Historical unethical practices such as systemic racism and structural discrimination have negatively impacted the trustworthiness of genomics research, particularly with underrepresented populations. Working collaboratively with populations through community engagement can improve the quality of the science and the research benefits to the communities. The National Academies Roundtable on Genomics and Precision Health held a July 2024 workshop to explore the challenges and opportunities for long-term, sustained community engagement and partnerships in genomics research.
National Academies of Sciences, Engineering, and Medicine. 2024. Sustaining Community Engagement in Genomics Research: Proceedings of a Workshop—in Brief. Washington, DC: The National Academies Press.
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