Workshop on Considerations for Returning Individual Genomic Results from Population-Based Surveys: Focus on the National Health and Nutrition Examination Survey

Workshop on Considerations for Returning Individual Genomic Results from Population-Based Surveys: Focus on the National Health and Nutrition Examination Survey Day 3 of 3 (Virtual)

December 8, 2022

1:00 PM - 4:15 PM (ET)

Past

Materials

About

This multi-day virtual workshop will take place on three days as follows:

Day 1: Friday, December 2 from 10am - 4pm Eastern Time

10:00 – 10:20am ET Welcome and Goals for Workshop
10:20 – 11:45am ET Session I. NHANES: Current Structure and Opportunities for Adding Genomics
12:00 – 2:00pm ET Session II. Return of Clinically Actionable Genetic Results
2:15 – 3:30pm ET Session III. Regulatory Issues in the Return of Genetic Results
3:30 – 4:00pm ET General Discussion

Day 2: Wednesday, December 7 from 12pm - 4pm Eastern Time

12:00 – 2:00pm ET Session IV. Process for the Return of Genetic Results
2:15 – 3:30pm ET Session V. Informed Consent When Considering Returning Genetic Results to Survey Participants
3:30 – 4:00pm ET General Discussion

Day 3: Thursday, December 8 from 1pm - 4:15pm Eastern Time

1:00 – 1:10pm ET Recap of the Discussion Thus Far
1:10 – 3:00pm ET Session VI. Considerations in the Return of Genetic Results: Lessons from Other Research Studies
3:15 – 4:15pm ET Panel Discussion: Key Themes and Considerations for Future NHANES

The first day of the workshop, December 2, will provide an overview of the National Health and Nutrition Examination Survey (NHANES) and explore the opportunity and challenges associated with adding genetic tests to the active survey. Experts will discuss specific ethical and practical considerations associated with returning clinically actionable genetic results, including a special session focused on the regulatory issues. Building from there, day two of the workshop will examine the process for returning results, special issues when returning results to low-resource communities, and implications for informed consent. During the final day of the workshop, experts will share information about their experiences with returning results in contexts that are similar to NHANES. The workshop will conclude with a panel discussion on the key themes and considerations for future NHANES.

Please click here to return to the main event page for this workshop.

Scroll down to view the Webcast. The Agenda and Workshop Materials Packet are available for download at the bottom of this Webpage.

Contact

Alex Henderson

(202) 334-2031
akhenderson@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

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Workshop on Considerations for Returning Individual Genomic Results from Population-Based Surveys: Focus on the National Health and Nutrition Examination Survey