On February 28 and March 1, 2022, the National Cancer Policy Forum and the Computer Science and Telecommunications Board, hosted a public workshop to examine opportunities to improve patient care and outcomes through collaborations to enhance innovation in the development, implementation, and use of electronic health records (EHRs) in oncology care, research, and surveillance. The workshop featured invited presentations and panel discussions on topics that included:
• Challenges and opportunities to optimize the functionality and usability of EHRs in oncology care, such as efforts to standardize essential data, data presentation, and decision support, as well as the need to address governance structures and processes to prioritize and implement these improvements.
• Standardization of oncology EHR documentation to facilitate care and communication among clinicians and patients.
• Capture of data on social determinants of health.
• Opportunities to collect and integrate patient reported outcomes measures into EHRs and produce real-time or more timely data to guide cancer care and facilitate cancer research and surveillance.
• Ongoing initiatives to enhance EHR structure, data standardization, and interoperability with the goal of improving care and real-world clinical data collection for research, surveillance, and improvement of care quality. This may include essential data to be collected, and methods to do so, as well as integration of genomics data.
• Use of computing technologies such as artificial intelligence to enhance EHRs and facilitate the use of EHRs to improve clinical care and enhance oncology research.
• Opportunities to better align incentives to ensure that EHRs offered by vendors meet the needs of the various users in oncology (e.g., patients, clinicians, payers, researchers).
• Past and ongoing examples of collaborations to conceptualize and implement innovations in EHRs for cancer care, research, and surveillance.
• Policies to foster redesign of EHRs to serve as a functional component of surveillance systems to advance oncology care.
A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
Planning Committee
Mia Levy, Foundation Medicine, Inc. (Co-chair)
Lawrence N. Shulman, University of Pennsylvania Abramson Cancer Center (Co-chair)
Robert W. Carlson, National Comprehensive Cancer Network
Nicole F. Dowling, Centers for Disease Control and Prevention
Mimi Huizinga, Immunogen, Inc.
Bradley Malin, Vanderbilt University Medical Center
Alexander Melamed, Columbia University Medical Center
Neal J. Meropol, Flatiron Health
Etta D. Pisano, Harvard Medical School/American College of Radiology
Julie Schneider, U.S. Food and Drug Administration
Robert A. Winn, Virginia Commonwealth University School of Medicine
Robin Yabroff, American Cancer Society
Speakers
Shilo Anders, Vanderbilt University
Ethan Basch, University of North Carolina at Chapel Hill
Monical Bertagnolli, Brigham & Women’s Hospital and Dana-Farber Cancer Institute
Pascale Carayon, University of Wisconsin-Madison
Robert W. Carlson, National Comprehensive Cancer Network
Gwen Darien, National Patient Advocate Foundation
Jenna Date, Allscripts Hospital and Health Systems
Nicole F. Dowling, Centers for Disease Control and Prevention
George Hripcsak, Columbia University
Tufia C. Haddad, Mayo Clinic College of Medicine and Sciences
Chanita Hughes-Halbert, USC Norris Comprehensive Cancer Center
Mimi Huizinga, ImmunoGen, Inc.
Mary M. Ichiuji, Kaiser Permanente
Paul G. Kluetz, Ocology Center of Excellence, Food and Drug Administration
Mia Levy, Foundation Medicine, Inc.
Bradley Malin, Vanderbilt University Medical Center
Alexander Melamed, Columbia University Medical Center
Neal J. Meropol, Flatiron Health
Elizabeth Mynatt, Northeastern University
Travis J. Osterman, Vanderbilt University Medical Center
Jyoti D. Patel, Northwestern University
Lynne Penberthy, National Cancer Institute
Etta D. Pisano, Harvard Medical School/American College of Radiology
Lisa C. Richardson, Centers for Disease Control and Prevention
Barry Russo, The Center for Cancer and Blood Disorders
Avinash Shanbhag, Office of Technology, Office of the National Coordinator
Lawrence N. Shulman, University of Pennsylvania Abramson Cancer Center
Twee Sim, Office of Science and Technology Policy and the Department of Defense
Lara Strawbridge, Center for Medicare and Medicaid Innovation
Samuel U. Takvorian, Penn Medicine
Reed V. Tuckson, Black Coalition Against COVID and Tuckson Health Connections, LLC
Jeremy L. Warner, Vanderbilt University
Robert A. Winn, Virginia Commonwealth University Massey Cancer Center
Robin Yabroff, American Cancer Society
Robin Zon, Michiana Hematology Oncology