The Value of Genetic and Genomic Technologies
The Beckman Center of the National Academies
100 Academy
Irvine, CA
March 22, 2010
MEETING OBJECTIVE
To examine the perceived value of genetic and genomic technologies,both present and future, in clinical practice
How do different stakeholders define the value of genetic and genomic technologies?
How do stakeholders evaluate the weight of one kind of value in relation to another?
How do people assess relative values to make health care decisions?
How do these types of values relate, or not relate, to the monetary cost of the technologies?
8:00–8:15 A.M. | PUBLIC WORKSHOP BEGINS—AUDITORIUM |
8:00–8:15 A.M. | Welcome and Introductory Remarks |
| Wylie Burke, Roundtable Chair andProfessor and Chair of the Departmentof Bioethics and Humanities,University of Washington |
8:15–10:15 A.M. | CORRELATIONBETWEEN LYNCH SYNDROMEAND COLON CANCER |
8:15–8:30 A.M. | Case Study Presentation |
| Marc Williams, Director, IntermountainHealthcare Clinical Genetics Institute,LDS Hospital |
8:30–9:00 A.M. | Lynch Syndrome Panelists |
| Mark Boguski, Associate Professor, Centerfor Biomedical Informatics, HarvardMedical School Roy Gandolfi, Associate Medical Director,SelectHealth Don Lyman, Chief, Chronic Disease andInjury Control Division, CaliforniaDepartment of Public Health Dennis Salisbury, Family PracticePhysician, Rocky Mountain Clinic,Butte, MT Andrew Spiegel, CEO, Colon CancerAlliance |
9:00–9:45 A.M. | Panel discussion |
9:45–10:15 A.M. | Roundtable discussion |
10:15–10:30 A.M. | BREAK |
10:30–12:30 P.M. | PHARMACOGENOMIC TESTING FOR WARFARIN DOSING |
10:30–10:45 A.M. | Case Study Presentation |
| David Veenstra, Associate Professor,Pharmaceutical Outcomes Researchand Policy Program and Institute forPublic Health Genetics, University ofWashington |
10:45–11:15 A.M. | Warfarin Panelists |
| Anna Garrett, Manager, OutpatientClinical Pharmacy Programs, MissionHospital, Asheville, NC |
| Arthur Lurvey, Medical Director,Palmetto GBA Elizabeth Mansfield, Director of thePersonalized Medicine Staff, Office ofIn Vitro Diagnostic Devices, Center forDevices and Radiological Health, FDA Dennis Salisbury, Family PracticePhysician, Rocky Mountain Clinic,Butte, MT |
11:15 A.M.–12:00 P.M. | Panel discussion |
12:00–12:30 P.M. | Roundtable discussion |
12:30–1:30 P.M. | LUNCH |
1:30–4:00 P.M. | GENOMIC PROFILING |
1:30–1:45 P.M. | Case Study Presentation |
| Bruce Blumberg, Co-Chief of MedicalGenetics, Kaiser Permanente, Oaklandand Institutional Director of GraduateMedical Education, NorthernCalifornia Kaiser Permanente, ThePermanente Medical Group |
1:45–2:15 P.M. | Genomic Profiling Panelists |
| Karen Kaplan, Science Writer, Los Angeles Times Vance Vanier, CEO and President,Navigenics Janet Williams, Genetic Counselor,Intermountain Healthcare, OncologyClinics David Witt, Genetics Department, KaiserSan Jose Medical Center Steven Woolf, Professor, Departments ofFamily Medicine, Epidemiology, andCommunity Health, VirginiaCommonwealth University |
2:15–3:15 P.M. | Panel discussion |
3:15–4:00 P.M. | Roundtable discussion |
4:00–5:00 P.M. | SUMMARY |
4:00–5:00 P.M. | Summary and wrap-up discussion |
| Bruce Blumberg, Co-Chief of MedicalGenetics, Kaiser Permanente, Oaklandand Institutional Director of GraduateMedical Education, NorthernCalifornia Kaiser Permanente, ThePermanente Medical Group Wylie Burke, Roundtable Chair andProfessor and Chair of the Departmentof Bioethics and Humanities,University of Washington Catherine A. Wicklund, Director of theGraduate Program in GeneticCounseling and Assistant Professor,Department of Obstetrics andGynecology, Northwestern University Marc Williams, Director, IntermountainHealthcare Clinical Genetics Institute,LDS Hospital |
5:00 P.M. | ADJOURN |