Improvements in cancer treatment, new technologies that enable early detection of cancer, and changing demographics—including the aging of the baby boomer population—have contributed to a growing number of cancer survivors in the United States. The number of people who are likely to live at least 5 years following a cancer diagnosis is expected to increase by 37 percent over the next decade, and approximately 40 percent of cancer survivors are living 10 years or more post diagnosis. In 2014, there were an estimated 14.5 million cancer survivors nationwide; by 2022, 18 million cancer survivors are projected.
In 2006, an Institute of Medicine report, Lost in Transition, made recommendations to improve the quality of care that cancer survivors receive, in recognition that this population is at ask risk for an array of long-term side effects and delayed-onset late effects of cancer and cancer treatment, as well as significant psychosocial and financial impacts of cancer diagnosis and treatment. Since then, coordinated efforts to recognize and address the unique needs of cancer survivors have increased, including efforts to improve the evidence base for cancer survivorship care, as well as efforts to identify best practices in the delivery of high-quality cancer survivorship care.
The National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a public workshop in July 2017 to examine progress in cancer survivorship care over the past decade and to consider potential actions to improve the planning, management, and delivery of cancer survivorship care. The workshop featured invited presentations and panel discussions on topics that included:
- An overview of the health risks and late effects experienced by cancer survivors.
- The current evidence base to improve the quality of life for cancer survivors, including the identification, prevention, and reduction of long-term toxicities and second malignancies associated with prior cancer treatment.
- Strategies for early integration of psychosocial support in survivorship care.
- Opportunities to overcome challenges in accessing health care and minimizing the financial burden for cancer survivors.
- Implementation models and emerging strategies for coordinated cancer survivorship care in primary and specialty care settings, including the use of survivorship care plans tailored to a patient’s diagnosis and life course.
- Changes in the landscape of cancer survivorship care over the past decade.
Planning Committee Members
Patricia Ganz (co-chair), UCLA Jonsson Comprehensive Cancer Center
Ronald Kline (co-chair), Centers for Medicare & Medicaid Services
Neeraj Arora, Patient Centered Outcomes Research Institute
Cathy Bradley, University of Colorado Cancer Center
R. Adams Dudley, University of California, San Francisco
Darci Graves, Centers for Medicare & Medicaid Services
Lee Krug, Bristol-Myers Squibb
Natasha Buchanan Lunsford, Centers for Disease Control and Prevention
Greta Massetti, Centers for Disease Control and Prevention
Mary S. McCabe, Independent Consultant
Shelley Fuld Nasso, National Coalition for Cancer Survivorship
Larissa Nekhlyudov, Brigham and Women's Hospital and Dana-Farber Cancer Institute
Julia Rowland, National Cancer Institute
Rebekkah Schear, LIVESTRONG Foundation
Richard Schilsky, American Society of Clinical Oncology
Wendy Woodward, The University of Texas MD Anderson Cancer Center
Confirmed Moderators, Speakers, and Panelists
Catherine Alfano, American Cancer Society
Barbara Andersen, The Ohio State University
Keith Argenbright, University of Texas Southwestern Medical Center
Neeraj Arora, Patient-Centered Outcomes Research Institute
Richard J. Baron, American Board of Internal Medicine
Edward Benz, Dana-Farber Cancer Institute
Cathy Bradley, University of Colorado Cancer Center
Jay Burton, Springfield Medical Associates
David Chambers, National Cancer Institute
"e-Patient Dave" deBronkart, Society for Participatory Medicine
Wendy Demark-Wahnefried, The University of Alabama at Birmingham Comprehensive Cancer Center
Regina Franco, Greenville Health System Cancer Institute
Martha Gaines, Center for Patient Partnerships and University of Wisconsin Law School
Patricia Ganz, UCLA Jonsson Comprehensive Cancer Center
Barbara Given, Michigan State University
Darci Graves, Centers for Medicare & Medicaid Services
Brandon Hayes-Lattin, Oregon Health and Science University
Barbara Hoffman, Rutgers Law School
Laurie Isenberg, National Coalition For Cancer Survivorship
Kim Hall Jackson, Survivor and Patient Advocate
Paul Jacobsen, National Cancer Institute
Rebecca Kirch, National Patient Advocate Foundation
Ronald Kline, Centers for Medicare & Medicaid Services
Deborah Mayer, The University of North Carolina Lineberger Comprehensive Cancer Center
Mary S. McCabe, Independent Consultant
Shelley Fuld Nasso, National Coalition for Cancer Survivorship
Larissa Nekhlyudov, Brigham and Women’s Hospital and Dana-Farber Cancer Institute
Kevin Oeffinger, Duke Cancer Institute
Mark O’Rourke, Greenville Health System Cancer Institute
Christopher Recklitis, Dana-Farber Cancer Institute and Harvard Medical School
Julia Rowland, National Cancer Institute
Susan Schneider, Duke University School of Nursing
Mary Scroggins, Pinkie Hugs, LLC and In My Sister’s Care
Lawrence Shulman, University of Pennsylvania and Commission on Cancer
Julie Silver, Harvard Medical School
Gregory Simon, Biden Cancer Initiative
Hedy Wald, Alpert Medical School of Brown University
Robin Yabroff, U.S. Department of Health and Human Services
To view videos of this workshop, please visit:
https://www.youtube.com/playlist?list=PLGTMA6QkejfgFoTxMYv6uLRtRwZY8hYf0