Board on Health Sciences Policy

Meeting

Meeting to Discuss Opportunities to Collaborate and Coordinate on Federal Actions to Manage Infodemics and Support Effective Health Communication in Public Health Emergencies

September 11, 2023

10:00 AM - 4:00 PM (ET)

Past

About

This virtual meeting will bring together key stakeholders across government agencies to discuss and chart a pathway forward for federal collaboration, coordination, and knowledge sharing among agencies to effectively serve the public’s health information needs before and during a public health emergency (PHE) or other public health crisis, building upon the themes identified across the National Academies workshops, Navigating Infodemics and Building Trust during Public Health Emergencies and Effective Health Communication in the Current Information Environment and the Role of the Federal Government. Please email Lisa Brown at lbrown@nas.edu for additional information.

Organizing Project

The Public Health Infodemic and Trust in Public Health as a National Security Threat: A Workshop

Contact

Matthew Masiello

(202) 334-2133
mmasiello@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Toward Sequencing and Mapping of RNA Modifications: Committee Meeting 10

September 6, 2023

1:00 PM - 3:00 PM (ET)

Past

About

This is the tenth committee meeting of a consensus study tasked with conducting a study on direct sequencing of modifications of RNA (referred to as epitranscriptome) from humans and model organisms.

This meeting will be held over Zoom.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Susan Baserga, Brenda Bass, Jeffrey Baker, Juan Alfonzo, Taekjip Ha, Lydia Contreras, Nicholas Adams, Mary Majumder, Nicole Martinez, Patrick Limbach, Tao Pan, Kate Meyer, Keith Nykamp

The following topics were discussed in the closed sessions:

During this closed session, the committee discussed conclusions and recommendations in the consensus study report.

Date of posting of Closed Session Summary:

September 06, 2023

Organizing Project

Toward Sequencing and Mapping of RNA Modifications

Contact

Trisha Tucholski

(202) 334-3396
ttucholski@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Closed

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop #3 Reflection

September 1, 2023

4:00 PM - 4:30 PM (ET)

Past

About

This meeting reflected on information gathered during Public Workshop 3.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Suma Babu
John Dunlop
Jerome E. Kurent
Rita Sattler
Joel Shamaskin
Mindy Uhrlaub

The following topics were discussed in the closed sessions:

Public Workshop 3

Date of posting of Closed Session Summary:

September 06, 2023

Organizing Project

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life

Contact

Rebecca English

(202) 334-2582
renglish@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop #2 Reflection

August 23, 2023

3:10 PM - 4:10 PM (ET)

Past

About

This meeting reflected on information gathered during Public Workshop 2.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Alan Leshner (chair)
Ileana Howard
Jerome E. Kurent
Won Young Lee
Harold L. Paz
Tonya Roberts
Rita Sattler
Joel Shamaskin
Joshua M. Sharfstein

The following topics were discussed in the closed sessions:

Public Workshop 2

Date of posting of Closed Session Summary:

August 25, 2023

Organizing Project

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life

Contact

Rebecca English

(202) 334-2582
renglish@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop Series #2

August 23, 2023

12:00 PM - 3:00 PM (ET)

Past

Discussion

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Materials

About

A National Academies ad hoc committee, “Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life,” will host a virtual public workshop series on August 23, 2023, and will allow people living with ALS, caregivers, and individuals at genetic risk of developing ALS the chance to engage with the committee on various topics related to their quality of life, health, and well-being. This will be the second workshop session in the series.

Additional Information

Is it a Closed Session event?

Not Closed

Organizing Project

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life

Contact

Rebecca English

(202) 334-2582
renglish@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Creating a Framework for Emerging Science, Technology, and Innovation in Health and Medicine: Report Release Webinar

August 22, 2023

11:00 AM - 12:00 PM (ET)

Past

About

This public release webinar, held on Tuesday, August 22, presented findings and recommendations from the report Toward Equitable Innovation in Health and Medicine: A Framework.

The report describes a governance framework for decisions throughout the life cycle of innovation in health and medicine. It provides recommendations to advance equitable innovation and support an ecosystem that is more responsive to the needs of a broader range of individuals and is better able to recognize and address inequities as they arise.

Additional Information

Is it a Closed Session event?

