Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research
2009

Consensus

You must be logged in to download this publication.

Select Book Type

Paperback - $38.70
Ebook - $31.49

See project
Request an exam or desk copy

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule.

In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Additional materials

Press Release

Publication information

334 pages · 6 x 9 · paperback
ISBN Paperback: 0-309-12499-9
ISBN Ebook: 0-309-12500-6
DOI: https://doi.org/10.17226/12458

Suggested citation

Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press.

Import this citation to:

Bibtext
EndNote
Reference manager

First Name
Last Name
Email (required)
I agree to receive emails from the National Academies (required)

We respect your privacy and will never share your information.

Search this publication

Front Matter i-xiv
Summary 1-14
Overview of Conclusions and Recommendations 15-62
1 Introduction 63-74
2 The Value and Importance of Health Information Privacy 75-110
3 The Value, Importance, and Oversight of Health Research 111-152
4 HIPAA, the Privacy Rule, and Its Application to Health Research 153-198
5 Effect of the HIPAA Privacy Rule on Health Research 199-244
6 A New Framework for Protecting Privacy in Health Research 245-284
Appendix A: Previous Recommendations to the Department of Health and Human Services 285-292
Appendix B: Commissioned Survey Methodology 293-300
Appendix C: Committee Member and Staff Biographies 301-310
Abbrevations and Acronyms 311-314
Glossary 315-320

Log In

Former MyNAP users: You'll need to reset your password on your first login to MyAcademies. Click "Forgot password" below to receive a reset link via email. Having trouble? Visit our FAQ page to contact support.

Members of the National Academy of Sciences, National Academy of Engineering, or National Academy of Medicine should log in through their respective Academy portals.

Email (required)
Password (required)

Don't have an account?

Register

Email (required)
New password (required)
Retype password (required) Password must be at least 8 characters
I accept the terms of use
terms of use

Thank You

Thank you for creating a MyAcademies account!

Enjoy free access to thousands of National Academies' publications, a 10% discount off every purchase, and build your personal library.

Forgot Password

Enter the email address for your MyAcademies (formerly MyNAP) account to receive password reset instructions.

Email (required)

Reset Requested

We sent password reset instructions to your email . Follow the link in that email to create a new password. Didn't receive it? Check your spam folder or contact us for assistance.

Reset Password

New password (required)
Retype password (required) Password must be at least 8 characters

Reset Password

Your password has been reset.

Verify email

Verify Your Email Address

We sent a verification link to your email. Please check your inbox (and spam folder) and follow the link to verify your email address. If you did not receive the email, you can request a new verification link below

Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research (2009)

Chapter: Front Matter

Additional materials

Publication information

Suggested citation

My Academies

Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research (2009)

Chapter: Front Matter