The committee reviewed a range of approaches that health care sector stakeholders have used to improve social care in health care delivery settings. These approaches are likely to face implementation barriers. Therefore, this chapter discusses the implementation challenges associated with social risk documentation and interventions specific to health care delivery settings (awareness, adjustment, and assistance strategies). Though the committee recognizes the gaps in efficacy and effectiveness evidence about such strategies, it also recognizes that social care integration’s impact—and the ability to test its impact—will be closely linked to the effectiveness of its implementation. The committee, therefore, drew on the peer-reviewed and gray literature and on expert testimony to identify potential challenges to health care delivery-based activities to identify and intervene on social risk factors.
This chapter’s focus is on implementation barriers associated with awareness, adjustment, and assistance activities that can support social care integration. The committee does not address challenges to implementing alignment or advocacy approaches, but instead focuses this chapter on the challenges likely to be faced in implementing within-clinic activities, as these usually must be accomplished before alignment or advocacy can be undertaken. Challenges in alignment or advocacy approaches are also likely.
This overview is not intended to discourage health care systems from implementing social care programs, but rather to facilitate such integration by describing potential implementation pitfalls and highlighting strategies that have been used in some settings to avoid or overcome
them. Tables throughout this chapter offer potential strategies to address these key implementation challenges. These strategies are described in greater detail in the section on Implementation Strategies to Overcome Challenges. Examples of health care providers seeking to overcome implementation barriers associated with social care integration can be found in many of the references cited here, including Adams et al. (2017), Burkhardt et al. (2012), Gold et al. (2018), Hamilton et al. (2013), Joshi et al. (2018), Knowles et al. (2018), and LaForge et al. (2018).
Before social care can be integrated into health care settings, the challenges to initiating such integration must be addressed. These challenges may include, for example, obtaining leadership support and staff buy-in, including new voices from those with expertise in social care alongside traditional health care professionals, and resolving logistical and operational issues.
Health system leadership must buy in to social care integration and be willing to both innovate and prioritize social care integration (Boyce, 2014; Institute for Alternative Futures, 2012). Leadership support may be affected by a number of factors, including system-level challenges, such as limited resources in the face of rising costs of delivering care, regulatory and reporting requirements, and the need to adapt operations and provide ongoing training.
Providers and staff may be concerned that social care integration will involve additional tasks that will compete with limited resources (LaForge et al., 2018; Tong et al., 2018). As evidence to support the integration of social care into health care is nascent, providers may believe that integrating social care into health care may not be impactful enough to justify investing in such integration or may be hesitant to take on unproven approaches.
Support for initiating social care integration may be affected by the organizational culture among staff and leadership as it relates to social care in health care. Some staff may not consider addressing social needs to be part of their job or may think that social needs cannot be addressed from health care settings or may doubt that addressing these needs helps patients (Andermann, 2018; Tong et al., 2018).
Logistical challenges can also take substantial resources and time to address (Institute for Alternative Futures, 2012). Some of these challenges include
Workflow, staffing, and technological challenges—and the methods for addressing them—are discussed in greater detail later in this chapter. Table 6-1 provides a summary of common implementation barriers and potential strategies for initiating social care integration. Establishing payments for social care integration is covered in Chapter 5.
Various potential challenges to documenting and responding to social needs are described here. Identifying social needs is a critical first step to the integration of these needs into health care. Some organizations may want to begin by simply documenting social needs; others will also want to develop systems to respond to these needs. The challenges to documenting and responding to these needs may differ across organizations
TABLE 6-1
Potential Strategies for Initiating Social Care Integration
| Phase | Potential Challenges | Strategies to Address These Challenges |
|---|---|---|
| Initiating Social Care Integration | Leadership support | Obtain formal commitment from leaders |
| Provider and staff buy-in | Identify and prepare champions | |
| Organizational culture | Engage staff in planning | |
| Logistics | Develop clear protocols | |
| Goals | Assess local needs and resources, identify barriers | |
| Strategy | Develop a formal implementation plan | |
| Structure | Revise professional roles and workflows | |
| Infrastructure | Adapt payments structures, technology, staffing, or partnerships | |
and health care settings. See Table 6-2 for a summary of challenges to documenting and identifying social needs and potential strategies to address these challenges.
