Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary
2011

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As past, current, or future patients, the public should be the health care system's unwavering focus and serve as change agents in its care. Taking this into account, the quality of health care should be judged not only by whether clinical decisions are informed by the best available scientific evidence, but also by whether care is tailored to a patient's individual needs and perspectives. However, too often it is provider preference and convenience, rather than those of the patient, that drive what care is delivered. As part of its Learning Health System series of workshops, the Roundtable on Value & Science-Driven Health Care hosted a workshop to assess the prospects for improving health and lowering costs by advancing patient involvement in the elements of a learning health system.

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338 pages · 6 x 9 · paperback
ISBN Paperback: 0-309-14993-2
ISBN Ebook: 0-309-14994-0
DOI: https://doi.org/10.17226/12848

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Institute of Medicine. 2011. Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary. Washington, DC: The National Academies Press.

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Front Matter i-xxvi
Synopsis and Overview 1-32
1 The Learning Health System 33-46
2 Clinical Research, Patient Care, and Learning That Is Real-Time and Continuous 47-68
3 Clinical Data as a Public Good for Discovery 69-94
4 Engaging Patients to Improve Science and Value in a Learning Health System 95-118
5 Health Information Technology as the Engine for Learning 119-136
6 Patients, Clinical Decisions, and Health Information Management in the Information Age 137-158
7 Applying Evidence for Patient-Centered Care: Standards and Expectations 159-186
8 Team-Based Care and the Learning Culture 187-212
9 Incentives Aligned with Value and Learning 213-234
10 Common Themes and Opportunities for Action 235-244
Appendixes 245-246
Appendix A: Workshop Agenda 247-252
Appendix B: Biographical Sketches of Workshop Participants 253-272
Appendix C: Workshop Attendee List 273-282
Appendix D: The Learning Health System Series: Workshop Common Themes 283-311
OTHER PUBLICATIONS IN THE LEARNING HEALTH SYSTEM SERIES 312-312

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Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary (2011)

Chapter: Appendixes

Publication information

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Patients Charting the Course: Citizen Engagement and the Learning Health System: Workshop Summary (2011)

Chapter: Appendixes