Principles and Obstacles for Sharing Data from Environmental Health Research: Workshop Summary
2016

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On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects—making them both transparent and accessible to others—raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.

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114 pages · 6 x 9 · paperback
ISBN Paperback: 0-309-37085-X
ISBN Ebook: 0-309-37086-8
DOI: https://doi.org/10.17226/21703

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National Academies of Sciences, Engineering, and Medicine. 2016. Principles and Obstacles for Sharing Data from Environmental Health Research: Workshop Summary. Washington, DC: The National Academies Press.

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Front Matter i-xii
1 Introduction 1-4
2 Current Approaches and Weaknesses of Those Approaches 5-28
3 The Benefits of Data Sharing 29-38
4 Issues and Challenges Associated with Data Sharing 39-68
5 Possible Ways Forward 69-82
Appendix A: Agenda 83-88
Appendix B: Speaker Biographical Sketches 89-102

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Principles and Obstacles for Sharing Data from Environmental Health Research: Workshop Summary (2016)

Chapter: Front Matter

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Principles and Obstacles for Sharing Data from Environmental Health Research: Workshop Summary (2016)

Chapter: Front Matter