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Contents |
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Preface |
ix |
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Executive Summary |
1 |
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1 Introduction |
15 |
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Origins of the Study |
16 |
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Performance Partnership Grants |
16 |
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Other Influences |
17 |
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Charge to the Panel |
18 |
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Essential Definitions |
19 |
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Performance Measurement and Related Concepts |
19 |
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Categories of Performance Measures |
20 |
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Phase I: Focus on Selection of Performance Measures |
22 |
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Use of Measures of Process and Capacity as Well as Outcomes |
22 |
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Guidelines for Selecting Performance Measures |
24 |
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Limitations of a Program-Specific Approach to Performance Measurement |
25 |
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Need to Strengthen State and Local Capacity for Data Collection and Analysis |
26 |
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Inadvisability of Using Performance Measures Alone for Resource Allocation Purposes |
26 |
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Phase II: Data and Information System Development to Support Performance Measurement |
27 |
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A Vision for a National Health Information Network |
27 |
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Critical Issues |
28 |
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Structure of the Report |
29 |
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References |
29 |
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2 Putting Performance Measurement in Context |
30 |
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Use of Performance Measurement in Accountability Systems |
30 |
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Performance-Based Accountability Systems |
31 |
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Operation of Performance-Based Systems |
33 |
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Applications of Performance Measurement |
37 |
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Examples of Performance Monitoring and Accountability Systems |
40 |
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Government Performance and Results Act |
41 |
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Use of Performance Measures in the Maternal and Child Health Services Block Grant Program |
42 |
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Reporting Requirements for the Temporary Assistance for Needy Families Program |
44 |
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State Developments in Performance-Based Budgeting |
45 |
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Health Care Performance Measurement in the Private Sector |
48 |
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Conclusions |
52 |
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References |
55 |
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3 Performance Measurement Considerations for Publicly funded Health Programs |
59 |
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Broad Array of Health-Related Services and Service Relationships |
60 |
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Measurement Considerations for Population-Based Health Services |
61 |
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Population Health Services |
61 |
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Monitoring Population Health Services |
62 |
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Monitoring the Infrastructure for Publicly Funded Health Programs |
64 |
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Some Performance Measurement Considerations Related to Program-Specific Matters |
66 |
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Environmental Health Programs |
66 |
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Mental Health Programs |
68 |
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Substance Abuse Programs |
71 |
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Process Guidelines as a Basis for Performance Measurement |
74 |
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Guidelines for Personal Health Services |
75 |
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Guidelines for Population-Based Health Services |
76 |
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Research Needs for Practice Guidelines and Performance Measurement |
76 |
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Conclusions |
78 |
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References |
79 |
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4 Data and Information Systems: Issues for Performance Measurement |
83 |
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Health Data Resources |
84 |
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Registries |
85 |
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Surveys |
86 |
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Patient Records and Related Clinical Encounter Data |
87 |
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Administrative Data |
89 |
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Claims Data |
90 |
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Linkage of Data Sets |
91 |
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Steps Toward Integration of Data Sets |
93 |
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Assuring the Quality of Data and Data Analysis |
95 |
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Random Variation and Bias |
96 |
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Data Management |
97 |
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Challenges in Data Analysis |
98 |
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Developing and Implementing Standards for Data and Data Systems |
103 |
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Standardization Activities |
103 |
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Balancing Standardization and Change |
108 |
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Enhancing Performance Measurement through Advances in Information Technology |
109 |
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Data Collection and Transmission Technologies |
109 |
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Data Management and Analysis |
110 |
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Computer-Based Patient Records |
111 |
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The Internet and the World Wide Web |
111 |
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Limits of Technology |
114 |
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Privacy, Confidentiality, and Security of Health Data |
114 |
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Investing in Health Data and Data Systems |
116 |
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Data and Information Systems |
117 |
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Technology |
119 |
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Training and Technical Assistance |
120 |
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Taking a Collaborative Approach to the Development of Health Data and Information Systems |
122 |
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Meeting the Needs of Many Data Users |
123 |
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Collaboration in the Design and Implementation of Data Systems |
125 |
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Conclusions |
126 |
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References |
127 |
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5 Strategies for Supporting Performance Measurement through a National Information Network |
132 |
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Conclusions Regarding Performance Partnership Agreements |
133 |
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A National Information Network for Health-Related Data |
134 |
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Essential Features of a Health Information Network to Serve Different Levels of Decision Making |
135 |
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Major Policy Actions Needed |
138 |
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National Collaboration |
138 |
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Integration of Data Systems |
143 |
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Technology Policy |
144 |
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Operational Principles |
145 |
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Involve a Broad Range of Public Agencies |
145 |
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Build on Existing Information Systems |
146 |
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Implementation Standards |
147 |
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Required Investment for an Information Network |
152 |
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Data Systems |
152 |
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Training and Technical Assistance |
154 |
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A National Research Agenda |
156 |
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Final Observations |
157 |
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References |
158 |