The challenges to identifying and documenting patients’ social needs may include identifying a target population, selecting screening tools, designing workflows, creating staffing plans, providing appropriate training, obtaining the needed technological tools, and making rollout plans. The questions that need to be answered include
TABLE 6-2
Potential Strategies for Documenting and Identifying Social Needs
| Phase | Potential Challenges | Strategies to Address These Challenges | |
|---|---|---|---|
| Documenting Social Needs | Logistics | Which patients | Learn from early adopters, assess local needs and resources, obtain and use patient feedback, use an implementation advisor |
| Which tool | Assess local needs and resources, obtain and use patient feedback | ||
| Which workflow | Revise professional roles and workflows, conduct small tests of change | ||
| When | Revise professional roles and workflows, purposely reexamine the implementation | ||
| How to administer | Revise professional roles and workflows, use an implementation advisor | ||
| Who will administer | Revise professional roles and workflows, create new clinical teams | ||
| Planning for roll out | Conduct small tests of change, purposely reexamine the implementation | ||
| Staffing | Revise professional roles, conduct ongoing training | ||
| Use of technology | Promote adaptability, use quality monitoring | ||
| Identifying Social Needs | Provider and staff | Perceived lack of resources | Alter incentives |
| Do not see the need | Share data with clinicians | ||
| May not feel comfortable | Engage patients to increase demand | ||
| Overburdened | Revise professional roles and workflows, create new clinical teams | ||
| May not want to change | Identify and prepare clinical champions | ||
| Patient | Not receptive | Involve patients in planning | |
| Unprepared on embarrassed | Prepare patients to be active participants | ||
| Unmotivated to take action | Explore patient barriers to action, prepare patients to be active participants | ||
| Screening type | Obtain and use patient feedback | ||
| Clinical relationship | Develop patient-centered language to discuss screening efforts | ||
tools to meet local needs, as is often desired; furthermore, such adaptation can create barriers to scale-up, as discussed below (Gold et al., 2017; LaForge et al., 2018). Practices choosing a screening tool might consider how the collected data will be used, which social needs can be addressed with local resources, which screening tool fits the clinic’s workflows, and the needed granularity of social needs data (e.g., specific financial needs rather than general financial strain) (Gold et al., 2017, 2018; Jensen et al., 2015; Thomas-Henkel and Schulman, 2017).
given EHR access, and supervised; furthermore, these professions have high burnout rates (Bonney and Chang, 2018; Gunderson et al., 2018; Joshi et al., 2018; Pescheny et al., 2018; Rogers et al., 2018). Staff with time to conduct social needs screening may not be those best suited for the task (Thomas-Henkel and Schulman, 2017). Volunteers may be able to conduct social needs screening, but they may not be able to maintain regular schedules, turnover may necessitate finding and training replacements, volunteers may need access to data entry tools to ensure consistent record keeping, and patients may be uncomfortable with volunteers (Pescheny et al., 2018).
When implementing social needs screening, the challenges from staff may include discomfort with such screening in general or when no referral is feasible, doubt about why such screening is needed, a lack of time to conduct screening, a lack of training, and difficulty in overcoming previous habits.
Some staff may not think social needs screening is needed or useful (Colvin et al., 2016; Tong et al., 2018) or that it should be addressed by
health care staff (Adams et al., 2017; Andermann, 2018; Gold et al., 2017; Nelson et al., 2015; Palacio et al., 2018; Thomas et al., 2018; Tong et al., 2018). Some may think that they know the patient’s situation, question the need for standardized screening, prefer an individualized approach, feel that there is inadequate evidence of the impact of managing social care to justify the effort involved in such integration, or think that patients will not seek out social care resources even if referred (Nelson et al., 2015; Pescheny et al., 2018; Thomas et al., 2018). Some may struggle to change practice habits to include social needs screening (Andermann, 2018; Pescheny et al., 2018), and some may not screen universally, sometimes acting on biases and assumptions about whether a given patient should be screened. Some may lack the EHR expertise needed for screening documentation or find the EHR documentation tools difficult to use or inaccessible to certain staff (Gold et al., 2017). Some may feel too overworked to add social needs screening to their workload, and they may not want to add time to the visit, especially if social needs screening seems incongruous with the visit’s primary purpose (Andermann, 2018; Joshi et al., 2018; Knowles et al., 2018; Palacio et al., 2018; Ridgeway et al., 2013; Thomas et al., 2018; Tong et al., 2018).
