Digital Data Improvement Priorities for Continuous Learning in Health and Health Care: Workshop Summary (2013)

Chapter: Appendix B: Workshop Agenda

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Suggested Citation: "Appendix B: Workshop Agenda." Institute of Medicine. 2013. Digital Data Improvement Priorities for Continuous Learning in Health and Health Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13424.
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Appendix B

Workshop Agenda

DIGITAL DATA PRIORITIES FOR CONTINUOUS LEARNING IN HEALTH AND HEALTH CARE

An Institute of Medicine Workshop Sponsored by the Office of the National Coordinator for Health Information Technology

MARCH 23, 2012

KECK CENTER 500 FIFTH STREET NW, WASHINGTON DC 20001

A LEARNING HEALTH SYSTEM ACTIVITY IOM ROUNDTABLE ON VALUE & SCIENCE-DRIVEN HEALTH CARE

Meeting objectives

1.  Discuss the current quality status of digital health data.

2.  Explore challenges, and identify key questions related to data quality in the use of EHRs, patient registries, administrative data, and public health sources for learning—continuous and episodic—and for system operational and improvement purposes.

3.  Engage individuals and organizations leading the way in improving the reliability, availability, and usability of digital health data for real-time knowledge generation and health improvement in a continuously learning health system.

4.  Identify and characterize the current deficiencies and consider strategies, priorities, and responsibilities to address the deficiencies.

5.  Initiate the development of a strategic framework for integrated and networked stewardship of efforts to continuously increase digital data utility.

Page 58 Cite
Suggested Citation: "Appendix B: Workshop Agenda." Institute of Medicine. 2013. Digital Data Improvement Priorities for Continuous Learning in Health and Health Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13424.
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Agenda

7:30 am Coffee and light breakfast available
 
8:00 am Welcome, introductions, and overview
Welcome, framing of the meeting and agenda overview

image  J. Michael McGinnis (Institute of Medicine)

image  Farzad Mostashari (Office of the National Coordinator)

image  James Walker (Planning Committee Chair)
 
8:15 am Characteristics, challenges, and determinants of data quality
 

image  Session Description: This session includes brief comments on the data quality challenges that lie ahead and a longer discussion of the characteristics and determinants of digital health data quality.
 

image  Key Topics:

image  Challenges on the horizon Doug Fridsma (ONC)

image  Characteristics and determinants of data quality Marc Overhage (Siemens)
 
  OPEN DISCUSSION
 
9:00 am Performance assessment
 

image  Session Description: This session focuses on the quality of digital health data needed to evaluate clinical care delivery, population management and the business and operating processes that make up a learning health system.
 

image  Key Topics:

image  Assessing value Carol McCall (GNS)

image  Managing populations and processes Mark Leenay (OptumHealth)
 
  OPEN DISCUSSION
 
10:00 am Break
Page 59 Cite
Suggested Citation: "Appendix B: Workshop Agenda." Institute of Medicine. 2013. Digital Data Improvement Priorities for Continuous Learning in Health and Health Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13424.
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10:15 am Enabling research
 

image  Session Description: This session focuses on the quality of digital health data needed to enable research.
 

image  Key Topics:

image  Clinical research Rebecca Kush (Clinical Data Interchange Standards Consortium)

image  Translational informatics Mia Levy (Vanderbilt)
 
  OPEN DISCUSSION
 
11:15 am Supporting public health and surveillance
 

image  Session Description: This session focuses on the quality of digital health data needed to support of public health functions, including surveillance.
 

image  Key Topics:

image  Public health surveillance and management James Buehler (CDC)

image  State-level perspective Martin LaVenture (Minnesota Department of Health)
 
  OPEN DISCUSSION
 
12:15 pm Lunch keynote
 
  Who is your customer?
James Heywood, PatientsLikeMe
 
1:00 pm Approaches to continuous improvement using large-scale datasets
 

image  Session Description: Session presentations will focus on the implications of digital health data quality on the potential for learning from large amounts of health data.
Page 60 Cite
Suggested Citation: "Appendix B: Workshop Agenda." Institute of Medicine. 2013. Digital Data Improvement Priorities for Continuous Learning in Health and Health Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13424.
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image  Key Topics:

image  Using distributed data/Query Health Rich Platt (Harvard) and Rich Elmore (ONC)

image  Data analysis and discovery of significant patterns David Madigan (OMOP/Columbia)
 
  OPEN DISCUSSION
 
2:00 pm Innovative approaches to addressing data challenges
 

image  Session Description: This session will focus on innovative approaches to overcoming some prominent challenges associated with using health data.
 

image  Topics:

image  Data harmonization Chris Chute (Mayo)

image  Linking data across time and sources Vik Kheterpal (CareEvolution Inc.)
 
  OPEN DISCUSSION
 
3:00 pm Strategies going forward
 

image  Session Description: This session will include a rapid-fire, moderated discussion to identify the top 10 actions necessary for progress discussed during the course of the meeting.
 
 

1.  Identification of potential action steps—20 min. (45 seconds each)

2.  Rapid identification of pros and cons—15 min.

3.  Identification of top ten leading action steps—25 min.
 
  OPEN DISCUSSION
 
4:00 pm Next steps
 

image  Session Description: This session will build off of the 10 action steps identified in the previous session and outline options to move forward.
5:00 pm Adjourn
Page 57 Cite
Suggested Citation: "Appendix B: Workshop Agenda." Institute of Medicine. 2013. Digital Data Improvement Priorities for Continuous Learning in Health and Health Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13424.
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Page 58 Cite
Suggested Citation: "Appendix B: Workshop Agenda." Institute of Medicine. 2013. Digital Data Improvement Priorities for Continuous Learning in Health and Health Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13424.
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Page 59 Cite
Suggested Citation: "Appendix B: Workshop Agenda." Institute of Medicine. 2013. Digital Data Improvement Priorities for Continuous Learning in Health and Health Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13424.
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Page 60 Cite
Suggested Citation: "Appendix B: Workshop Agenda." Institute of Medicine. 2013. Digital Data Improvement Priorities for Continuous Learning in Health and Health Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13424.
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