Not Closed

Organizing Project

Creating a Framework for Emerging Science, Technology, and Innovation in Health and Medicine

Contact

Michael Berrios

MBerrios@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop #1 Reflection

August 10, 2023

3:10 PM - 4:10 PM (ET)

Past

About

This meeting reflected on information gathered during Public Workshop 1.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Suma Babu
Ileana Howard
Jerome E. Kurent
Won Young Lee
Joel Shamaskin
Joshua M. Sharfstein
Harold L. Paz

The following topics were discussed in the closed sessions:

Workshop 1

Date of posting of Closed Session Summary:

August 24, 2023

Organizing Project

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life

Contact

Rebecca English

(202) 334-2582
renglish@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Toward Sequencing and Mapping of RNA Modifications: Writing Meeting

August 3 - 4, 2023

Past

About

During this closed committee meeting, committee members will discuss writing strategies for the consensus study. This meeting will take place in a hybrid setting.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Brenda L. Bass, Taekjip Ha, Nicholas Morgan Adams, Juan D. Alfonzo, Jeffrey C. Baker, Susan Baserga, Lydia Maria Contreras, Markus Hafner, Sarath Chandra Janga, Patrick Alan Limbach, Mary Anderlik Majumder, Nicole M. Martinez, Kate D. Meyer, Keith Robert Nykamp, Tao Pan

The following topics were discussed in the closed sessions:

During this meeting, committee members discussed writing strategies for the upcoming consensus report, to be released in early 2024.

Date of posting of Closed Session Summary:

February 06, 2024

Organizing Project

Toward Sequencing and Mapping of RNA Modifications

Contact

Steven Moss

(202) 334-3032
smoss@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting

Toward Sequencing and Mapping of RNA Modifications: Committee Briefing

August 3, 2023

9:00 AM - 9:30 AM (ET)

Past

About

During this session, the committee will receive a briefing from Dr. Pamela Marino on her involvement in the NIH Common Fund's Glycoscience Program. A recording of this session will be posted after the session's conclusion. Please email SMoss@nas.edu with any questions.

Additional Information

Is it a Closed Session event?

Not Closed

Organizing Project

Toward Sequencing and Mapping of RNA Modifications

Contact

Steven Moss

(202) 334-3032
smoss@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Closed

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life- Meeting #3

August 1 - 2, 2023

Past

About

This is the third meeting of the committee and will be conducted virtually. The meeting will be closed and will not include a public session.

Please note the committee will be hosting a public virtual workshop series that will be held on August 10, August 23, and September 1, 2023, which will include additional opportunities for public participation. And, written comments can always be sent to the committee at ALSstudy@nas.edu.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

• Alan I. Leshner (chair)
• Suma Babu
• Chelsey R. Carter
• Maceo Carter
• George Demiris
• John Dunlop
• Eva L. Feldman
• Holly Fernandez Lynch
• Ileana Howard
• Jerome E. Kurent
• Won Young Lee
• Harold L. Paz
• Tonya Roberts
• Rita Sattler
• Joel Shamaskin
• Anantha Shekhar
• Joshua M. Sharfstein
• Mindy Uhrlaub

The following topics were discussed in the closed sessions:

This meeting included discussion of equity in ALS diagnosis and care, the committee's public engagement plans, and discussion of potential report topics.

The following materials (written documents) were made available to the committee in the closed sessions:

• Briefing Book

Date of posting of Closed Session Summary:

August 07, 2023

Organizing Project

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life

Contact

Rebecca English

(202) 334-2582
renglish@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Toward Sequencing and Mapping of RNA Modifications: Industry Advances in Mass Spectrometry and Separations Technologies for RNA Modification Analysis (Waters, Bruker, Agilent)

July 13, 2023

12:00 PM - 1:30 PM (ET)

Past

About

This information session will bring together experts from the industry to discuss advances in mass spectrometry and separation technologies for RNA modification analysis. The goals of this meeting are to:

Understand the current capabilities and limitations of RNA separations and MS-based technologies that are commercially available for the characterization of RNA modifications and direct sequencing of RNA.
Highlight ongoing or planned research and development activities by companies working in this space and the drivers of innovation.

Please contact Trisha Tucholski (ttucholski@nas.edu) with your interest in attending.

WATCH THE VIDEO RECORDING

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

TJ Ha, Brenda Bass, Markus Hafner, Pat Limbach, Susan Baserga, Kate Meyer

The following topics were discussed in the closed sessions:

During this closed session discussed advances in mass spectrometry and separation technologies for RNA modification analysis with industry experts from Waters, Bruker, and Agilent.