Staff may not want to screen for social needs if there are not resources to which they can refer patients to address those needs (Andermann, 2018; Olayiwola et al., 2018; Palacio et al., 2018; Pescheny et al., 2018; Purnell et al., 2018); this situation can cause burnout (Olayiwola et al., 2018; Tong et al., 2018). Staff may feel uncomfortable asking about social needs, overwhelmed by the need they encounter (Andermann, 2018), or apprehensive about their ability to address needs (Palacio et al., 2018; Pescheny et al., 2018; Purnell et al., 2018; Ridgeway et al., 2013). In addition, staff may not want to offend or disturb patients by asking about social needs (Beck et al., 2012; Gold et al., 2017; Hewner et al., 2017; Meredith et al., 2017; Saberi et al., 2017; Thomas-Henkel and Schulman, 2017) or make patients feel stigmatized (although anecdotal evidence suggests that this concern is often unwarranted) (Adams et al., 2017; Knowles et al., 2018). Finally, some staff may experience social needs themselves.1
Patients may or may not be receptive to social needs screening (Adams et al., 2017; Garg et al., 2007; Jaganath et al., 2018; Katz et al., 2008; Pinto et al., 2016; Quinn et al., 2018; Saxe-Custack et al., 2018). They may feel unprepared to discuss their needs (Katz et al., 2008), embarrassed to discuss their finances (Nguyen et al., 2018; Thomas et al., 2018), unmotivated to
___________________
1 Personal communication, Robyn Gold, Rush University, April 18, 2019.
act on their needs, concerned about the legal ramifications of accessing social services (e.g., effect on immigration status), or generally concerned about stigmatization (Pescheny et al., 2018). However, staff should not assume that patients will resist such screening. Patient discomfort may depend on the specific needs (Thomas et al., 2018; Vest et al., 2017) or on their trust of clinic staff (Knowles et al., 2018). Some patients may prefer to disclose sensitive information to providers and staff with whom they share a racial/ethnic, social class, or cultural background, or those who at least demonstrate cultural humility and knowledge of structural determinants of health; this strengthens the argument for a more diverse and culturally competent workforce (Cooper et al., 2003; Murphy et al., 2018).
Some challenges to responding to social needs are similar to those for social needs documentation, but some are unique, such as identifying referral resources, creating and maintaining partnerships with social service providers, and establishing needed data exchanges. Tables 6-3, 6-4, and 6-5 list common challenges to reviewing and responding to social needs and potential strategies to address these challenges.
To successfully integrate social care into health care, processes for reviewing, analyzing, and acting on patient-reported data and communicating results across care team members must be developed and tested
TABLE 6-3
Potential Strategies for Reviewing and Responding to Social Needs
| Phase | Potential Challenges | Strategies to Address These Challenges |
|---|---|---|
| Reviewing Social Needs | Identify a process | Conduct small tests of change, promote adaptability |
| Identify workflow | Engage staff in planning, revise professional role and workflows | |
| Lack incentives | Alter incentives, mandate change | |
| Retrieving and reviewing results | Conduct small tests of change | |
| Which needs require a response | Involve patients in planning, learn from early adopters, assess local needs and resources | |
| Data easy to find and interpret | Conduct small tests of change, use data experts | |
TABLE 6-4
Potential Strategies for Internal Referrals
| Phase | Potential Challenges | Strategies to Address These Challenges | |
|---|---|---|---|
| Internal Referrals | Logistics | Staffing and workflow | Revise professional roles and workflows, create new clinical teams, ensure adequate staffing |
| Technology/clear documentation | Modify record systems, conduct ongoing training, provide ongoing consultation | ||
| Staff | Role confusion | Revise professional roles, conduct ongoing training | |
| Lack of buy-in/incentives | Identify and prepare champions, modify incentives, mandate change | ||
| Patient | Patients may not accept support | Involve patients in planning, address patient provider trust | |
| Patient desire for support not established | Involve patients in planning | ||
(Boyce et al., 2014; O’Gurek and Henke, 2018; Pescheny et al., 2018). Effective workflows and staffing for reviewing social needs data must be identified (Andermann, 2018), with little evidence on best practices. If social care referrals are not planned or feasible, the staff may lack incentives to review the documented needs (Gold et al., 2018).
