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Addressing the Needs of Adolescents and Young Adults with Cancer: A Workshop

Completed

Each year, nearly 70,000 adolescents and young adults (AYA) between the ages of 15 and 39 are diagnosed with cancer. This population faces unique short- and long-term health and psychosocial consequences. The National Cancer Policy Forum convened a public workshop to identify gaps and challenges in caring for AYA patients with cancer. Workshop presentations and discussions examined potential strategies to improve quality of care and patient outcomes.

Description

An ad hoc committee will plan and host a 1.5-day public workshop to examine the unmet needs of adolescents and young adults (AYA) with cancer. The workshop will feature invited presentations from clinicians and other advocates working to improve the care and outcomes for the AYA population with cancer. A major goal of the workshop will be to identify gaps and challenges in providing optimal care to AYA patients with cancer, and to discuss potential strategies and actions to address them.

Participants will be invited to discuss topics that may include:

  • best practices for diagnosing and caring for AYA patients with cancer;
  • challenges in developing the evidence base to guide the care of the AYA population;
  • the unique psychosocial needs of the AYA population with cancer;
  • behavioral health and lifestyle management for the AYA population;
  • long-term concerns for survivors of AYA cancers; and
  • end of life care and planning in the AYA population.

An individually authored workshop summary will be prepared by a designated rapporteur based on the information gathered and the discussions held during the workshop in accordance with institutional policy and procedures. No committee will be used in the development of the workshop summary.

Collaborators

Sponsors

American Association for Cancer Research

American Cancer Society

American Society for Radiation Oncology

American Society of Clinical Oncology

Association of American Cancer Institutes

Bristol Myers Squibb

C-Change

Centers for Disease Control and Prevention (CDC)

CEO Roundtable on Cancer

GlaxoSmithKline

LiveSTRONG Foundation

National Cancer Institute

Novartis Oncology

Oncology Nursing Society

Sanofi

Staff

Sharyl Nass

Lead

Erin Balogh

Lead

Patrick Burke

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