The National Academies of Sciences, Engineering and Medicine will appoint an ad hoc committee to conduct a series of three one-day public workshops and develop conclusions to help guide the data capacity development for patient-centered research from 2021 through 2030. Each workshop will seek input from key stakeholders on topics relevant to the committee charge, and the specific focus of each workshop will be determined by the committee in consultation with the Assistant Secretary for Planning and Evaluation (ASPE).
As part of its activities, the committee will also:

• Consider the published review of the history and trajectory of the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF) portfolio of investments and the OS-PCORTF roadmap;
• Assess anticipated changes to health care priorities and priorities for health data and their impact on building data capacity into the foreseeable future, as identified by ASPE;
• Evaluate the feasibility and utility of developing a phased-in approach to building the interoperable data capacity for patient-centered outcomes research with existing databases in HHS, other Federal Departments and the private sector in a phased approach, such as projects identified in the Cures Act Title III Section 4003 (Interoperability);
• Consider other existing legislation, regulations, and the like, as deemed relevant, and
• Receive input from individuals or groups that represent stakeholders including patients and their caregivers or families, and their health care providers.

The committee will issue interim reports after each public workshop with conclusions, and will produce a final written report with findings and conclusions to help guide a future course to continue building the data capacity for patient-centered research. All reports will follow institutional guidelines and be subject to the National Academies review procedures prior to release.