Relevance of Health Literacy to Precision Medicine: Proceedings of a Workshop (2016)
Chapter: Appendix A: Workshop Agenda
Appendix A
Workshop Agenda
Roundtable on Health Literacy
Relevance of Health Literacy to Precision Medicine: A Workshop March 2, 2016
Open Session
| 8:30-8:40 a.m. | Welcome and Workshop Overview |
|
Bernard Rosof, M.D., Chair, Roundtable on Health Literacy |
|
|
8:40-9:00 a.m. |
Communication from the Genomic Era to Precision Medicine |
|
Joseph D. McInerney, M.A., M.S. |
|
|
Executive Vice President |
|
|
American Society of Human Genetics |
|
|
9:00-10:30 a.m. |
The Intersection of Health Literacy and Precision Medicine |
|
9:00-9:05 |
Introduction of speakers |
|
Ruth Parker, M.D. (moderator) |
|
|
Professor of Medicine, Pediatrics, and Public Health |
|
|
Emory University School of Medicine |
|
|
9:05-9:20 |
What is precision medicine and how has it evolved over time? |
|
Sara Van Driest, M.D., Ph.D. |
|
|
Assistant Professor of Pediatrics |
|
|
Vanderbilt University School of Medicine |
|
9:20-9:35 |
What is health literacy and how has it evolved over time? |
|
William Elwood, Ph.D. |
|
|
Office of Behavioral and Social Sciences Research National Institutes of Health |
|
|
9:35-9:50 |
Issues at the intersection of precision medicine and health literacy? |
|
Michael S. Wolf, Ph.D., M.A., M.P.H. |
|
|
Professor, Medicine and Learning Sciences |
|
|
Feinberg School of Medicine |
|
|
Northwestern University |
|
|
9:50-10:30 |
Discussion (to include McInerney) |
|
10:30-10:45 a.m. |
BREAK |
|
10:45 a.m.-12:30 p.m. |
Health Literacy in Precision Medicine Research |
|
10:45-10:50 |
Introduction of speakers |
|
Laurie Myers, M.B.A. (moderator) |
|
|
Global Health Literacy Director |
|
|
Merck & Co., Inc. |
|
|
10:50-11:05 |
Recruitment and messages (include privacy and informed consent) |
|
Suzanne Bakken, R.N., Ph.D. |
|
|
Alumni Professor of Nursing and |
|
|
Professor of Biomedical Informatics |
|
|
Columbia University |
|
|
11:05-11:20 |
Engagement and retention |
|
Consuelo Wilkins, M.D., MSCI |
|
|
Executive Director |
|
|
Meharry–Vanderbilt Alliance |
|
|
11:20-11:35 |
Results reporting |
|
Paul S. Appelbaum, M.D. |
|
|
Elizabeth K. Dollard Professor of Psychiatry, Medicine, and Law |
|
|
Director, Division of Law, Ethics, and Psychiatry Columbia University |
|
11:35-11:45 |
Reactions |
|
Health Literacy Reactor: |
|
|
Marin P. Allen, Ph.D. |
|
|
National Institutes of Health |
|
|
Precision Medicine Reactor: |
|
|
Benjamin Solomon |
|
|
Inova Translational Medicine Institute |
|
|
11:45-12:30 |
Discussion |
|
12:30-1:30 p.m. |
LUNCH |
|
1:30-3:00 p.m. |
Communicating Risk and Uncertainty in the Clinical Setting |
|
1:30-1:35 |
Introduction of speakers |
|
Laurie Francis, M.P.H. (moderator) |
|
|
Senior Director of Clinic Operations and Quality Oregon Primary Care Association |
|
|
1:35-1:50 |
Communicating for understanding |
|
Lori Erby, Ph.D. |
|
|
Associate Program Director |
|
|
Johns Hopkins University/ |
|
|
National Human Genome Research Institute Genetic Counseling Training Program |
|
|
1:50-2:05 |
Communicating risk to low health literacy populations |
|
Jessica Ancker, Ph.D. |
|
|
Associate Professor of Healthcare Policy and Research |
|
|
Weill Cornell Medical College |
|
|
2:05-2:15 |
Reactions |
|
Health Literacy Reactor: |
|
|
Terry Davis, Ph.D. |
|
|
Louisiana State University Health Sciences Center |
|
|
Precision Medicine Reactor: |
|
|
Cathy Wicklund, M.S. |
|
|
Feinberg School of Medicine |
|
|
Northwestern University |
|
2:15-3:00 |
Discussion |
|
3:00-3:15 p.m. |
BREAK |
|
3:15-4:45 p.m. |
Communicating with the Public |
|
3:15-3:20 |
Introduction of speakers |
|
Catina O’Leary, Ph.D., LMSW (moderator) |
|
|
President and CEO |
|
|
Health Literacy Missouri |
|
|
3:20-3:35 |
The role of health associations |
|
Kathleen Hickey, Ed.D., FNP, ANP, FAHA, FAAN |
|
|
Associate Professor of Nursing |
|
|
Columbia University Medical Center |
|
|
3:35-3:50 |
Precision medicine in social media |
|
Chris Gunter, Ph.D. |
|
|
Director of Communication Operations |
|
|
Children’s Healthcare of Atlanta’s |
|
|
Marcus Autism Center |
|
|
3:50-4:00 |
Reactions |
|
Health Literacy Reactor: |
|
|
Jennifer Dillaha, M.D. |
|
|
Arkansas Department of Health |
|
|
Precision Medicine Reactor: |
|
|
Carla Easter, Ph.D. |
|
|
National Human Genome Research Institute |
|
|
National Institutes of Health |
|
|
4:00-4:45 |
Discussion |
|
4:45-5:30 p.m. |
Reflections on the Day |
|
5:30 p.m. |
ADJOURN |
