Implementing and Evaluating Genomic Screening Programs in Health Care Systems: A Workshop

November 1, 2017

8:30 AM - 5:15 PM (EDT)

Past

Materials

About

Large-scale initiatives within health care systems or public health programs that integrate genomics have a variety of goals such as providing information about clinically actionable genetic variants, seeking diagnoses for individuals suspected to have rare diseases, and/or advancing research on the genetic contributors to human illnesses. On November 1, 2017, the Roundtable on Genomics and Precision Health hosted a one-day public workshop that explored challenges and opportunities associated with genomics-based screening programs. Case studies of large-scale genomics programs and collaborative learning networks were highlighted during the workshop as a way to understand successes and lessons learned regarding (1) economic considerations (e.g., clinical utility, value), (2) policy environments (e.g., alleviating privacy and discrimination concerns for participants), and (3) data sharing. Workshop discussions were held with a broad array of stakeholders including health economists, representatives from health care delivery systems, public health officials, bioethicists, implementation science researchers, clinicians, payers, and policy makers.

Contact

Roundtable on Genomics and Precision Health

genomics@nas.edu

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It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

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Implementing and Evaluating Genomic Screening Programs in Health Care Systems: A Workshop

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Implementing and Evaluating Genomic Screening Programs in Health Care Systems: A Workshop