Date of posting of Closed Session Summary:

July 13, 2023

Organizing Project

Toward Sequencing and Mapping of RNA Modifications

Contact

Trisha Tucholski

(202) 334-3396
ttucholski@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Closed

Developing a Framework to Address Legal, Ethical, Regulatory, and Policy Issues for Research Specific to Pregnant and Lactating Persons Meeting #4

July 13 - 14, 2023

Past

About

On July 13-14th, the Committee on Developing a Framework to Address Legal, Ethical, Regulatory, and Policy Issues for Research Specific to Pregnant and Lactating Persons held their fourth committee meeting.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Margaret Foster Riley, Ifeyinwa Asiodu, Paul Beninger, Alexander M. Capron, Patricia M. Danzon, Ahizechukwu Eke, Leslie Meltzer Henry, Patricia A. King, Bruce Kuhlik, Anna C. Mastroianni, JoNell Efantis Potter, Enrique Schisterman, Brownsyne Tucker Edmonds

The following topics were discussed in the closed sessions:

Members of the Committee on Developing Framework to Address Legal, Ethical, Regulatory, and Policy Issues for Research Specific to Pregnant and Lactating Persons held a closed session meeting on July 13 and 14. On the first day, committee members deliberated on the report structure and considered recommendations. On the second day, committee members continued their discussion on recommendations and relevant materials for the report. The committee also received a briefing from National Academies staff on communications strategies.

The following materials (written documents) were made available to the committee in the closed sessions:

- Agenda
- Briefing Book

Date of posting of Closed Session Summary:

July 19, 2023

Organizing Project

Developing a Framework to Address Legal, Ethical, Regulatory, and Policy Issues for Research Specific to Pregnant and Lactating Persons

Contact

Study Staff

PRGLACstudy@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Toward Sequencing and Mapping of RNA Modifications: Industry Advances in Mass Spectrometry and Separations Technologies for RNA Modification Analysis (Thermo Fisher)

July 10, 2023

2:00 PM - 3:00 PM (ET)

Past

About

This information session will bring together experts from Thermo Fisher to discuss advances in mass spectrometry and separation technologies for RNA modification analysis. The goals of this meeting are to:

Understand the current capabilities and limitations of RNA separations and MS-based technologies that are commercially available for the characterization of RNA modifications and direct sequencing of RNA.
Highlight ongoing or planned research and development activities by companies working in this space and the drivers of innovation.

Please contact Trisha Tucholski (ttucholski@nas.edu) with your interest in attending.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Nick Adams, Susan Baserga, Brenda Bass, Markus Hafner, Jeffrey Baker, Juan Alfonzo, Patrick Limbach, Taekjip Ha, Mary Majumder

The following topics were discussed in the closed sessions:

During this session, the committee discussed recent advances in mass spectrometry and separation technologies for RNA modification analysis with industry professionals from Thermo Fisher.

Organizing Project

Toward Sequencing and Mapping of RNA Modifications

Contact

Trisha Tucholski

(202) 334-3396
ttucholski@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

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My Academies

Board on Health Sciences Policy

Meeting to Discuss Opportunities to Collaborate and Coordinate on Federal Actions to Manage Infodemics and Support Effective Health Communication in Public Health Emergencies

Toward Sequencing and Mapping of RNA Modifications: Committee Meeting 10

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop #3 Reflection

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop Series #3

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop #2 Reflection

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop Series #2

Creating a Framework for Emerging Science, Technology, and Innovation in Health and Medicine: Report Release Webinar

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop #1 Reflection

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop Series #1

Toward Sequencing and Mapping of RNA Modifications: Writing Meeting

Toward Sequencing and Mapping of RNA Modifications: Committee Briefing

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life- Meeting #3

Toward Sequencing and Mapping of RNA Modifications: Industry Advances in Mass Spectrometry and Separations Technologies for RNA Modification Analysis (Waters, Bruker, Agilent)

Developing a Framework to Address Legal, Ethical, Regulatory, and Policy Issues for Research Specific to Pregnant and Lactating Persons Meeting #4

Toward Sequencing and Mapping of RNA Modifications: Industry Advances in Mass Spectrometry and Separations Technologies for RNA Modification Analysis (Thermo Fisher)