Eliminating Health Disparities: Measurement and Data Needs (2004)
Chapter: Appendix B Workshop on Improving Racial and Ethnic Data in Health
Appendix B
Workshop on Improving Racial and Ethnic Data in Health
AGENDA
December 12-13, 2002
Thursday, December 12, 2002
|
10:00 |
Welcome and Introductions Edward Perrin, University of Washington (Panel Chair) Andrew White, Committee on National Statistics James Scanlon, Office of Science and Data Policy, Office of the Assistant Secretary for Planning and Evaluation, Department of Health and Human Services |
|
10:15 |
The Importance of Collecting Data on Race, Ethnicity, and Socioeconomic Status Session Chair: David Williams, University of Michigan (Panel Member) Authors: Nicole Lurie and Allen Fremont, RAND |
|
10:45 |
Discussants: Olivia Carter-Pokras, University of Maryland Gem Daus, Asian and Pacific Islander American Health Forum |
|
11:15 |
Open Discussion |
|
11:30 |
Legal Aspects of Race and Ethnicity Data Collection (Including Privacy Issues) Session Chair: William Kalsbeek, University of North Carolina, Chapel Hill (Panel Member) |
|
11:30 |
Legal Framework: Mara Youdelman, National Health Law Program |
|
12:00 |
Privacy Issues: Moya Gray, Director, Hawaii Office of Information Practices |
|
12:30 |
Open Discussion |
|
1:45 |
Race and Ethnicity Data Collection by Private Organizations Session Chair: L. Carl Volpe, WellPoint Health Networks Inc. (Panel Member) |
|
1:45 |
General Overview—Collection of Data on Race/Ethnicity of Patients by Hospitals, Medical Groups, and Health Plans Author: David Nerenz, Michigan State University |
|
2:15 |
The Collection of Race and Ethnicity Data by Health Plans Author: Carmella Bocchino, American Association of Health Plans |
|
3:00 |
Discussants: Eileen Peterson, United Health Group Romana Hasnain-Wynia, Health Research and Education Trust Andrew Webber, National Committee for Quality Assurance |
|
4:00 |
Open Discussion Moderator: Edward Perrin, University of Washington (Panel Chair) |
Friday, December 13
|
8:30 |
Race and Ethnicity Data Collection by States Session Chair: Denise Love, National Association of Health Data Organizations (Panel Member) Authors: Sara Singer and Jeff Geppert, Stanford University; Jay Buechner, Rhode Island; Wu Xu, Utah; Walter Suarez, Minnesota; and Lorin Ranbom, Ohio |
|
9:00 |
Discussants: Dan Friedman, Massachusetts Department of Public Health Carla Edwards, Florida Agency for Health Care Administration David Solet, Public Health, Seattle and King County |
|
9:30 |
Open Discussion |
|
10:00 |
Attendee Comments on Race and Ethnicity Data Collection Session Chair: Anthony D’Angelo, Computercraft (Panel Member) Workshop attendees were invited to sign up to give brief comments on the collection of racial and ethnic data |
|
11:15 |
Perspectives of Data Users Session Chair: Jonathan Skinner, Dartmouth College (Panel Member) Panelists: Matthew Snipp, Stanford University Rhonda BeLue, Metro Nashville Public Health Department Marian Gornick, Consultant, Health Services Research |
WORKSHOP PARTICIPANTS LIST
Presenters
Edward Perrin (Panel Chair), University of Washington
Rhonda BeLue, Metro Nashville Public Health Department
Carmella Bocchino, American Association of Health Plans
Jay Buechner, Rhode Island Department of Health
Olivia Carter-Pokras, University of Maryland, Baltimore Campus
Anthony D’Angelo, Computercraft
Gem Daus, Asian and Pacific Islander American Health Forum
Carla Denise Edwards, Florida Agency for Health Care Administration
Allen Fremont, RAND
Dan Friedman, Massachusetts Department of Public Health
Jeffrey Geppert, Stanford University
Marian Gornick, Health Services Research
Moya Gray, Hawaii Office of Information Practices
Romana Hasnain-Wynia, Health Research and Education Trust
William Kalsbeek, University of North Carolina, Chapel Hill
Denise Love, National Association of Health Data Organizations
Nicole Lurie, RAND
David Nerenz, Michigan State University
Eileen Peterson, United Health Group
Lorin Ranbom, Ohio Department of Health
James Scanlon, Office of Science and Data Policy, Department of Health and Human Services
Sara Singer, Stanford University
Jonathan Skinner, Department of Economics, Dartmouth College
Matthew Snipp, Stanford University
David Solet, Public Health, Seattle and King County
Walter Suarez, Minnesota Department of Health
L. Carl Volpe, Strategic Health Partnership, WellPoint Health Networks Inc.
Andrew Webber, National Committee for Quality Assurance
Andrew White, Committee on National Statistics, National Academies
David Williams, Department of Sociology, University of Michigan
Wu Xu, Utah, Department of Health
Mara Youdelman, National Health Law Program
Invited Guests
Steven Auerbach, Health Resources and Services Administration
Roman Baez, Dental School Multicultural Programs
John Burton, Council on African American Affairs, Inc.
Audrey Burwell, Department of Health and Human Services
Shari Campbell, Bureau of Primary Health Care
Marcia Changkit, National Cancer Institute
Kenneth Chu, Center for Reduce Cancer Health Disparities
Beverly Colman-Miller,
Pam Curry, DHHS Office of Counter Terrorism and Pediatric Drug Development
Charles Daly, Bureau of Primary Health Care
Shelia Davis, Summit Health Institute for Research and Education
Shirley Delaleu, Council on African American Affairs, Inc.
Elaine Elinksy, Elinsky Consulting
Roland Garcia, National Cancer Institute
Kenneth Gerlach, Cancer Surveillance Branch
Linda Greenberg, Centers for Medicare and Medicaid Services
Robert Hahn, Centers for Disease Control and Prevention
Jan Heffernan, National Institutes of Health
Katherine Hollinger, Office of Women’s Health, FDA
Diane Hopkins, U.S. Department of Health and Human Services
Jin In, U.S. Department of Health and Human Services
Debbie Jackson, National Center for Health Statistics, CDC
K.A. Jagannathan, DHHS Administration for Children and Families
Cheedy Jaja, Indiana University Center for Bioethics
Yvonne Johns, DHHS Office of Minority Health
Steve Jones II, United States Congress
Evelyn Kappeler, DHHS Office of Population Affairs
Onelio Lopez, U.S. Department of Health and Human Services
Jennifer Madans, Centers for Disease Control
Diane Makuc, National Center for Health Statistics
Jennifer Malat, University of Cincinnati
Mildred Martinez, Kaiser Permanente
Donielle Newell, Council on African American Affairs, Inc.
Ly Nguyen, Morgan State University
Edna Paisano, DHHS Office of Public Health
JoAnn Pappalardo, DHHS Office of Public Health
Sharyn Parks, National Center for Injury Prevention and Control
William Rodriguez, DHHS Office of Counter Terrorism and Pediatric Drug Development
Beatrice Rouse, Substance Abuse Mental Health Services Administration
Theodore Small Jr., Council on African American Affairs, Inc.
Bryon Sogie-Thomas, National Medical Association
Edward Sondik, Centers for Disease Control
Irene Tsai, Kaiser Permanente
Luz Vega, District of Columbia Department of Health
Irene Zimmerman, Washington Association of Professional Anthropologists
NRC Staff
Michele Ver Ploeg, Committee on National Statistics
Jamie Casey, Committee on National Statistics
Tanya Lee, Committee on National Statistics
Andrew White, Committee on National Statistics
