VIEW WHITE PAPER on patient engagement prepared by Scott W. Hamilton & Alan Hamilton, Ph.D.
BACKGROUND
"Mild" TBIs, including concussions, are a common condition. Nearly five million people are seen in U.S. emergency departments (EDs) for suspected brain injuries each year, accounting for 1% to 2% of all ED visits annually. A little over half of these patients, 2.8 million annually, will be diagnosed with a TBI. Of those, 95% of these injuries will be considered mild.
In part due to the longstanding expectation that most TBI patients with milder injuries will make a quick and full recovery, an estimated one-third of such patients are discharged without a treatment plan, without a referral for follow-up, and without opportunities for at-home monitoring. Yet emerging research indicates that mild TBIs can nonetheless cause long-lasting disruptions to a person's physical, cognitive, and psychoemotional well-being. Persisting symptoms commonly include headaches, dizziness, cognitive impairments, and disruptions to sleep and eye tracking, among other symptoms.
The National Academies' Forum on Traumatic Brain Injury convened a workshop to explore how improvements in clinical research, treatment guidelines, symptom monitoring, outpatient care, and health system practices could better serve adults released from emergency care following a TBI. Keeping in mind the heterogenous age, geographic, and socioeconomic civilian populations that experience TBI, the workshop will discuss such issues as whether or how to check in with patients after discharge, and the varied needs, issues, and considerations that relate to follow-up, outpatient care, and at-home symptom management for adult patients in the immediate days and months after their injury.