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Sickle Cell Disease in Social Security Disability Evaluations

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The U.S. Social Security Administration has requested the National Academies of Sciences, Engineering, and Medicine establish an ad hoc committee to conduct a study to review the latest published research and science and produce a report addressing best practices and community experiences in the management and treatment of sickle cell disease, including hospitalization, parenteral narcotic pain medication, and traditional and alternative therapies and home remedies, their prevalence, efficacy, and side-effects, as well as recent changes or challenges in the provision of such care.

Featured Events

Sickle Cell Disease in Social Security Disability Evaluations: Report Release Webinar

  • February 2, 2026
  • 10:00 AM - 11:00 AM (EST)
  • Webinar
  • Upcoming

Join the National Academies' Committee on Sickle Cell Disease and Social Security Disability Evaluations on Monday, February 2, 2026 from 10-11 am ET for a public release webinar of the recent report...
About Publications/Resources Past Events

Events

Webinar 3: Functional Outcomes of Sickle Cell Disease — The Whole-Person Experience

  • February 21, 2025
  • 10:00 AM - 1:00 PM (EST)
  • Webinar
  • Past

A National Academies consensus study committee will host the third in a series of public, information-gathering webinars including the perspectives of individuals living with sickle cell disease (SCD)...

Webinar 2: Pain Management and Sickle Cell Disease

  • February 7, 2025
  • 1:00 PM - 4:00 PM (EST)
  • Webinar
  • Past

A National Academies consensus study committee funded by the Social Security Administration will host the second in a series of public, information-gathering webinars including the perspectives of ind...

Webinar 1: Hospitalization and Sickle Cell Disease

  • December 20, 2024
  • 1:00 PM - 4:00 PM (EST)
  • Webinar
  • Past

A National Academies consensus study committee funded by the U.S. Social Security Administration will host the first in a series of public, information-gathering webinars including the perspect...
Meetings

Sickle Cell Disease in Social Security Disability Evaluations Meeting 6

  • June 24 - 25, 2025
  • Closed
  • Meeting
  • Past

Sickle Cell Disease in Social Security Disability Evaluations Meeting 5

  • May 30, 2025
  • 10:00 AM - 4:30 PM (EDT)
  • Closed
  • Meeting
  • Past

Sickle Cell Disease in Social Security Disability Evaluations: Meeting 4

  • April 24, 2025
  • 10:00 AM - 5:00 PM (EDT)
  • Closed
  • Meeting
  • Past

Committee meeting 4 to discuss the second report

Sickle Cell Disease in Social Security Disability Evaluations Report Discussion Call #1

  • March 18, 2025
  • 12:00 PM - 1:00 PM (EDT)
  • Closed
  • Meeting
  • Past

Meeting to discuss report sign off

Sickle Cell Disease in Social Security Disability Evaluations: Meeting #3

  • March 4 - 5, 2025
  • Closed
  • Meeting
  • Past

Commitee meeting #3
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