dataset:

LSOA

demographics:

SES

household:

household composition (age, relationship)

social supports:

social history

illnesses:

list of 13 serious conditions

physical function:

6 ADLS, 6 IADLs, mobility, falling, dizziness, incontinence

quality of life:

cognition:

health services utilization support services:

satisfaction with care:

family care:

helpers with key activities

out-of-pocket costs:

dataset:

NMFS

site of death:

cause of death:

demographics:

SES

household:

relationship of people living with

social supports:

illnesses:

hypertension, heart attack, angina, stroke, Alzheimer, dementia, mental health, diabetes, cancer, asthma, emphysema, bronchitis, cirrhosis, arthritis

physical symptoms:

physical function:

mobility, ADL, IADL

psychological symptoms:

quality of life:

cognition:

trouble understanding, remembering, recognizing, problem behaviors

family care:

did family members help/live with/help pay for care

out-of-pocket costs:

decedent funds and family expenses includes “help at home”

dataset:

NHANES

site of death:

cause of death:

demographics:

SES

household:

delineates all members of household

social supports:

illnesses:

extensive list of conditions

physical symptoms:

extensive pain questionnaire

physical function:

difficulty doing 19 activities

self reported memory problems or confusion

dataset:

MEPS

site of death:

cause of death:

demographics:

SES

illnesses:

respondent lists conditions for each family member

physical symptoms:

pain

physical function:

ADL, IADL, mobility questions

psychological symptoms:

feeling anxious or blue

cognition:

memory loss, confusion, decision making, supervision for safety

satisfaction with care:

general satisfaction, experience any difficulty, delay or lack of care

family care:

detail info about caregivers

out-of-pocket costs:

purchased medicines; alternative care (total expenditures only)

dataset:

MDS

site of death:

cause of death:

demographics:

SES

household:

marital status; lived alone prior to adm

social supports:

family involvement; contact with relatives and close friends

illnesses:

checklist plus open ICD coding

physical symptoms:

pain, shortness of breath

physical function:

ADLS specificially and pattern

psychological symptoms:

mood, psychological well-being

cognition:

memory, skills, delirium

dataset:

PSID

site of death:

cause of death:

demographics:

SES

household:

relationships

physical function:

basic needs like dressing, bathing , eating

psychological symptoms:

quality of life:

cognition:

health services utilization support services:

satisfaction with care:

family care:

out-of-pocket costs:

incl paid paid nurse/aide coming to home

dataset:

OASIS

site of death:

cause of death:

demographics:

SES

household:

spouse, other family, friend, paid help

illnesses:

diagnostic codes

physical symptoms:

pain, shortness of breath, nausea, bowel function

physical function:

ADLS, IADS

psychological symptoms:

“emotional” problems

cognition:

alter, requires prompting, requires assistance, confused

family care:

who is caring, what types of assistance

dataset:

NDI

site of death:

cause of death:

demographics:

SES

household:

social supports:

illnesses:

physical symptoms:

physical function:

psychological symptoms:

quality of life:

cognition:

health services utilization support services:

satisfaction with care:

family car :

out-of-pocket costs:

dataset:

NHHCS

site of death:

cause of death:

demographics:

SES

household:

family, nonfamily

illnesses:

primary or other diagnoses

physical function:

receives help from this agency regarding ADLs, IADLs

cognition:

health services utilization support services:

satisfaction with care:

family care:

relationship to primary caregiver

out-of-pocket costs:

only as primary or secondary source of payment

dataset:

NNHS

site of death:

cause of death:

demographics:

SES

household:

before adm to facility

illnesses:

primary and “other” diagnoses

physical function:

ADLs, limited IALDs

health services utilization support services:

satisfaction with care:

family care:

out-of-pocket costs:

dataset:

MCBS

site of death:

cause of death:

demographics:

SES

household:

persons staying in the household

illnesses:

long list

physical function:

6 ADLs, 6 IADLs

cognition:

memory, making decisions, concentrating

satisfaction with care:

general satisfaction, availability, convenience, information received, costs, etc.

family care :

who helps with ADLs/IADLs

out-of-pocket costs:

equipment, prescriptions, alterations to house

dataset:

NHIS

site of death:

cause of death:

demographics:

SES

household:

relationships among all in household

illnesses:

“have you ever been told” broad domains:

cardiovascular disease, respiratory conditions, etc.

physical symptoms:

fatigue, tiredness, pain

physical function:

single item about “major activity limitation”; ADLs, IADLs, Nagi

psychological symptoms:

depression, anxiety, emotional problem

cognition:

limited by difficulty remembering or confusions

health services utilization support services:

satisfaction with care:

family care:

out-of-pocket costs:

how much spent for medical care (exc hlth insurance, over counter

dataset:

NHEFS

site of death:

cause of death:

demographics:

SES

household:

# in household

illnesses:

ever had; doctor ever told arthritis, heart attack, stroke, diabetes, cancer, fx hip, osteoporosis, etc.

physical symptoms:

just arthritis (swelling, stiffness, pain)

physical function:

Katz ADL; Rosow-Breslau, and Fries Functional

psychological symptoms:

quality of life:

cognition:

health services utilization support services:

satisfaction with care:

family care:

out-of-pocket costs:

dataset:

Medicare

site of death:

cause of death:

demographics:

SES

illnesses:

only as inferred from diagnostic codes on visits and stays

physical symptoms:

physical function:

psychological symptoms:

quality of life:

cognition:

health services utilization support services:

satisfaction with care:

family care:

out-of-pocket costs:

dataset:

NLTCS

site of death:

cause of death:

demographics:

SES

household:

identification of caregiver

social supports:

how many times did see/talk with friends

illnesses:

does … now have [30] conditions

physical function:

6 ADLs; 7 IADLs; Nagi items on range of motion and impairment; activity list

psychological symptoms:

confusion or emotional problem

cognition:

mini mental

family care:

many details about who helps with ADLs and IADLs

out-of-pocket costs:

who pays for help with ADLs/IADLs; payment for nursing home, homecare

dataset:

AHEAD

site of death:

cause of death:

demographics:

SES

household:

spouse, children, other

social supports:

asked in HRS 1994 module

illnesses:

major illnesses; severity reflected in type and intensity of care

physical symptoms:

pain, shortness of breath, fatigue

physical function:

difficulty with 12 physical tasks; if + then asked difficulty with 6 personal care activities

psychological symptoms:

CESD used in HRS 1994

quality of life:

14 questions on AHEAD Wave 1

cognition:

dementia screening instrument, memory, reasoning

family care :

living with, assisting ADLS

out-of-pocket costs:

nursing home, prescriptions, in-home medical care, assistance with ADLs and IADLS