Previous Chapter: Appendix A: References
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Assessing the Impact of Applications of Digital Health Records on Alzheimer's Disease Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21827.

B
Workshop Agenda

ASSESSING THE IMPACT OF APPLICATIONS OF DIGITAL
HEALTH RECORDS ON
ALZHEIMER’S DISEASE RESEARCH


Presented at the Alzheimer’s Association
International Conference on Alzheimer’s Disease
Washington, DC | July 20, 2015

   
8:00 a.m. Session Overview
 
DANIEL BURCH
Vice President, Global Therapeutic Head for Neuroscience
Pharmaceutical Product Development
8:05 a.m.  
Clinical Trial Design: Digital Health Record (DHR) Collaborative Efforts in Europe
 
  • Examine how electronic medical records (EMRs), research, and epidemiology cohorts have been used in the United Kingdom and Europe to identify biomarkers, recruit study participants, and model future clinical trials.
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Assessing the Impact of Applications of Digital Health Records on Alzheimer's Disease Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21827.
  • Discuss the European Medical Information Framework progress toward an integrated platform for data aggregation.
 
SIMON LOVESTONE
Professor of Translational Neuroscience
Oxford University
 
8:20 a.m. Infrastructure Needs
 
Half a Century of Medical Records Linkage in the Rochester Epidemiology Project
 
  • Explore how passive record-linkage systems can be combined with active contacts to strengthen research to discover risk and protective factors for Alzheimer’s disease.
  • Review lessons learned, limits and gaps of EMR linkage systems, and how these can be used as practical tools.
 
WALTER A. ROCCA
Director, Rochester Epidemiology Project Professor of Epidemiology and Neurology
College of Medicine, Mayo Clinic
 
Lessons Learned from Medicare Claims–Based Methods of Studying DHRs
 
  • Review the current state of research and diagnostic methodologies based on administrative data and DHRs.
  • Examine reverse translations and limitations of DHRs and identify other necessary data sources.
 
JULIE BYNUM
Associate Professor of Medicine
Dartmouth Institute for Health Policy & Clinical Practice
Geisel School of Medicine at Dartmouth College
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Assessing the Impact of Applications of Digital Health Records on Alzheimer's Disease Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21827.
8:45 a.m. Ethical, Societal, and Legal Considerations
 
  • Examine what kinds of ethical, societal, and legal issues must be considered in applying DHRs on Alzheimer’s disease research.
 
TIA POWELL
Director, Montefiore Einstein Center for Bioethics
Professor of Clinical Epidemiology and Clinical Psychiatry
Albert Einstein College of Medicine
 
9:00 a.m. Opportunities for Alzheimer’s Disease Research: Facilitated Panel Discussion
 
  • Identify a set of core principles that can be used to support innovative clinical trial design as well as infrastructure and cloud computing needs for Alzheimer’s disease.
  • Discuss how information contained within DHRs holds the potential to identify novel surrogate markers and modify clinical trial design.
  • Identify the data-sharing and management strategies and infrastructure necessary to identify potential surrogate outcomes.
  • Discuss next steps and strategies for moving forward.
 
SIMON LOVESTONE
Professor of Translational Neuroscience
Oxford University
 
WALTER A. ROCCA
Director, Rochester Epidemiology Project
Professor of Epidemiology and Neurology
College of Medicine, Mayo Clinic
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Assessing the Impact of Applications of Digital Health Records on Alzheimer's Disease Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21827.
JULIE BYNUM
Associate Professor of Medicine
Dartmouth Institute for Health Policy & Clinical Practice
Geisel School of Medicine at Dartmouth College
 
IYA KHALIL
Executive Vice President and Co-Founder
GNS Healthcare
 
TIA POWELL
Director, Montefiore Einstein Center for Bioethics
Professor of Clinical Epidemiology and Clinical Psychiatry
Albert Einstein College of Medicine
 
9:30 a.m. ADJOURN
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Assessing the Impact of Applications of Digital Health Records on Alzheimer's Disease Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21827.
Page 27
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Assessing the Impact of Applications of Digital Health Records on Alzheimer's Disease Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21827.
Page 28
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Assessing the Impact of Applications of Digital Health Records on Alzheimer's Disease Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21827.
Page 29
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Assessing the Impact of Applications of Digital Health Records on Alzheimer's Disease Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21827.
Page 30
Next Chapter: Appendix C: Participant Biographies
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