexual Minority Youth Assistance League

Pauline Ginsberg, Retired, National Academies

David Grossman, Group Health Permanente

Bethany Hardy, Institute of Medicine Office of Reports and Communications

Scott Harpin, University of Minnesota

Karen Hendricks, American Academies of Pediatrics

Catherine Hess, National Academy for State Health Policy

Kimberly Hoagwood, Columbia University

Elizabeth Hoffman, Subcommittee on Education and Early Childhood Development, Senator Christopher Dodd, Ranking Member

Charles Homer, National Initiative for Child Health Quality

Laura Hurwitz, Assembly on School-Based Health Care, Washington, DC

Charles Irwin, Jr.,* School of Medicine, University of California, San Francisco

Kelly Kelleher,* Columbus Children’s Research Institute, The Ohio State University

Genevieve Kenney,* Urban Institute, Washington, DC

Eva Klain, American Bar Association Center for Children and the Law

Jonathan Klein, University of Rochester Medical Center

Kathryn Kushner, National Institute for Health Care Management Foundation

Robert S. Lawrence,* Bloomberg School of Public Health, The Johns Hopkins University

Julia Graham Lear,* School of Public Health and Health Services, Department of Prevention and Community Health, The George Washington University

Linda Juszczak, National Assembly on School-Based Health Care

Keith Loud, Northeast Ohio Universities’ College of Medicine, Akron Children’s Hospital

Daryl Lynch, Children’s Mercy Hospital, Kansas City, Missouri

Andrea MacKay, National Center for Health Statistics

Steven Mautner, National Academies Press

John McInerney, National Academy for State Health Policy

Irene Melamed, Adolescent Medicine Specialist, Buenos Aires, Argentina

Maya Nath, American College of Preventive Medicine

Anne Nucci-Sack, Mount Sinai Adolescent Health Center

Amy Nevel, Office of Science and Data Policy, Office of the Assistant Secretary for Planning and Evaluation, Department of Health and Human Services

Eduardo Ochoa, Jr.,* Section of General Pediatrics, Arkansas Children’s Hospital

Valerie Ovholt, Oakwood Teen Health Center, Wayne County, Michigan

Pat Paluzzi, Health Teen Network

Kathaleen Perkins, West Virginia University

Nalini Ravindranath, The Forum for Youth Investment

Frederick P. Rivara,* Department of Pediatrics, University of Washington, Seattle

Jennifer Rogers, American College of Preventive Medicine

Jonelle Rowe, Office of Women’s Health, U.S. Department of Health and Human Services

Vinod K. Sahney,* Blue Cross and Blue Shield of Massachusetts

Aric Schichor, St. Francis Hospital, Hartford, Connecticut

Sarah Schulman, Health Resources and Services Administration, U.S. Department of Health and Human Services

Mark A. Schuster,* RAND and University of California, Los Angeles

Lonnie Sherrod,* Fordham University

Warner Slack, Beth Israel Deaconess Medical Center, Boston

Matthew Stagner,* Chapin Hall Center for Children, The University of Chicago

Sarah Stoddard, University of Minnesota

Kirshna Upadhya, The Johns Hopkins Adolescent Medicine

Gilberto Velez-Domenech, Maria Fareri Children’s Hospital, West Chester Medical Center

Leslie Walker,* Children’s Hospital and Regional Medical Center, Seattle

Constance Weisner, University of California, San Francisco