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Meaningful Outcome Measures in Adult Hearing Health Care

Recently completed

A committee-supported project or activity that has been completed and for which output dissemination has begun. Its committee has been disbanded and closeout procedures are underway.

Adult hearing health care lacks standard outcome measures that are related in meaningful ways to the individual’s perception of their functional abilities and the impact their hearing difficulties have on their quality of life. The committee will determine a core set of existing standard outcome measures, define the core outcome domains (including hearing, communication, and other domains) that should be measured, and develop strategies and a set of recommendations to guide the development of standardized and meaningful measures that are fit for use in different settings. The prepublication report is estimated to be released in April 2025.

Description

An ad hoc committee of the National Academies of Sciences, Engineering, and Medicine will examinethe state of the science in outcomes research for interventions in adult hearing healthcare (excluding surgically placed prosthetic devices), with an emphasis on measures that are meaningful to the individual and the clinician.The committee will determine a core set of existing standard outcome measures, define the core outcome domains (including hearing, communication, and other domains) that should be measured, and develop strategies and a set of recommendations to guide the development of standardized and meaningful measures that are fit for use in different settings.

Specifically, the committee will:

  • Identify and engage appropriate partners, including relevant federal agencies, the academic/professional community of researchers and clinicians, professional organizations, industry, and patient/consumer groups, to gain their perspectives as inputto committee deliberations.
  • Provide a brief contextual background describing the contribution of hearing to overall health and well-being, the etiology of hearing loss, the personal and societal costs of untreated hearing loss, the benefits of treatment for hearing loss, and disparities in treatment.
  • Broadly describe the various interventions (e.g., hearing aids, rehabilitative strategies or training, pharmaceutical or biological therapies, etc.).
  • Describe the outcome measures currently available to assess hearing function and communication in adults, available measures in outcome domains beyond communication (e.g., social connectivity, activity limitations, participation restrictions, economic productivity) that should be measured, and gaps where development of new outcome measures is urgently needed.
  • ldentify in which settings the metrics are most applicable (e.g., establishing efficacy in clinical trials, assessing patient response in clinical care and by type of intervention, conducting hearing health monitoring, assessing patient satisfaction).
  • Provide recommendations on the standardized use of existing outcome measuresfor hearing health, including hearing, communication, and other domains (“core set of measures”), andthe necessary qualities and strategies for adoption of new meaningful measures that could be implemented in the short term as well as longer timeframes with an eye toward large-scale adoption and standardization (e.g., national databases and repositories).

In the circumstance where robust evidence is lacking or absent, the committee is encouraged to make recommendations based on sound scientific reasoning in the context of the current healthcare environment.

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Committee Membership Roster Comments

There was a change in the Committee Membership with the resignation of Bryan R. Luce, effective 02/13/2024
On 08/28/2024, the biographical sketch was updated for the following committee member: Nicholas Reed
There was a change in the Committee Membership with the resignation of Erin R. Giovannetti, effective 07/08/2024

Sponsors

Centers for Disease Control and Prevention

Defense Health Agency

Department of Veterans Affairs

National Institute on Aging

National Institute on Deafness and Other Communication Disorders

Staff

Tracy Lustig

Lead

Tlustig@nas.edu

Abian Hailu

AHailu@nas.edu

Ella Morse

EMorse@nas.edu

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