Information Sharing and Collaboration

APPLICATIONS TO INTEGRATED BIOSURVEILLANCE
WORKSHOP SUMMARY

Deepali M. Patel and Steve Olson, Rapporteurs

Planning Committee on Information-Sharing Models and
Guidelines for Collaboration: Applications to an Integrated One
Health Biosurveillance Strategy

A Workshop

Board on Health Sciences Policy

INSTITUTE OF MEDICINE
OF THE NATIONAL ACADEMES

THE NATIONAL ACADEMIES PRESS
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NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine.

This study was supported by Contract No. HSHQDC-08-C-00111 between the National Academy of Sciences and the Department of Homeland Security. Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the view of the organizations or agencies that provided support for this project.

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Suggested citation: IOM (Institute of Medicine). 2012. Information sharing and collaboration: Applications to integrated biosurveillance: Workshop summary. Washington, DC: The National Academies Press.

“Knowing is not enough; we must apply.
Willing is not enough; we must do.”

—Goethe

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OF THE NATIONAL ACADEMIES

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PLANNING COMMITTEE ON INFORMATION-SHARING MODELS AND GUIDELINES FOR COLLABORATION: APPLICATIONS TO AN INTEGRATED ONE HEALTH BIOSURVEILLANCE STRATEGY—A WORKSHOP¹

SCOTT A. MUGNO (Co-chair), Vice President, Safety and Maintenance, FedEx Ground, Moon Township, PA

WILLIAM F. RAUB (Co-chair), Retired, Senior Advisor to the Secretary, Department of Health and Human Services, Rockville, MD

JAMES W. BUEHLER, Director, Public Health Surveillance Program Office, Office of Surveillance, Epidemiology and Laboratory Services, Centers for Disease Control and Prevention, Atlanta, GA

JOSEPH KIELMAN, Chief Scientist, Infrastructure Protection and Disaster Management Division, and Program Manager, Office of University Programs, Department of Homeland Security Science and Technology Directorate, Washington, DC

RICHARD C. LARSON, Mitsui Professor of Engineering Systems, and Director, Center for Engineering Systems Fundamentals, Massachusetts Institute of Technology, Cambridge, MA

MARK E. TEACHMAN, Director, Interagency Coordination, National Center for Animal Health Emergency Management, Department of Agriculture, Riverdale, MD

MICHAEL M. WAGNER, Associate Professor of Biomedical Informatics and Intelligent Systems, Department of Biomedical Informatics, University of Pittsburgh, Pittsburgh, PA

Study Staff

CATHARYN T. LIVERMAN, Senior Program Officer

DEEPALI M. PATEL, Program Officer

LARA STRAWBRIDGE, Research Associate

JUDY ESTEP, Program Associate

PAMELLA ATAYI, Senior Program Assistant

MEGAN PEREZ, Senior Program Assistant

VICTORIA BOWMAN, Financial Associate

_______________________

¹Institute of Medicine planning committees are solely responsible for organizing the workshop, identifying topics, and choosing speakers. The responsibility for the published workshop summary rests with the workshop rapporteurs and the institution.

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Reviewers

This report has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the National Research Council’s Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confidential to protect the integrity of the process. We wish to thank the following individuals for their review of this report:

James Buehler, Director, Public Health Surveillance Program Office, Centers for Disease Control and Prevention, Department of Health and Human Services

Joseph Gibson, Director of Epidemiology, The Marion County Public Health Department

Amy Kircher, Associate Director, National Center for Food Protection and Defense, University of Minnesota

Scott A. Mugno, Vice President, Safety and Maintenance, FedEx Ground

Although the reviewers listed above have provided many constructive comments and suggestions, they were not asked to endorse the final draft of the report before its release. The review of this report was overseen by Claire V. Broome, Adjunct Professor, Division of Global Health, Rollins School of Public Health, Emory University. Appointed by the Institute of Medicine, she was responsible for making certain that an independent examination of this report was carried out in accordance

with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this report rests entirely with the authors and the institution.

Contents

ACRONYMS

1   INTRODUCTION AND OVERVIEW

Status of National Biosurveillance Integration

Overview of the Workshop

Organization of This Summary

Acknowledgments

2   EXPERIENCES OF FEDERAL AGENCIES

Responding to Epidemics at the Centers for Disease Control and Prevention

Coordinating Animal Health Actions Across the Human-Animal Interface

Integrating Complex National Missions: Lessons from the National Counterterrorism Center’s Directorate of Strategic Operational Planning

Viewpoint of the National Security Staff

3   STATE AND LOCAL EXPERIENCES

Biological Preparedness and Response in New York City

Seeking Access to Surveillance Data in Marion County, Indiana

Information Sharing for Biosurveillance in North Carolina

4   OUTSIDE PERSPECTIVES

Keeping Pace with Data Collections in a Rapidly Changing Environment

Information Sharing: The Israeli Experience

5   DISCUSSION OF A SCENARIO

First Move

Second Move

Third Move

Fourth Move

Fifth Move

6   CONCEPT OF OPERATIONS

A Focus on Performance Improvement

Operational and Organizational Impacts

Operational Realities

A Regional Solution

Discussion

REFERENCES

APPENDIXES

A   Workshop Agenda

B   Speaker Biographies

C   Planning Committee Biographies

D   Standing Committee on Health Threats Resilience

Acronyms