Screening results must be easy to retrieve and review in the EHR (Gold et al., 2018; Jensen et al., 2015; Katz et al., 2008; Vest et al., 2017), but such functionality is not yet in all EHR systems. Care teams must know how to locate these data in the EHR, and the appropriate staff must have access to those data; they also may want guidance on which needs require a response and on the optimal timeframe for that response (Gold et al., 2018; Katz et al., 2008). If staff do not know how to find, interpret, and act on documented social needs data, their review of such data may be limited (Hewner et al., 2017).
Broadly speaking, practices may respond to patients’ social needs by adapting care plans to account for these needs or by referring patients “internally” to a clinic social worker or care navigator, to resources provided by the clinic (e.g., food, transportation, or legal services), or externally to local social service agencies. The practice must decide which approach or
TABLE 6-5
Potential Strategies for External Referrals
| Phase | Potential Challenges | Strategies to Address These Challenges | |
|---|---|---|---|
| External Referrals | Logistics | Workflow—no appointment made | Adapt workflows, conduct small tests of change |
| Staff roles | Clearly define team roles | ||
| Knowledge of resources | Conduct assessment of local needs and resources | ||
| Staff | Knowledge of resources | Conduct assessment of local needs and resources, develop and distribute educational materials | |
| Patient | Already have access | Conduct assessment of local needs and resource, involve patients in planning | |
| Negative past experiences | Obtain and use patient feedback | ||
| Not confident in navigating the system | Prepare patients to be active participants, develop and distribute educational materials | ||
| Do not believe CBOs can help | Obtain and use patient feedback, develop and distribute educational materials | ||
| May have already taken action | Obtain and use patient feedback | ||
| May only be interested in a medical solution | Obtain and use patient feedback, develop and distribute educational materials | ||
| Fear—stigma, loss of benefit, deportation | Involve patients in planning, obtain and use patient feedback | ||
| Lack transportation | Involve patients in planning, link patients to existing resources, build organizational networks | ||
| Lack time | Revise workflows, involve patients in planning | ||
| Patients lost to follow up | Involve patients in planning, prepare patients to be active participants | ||
NOTE: CBO = community-based organization.
| Phase | Potential Challenges | Strategies to Address These Challenges | |
|---|---|---|---|
| External Referrals | Technology | Closing the loop | Use data experts, change record systems, conduct small tests of change |
| Data privacy | Use data experts, change record systems | ||
| Lack of CBO infrastructure | Provide local technical assistance, capture and share local knowledge | ||
| Other barriers to data exchange | Use data experts | ||
| Cost for social service lists | Refine or innovate billing practices | ||
| Clinic staff unaware of technology for referrals | Conduct educational meetings, provide ongoing consultation | ||
| Staff may not be able to access tools | Provide ongoing consultation | ||
| May lack mechanism for noting referral in patient record | Use data experts, provide ongoing consultation | ||
| Partnership | Establishing partnerships | Build coalitions, establish formal agreements | |
| Barriers to creating and maintaining partnerships | Identify and prepare community champions | ||
| CBO capacity | Adapt payments structures, technology, staffing, or partnerships | ||
| Lack of partnership experience | Offer training to CBO leadership | ||
| Training and implementation support needed | Conduct educational meetings, provide ongoing consultation | ||
| Effective cross-sector workflow | Conduct small tests of change, promote adaptability | ||
| Reimbursement challenges | Refine or innovate billing practices | ||
| CBO financial instability | Partner to seek alternative sources of funding | ||
| Lack of methods for demonstrating partnership impacts | Consult with data and evaluation experts | ||
approaches works best for its setting, considering priorities, initiatives, and payment structures; staff resources; available community resources; existing partnerships; and the known areas of need in the community.
