Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research (2009)

Chapter: 4 HIPAA, the Privacy Rule, and Its Application to Health Research

Previous Chapter: 3 The Value, Importance, and Oversight of Health Research
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 153
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 154
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 155
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 156
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 157
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 158
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 159
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 160
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 161
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 162
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 163
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 164
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 165
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 166
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 167
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 168
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 169
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 170
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 171
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 172
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 173
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 174
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 175
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 176
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 177
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 178
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 179
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 180
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 181
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 182
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 183
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 184
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 185
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 186
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 187
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 188
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 189
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 190
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 191
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 192
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 193
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 194
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 195
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 196
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 197
Suggested Citation: "4 HIPAA, the Privacy Rule, and Its Application to Health Research." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
Page 198
Next Chapter: 5 Effect of the HIPAA Privacy Rule on Health Research
Subscribe to Emails from the National Academies
Stay up to date on activities, publications, and events by subscribing to email updates.