Health care organizations may also use social needs data to inform resource allocation, community or policy advocacy, risk stratification, or partnership building. For example, an organization could justify its need for resources to payers and policy makers by presenting collected social needs data. It could also use these data in partnership with insurers to inform the design, implementation, and evaluation of health insurer–directed social service programs, such as medically tailored meal delivery, transportation, and housing. Social needs data could be used to argue for hiring care managers or to offer group visits, special classes, transportation services, income supplements for food or housing, or other services. These data also could be used to help community-based organizations (CBOs) co-develop programs or coordinate referrals. However, staff may not understand these uses of social needs data.
Adapting care plans While some of the ways that care plans might be adapted to address reported social needs are fairly intuitive (e.g., a patient without stable housing should not be prescribed a refrigerated medication), little evidence yet exists to guide such adaptation. Decision support related to social needs might help, but evidence is lacking upon which such decision support could be built.
inequalities. Practices may not understand how their partnership affects the CBO or the CBO’s ability to engage as desired. Both parties may need training and implementation support to adopt this change (Amarasingham et al., 2018; Kunkel et al., 2018; Thomas-Henkel and Schulman, 2017). Effective cross-sector workflows are hard to establish (Amarasingham et al., 2018).
funding may not be renewed (American Society on Aging, 2019). Finally, even if they are willing to send data to medical practices regarding services provided to patients, CBOs may not have the technology needed for such data exchange.
Challenges in scaling up social care integration It can be useful to start social care integration in a single practice and then expand; however, future scaling much be considered from the start. Adaptations that facilitate integration in a single setting, such as a local adaptation of screening tools, can lead to future barriers to scaling up. It is highly preferable that the same screening and referral mechanism be used for all systems involved in the scale-up. If CBO referral making is to be expanded, the capacity of CBOs in all affected regions must be considered; a network may need to be created by hiring one of the resource locator businesses that support such development.
Dissemination and implementation science defines “implementation strategies” as diverse approaches to supporting practice change in some settings and situations (Proctor et al., 2013). Some strategies that might support social care integration are discussed here. Strategies for addressing challenges to social care integration will vary by context. Most of the strategies listed below have effectively supported organizational changes in some practices, but almost none has been assessed specifically for supporting social care integration (Hamilton et al., 2013; O’Gurek and Henke, 2018).
Whether health care hopes to integrate with social care by documenting a single need or by screening for and acting on many needs, the efforts will be enhanced by communicating a clear and strong commitment from leadership to making this change, creating a formal implementation plan, and putting the needed infrastructure in place before implementation begins. This effort may involve information technology tools for social care documentation and review (Burkhardt et al., 2012; Craig and Calleja Lorenzo, 2014; Gold et al., 2017, 2018; Hewner et al., 2017; Thomas et al., 2018), and some EHR vendors now provide such tools. Medical practices should ensure access to interpreter services or translate the clinic’s social needs screening tool, as appropriate, for the practice’s patient population (Purnell et al., 2018). Practices should also ensure that their staffing is adequate to support intended activities and that funding structures to
support integration are in place. The practices will need to decide which patients are targeted for social needs screening, which social needs screening tool will be used, which codes will be used to document social needs, and what actions will be taken to address those needs. Delivery system redesign and practice change efforts should use relationship-centered care principles in setting goals and priorities for social care integration (Beach et al., 2006). As discussed above, preparations for social care integration must consider how such efforts will be scaled up.
Many strategies may help address provider and staff integration challenges, including
logistics (Andermann, 2018; Gold et al., 2017, 2018; Joshi et al., 2018).
Several strategies have been developed to inform patients about social needs screening and its potential benefits and to increase the likelihood that they will be receptive to being screened. These include
The strategies described below are aimed at improving clinic workflow and processes:
improvement techniques, such as plan-do-study-act cycles, to test and improve social needs processes and workflows. This approach in screening has been effective at supporting the adoption of social determinants into clinic workflows and health processes (Burkhardt et al., 2012; Pescheny et al., 2018).
Strategies that may help integration challenges experienced by CBOs are listed below.
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