Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary (2014)
Chapter: Appendix A: Workshop Agenda
Improving the Efficiency and Effectiveness of Genomic Science Translation: A Workshop
December 3, 2012
The Beckman Center of the National Academies
100 Academy
Irvine, CA
Workshop Objectives:
• To examine how basic science can best be positioned to foster successful translation of early genomic discoveries.
• To explore the challenges in and identify potential opportunities for improving the efficacy of the translation process.
• To define pathways for moving innovative basic science forward.
| 8:30–8:45 A.M. | WELCOMING REMARKS AND CHARGE TO WORKSHOP SPEAKERS AND PARTICIPANTS |
|
Wylie Burke, Roundtable Co-Chair Professor and Chair, Department of Bioethics and Humanities University of Washington, Seattle |
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Sharon Terry, Roundtable Co-Chair President and Chief Executive Officer Genetic Alliance |
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| 8:45–10:20 A.M. | SESSION I: CONNECTING BASIC RESEARCH AND HEALTH CARE NEEDS Discussion Provocateur: |
|
William J. Rutter Chairman/Chief Executive Officer and Founder Synergenics, LLC |
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| 8:45–9:05 A.M. | Genomics to Health |
|
Edison Liu President and Chief Executive Officer The Jackson Laboratory |
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| 9:05–9:25 A.M. | Genomics and Personalized Cancer Treatment |
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David G. Huntsman Associate Professor of Medicine University of British Columbia |
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| 9:25–10:15 A.M. | Discussion with Speakers and Attendees |
| 10:15–10:20 A.M. | Session Distillation and Potential Next Steps |
|
William J. Rutter Chairman/Chief Executive Officer and Founder Synergenics, LLC |
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| 10:20–10:35 A.M. | BREAK |
| 10:35 A.M.–12:10 PM | SESSION II: MOVING BASIC SCIENCE FORWARD |
| Discussion Provocateur: | |
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Robert L. Nussbaum Chief, Division of Medical Genetics Department of Medicine and Institute of Human Genetics University of California, San Francisco |
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| 10:35–10:55 A.M. | Discovering New Drugs and Diagnostics from 300 Billion Points of Data |
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Atul Butte Chief and Associate Professor of Systems Medicine, Department of Pediatrics Stanford University School of Medicine |
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| 10:55–11:15 A.M. | Translating Genetic and Genomic Research in Neuropsychiatric Conditions: Lessons from Autism Research |
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Daniel Geschwind Gordon and Virginia MacDonald Distinguished Chair in Human Genetics and Professor of Neurology and Psychiatry, University of California, Los Angeles, School of Medicine |
|
| 11:15 A.M.–12:05 P.M. | Discussion with Speakers and Attendees |
| 12:05–12:10 P.M. | Session Distillation and Potential Next Steps |
|
Robert L. Nussbaum Chief, Division of Medical Genetics Department of Medicine and Institute of Human Genetics University of California, San Francisco, School of Medicine |
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| 12:10–1:00 P.M. | WORKING LUNCH |
| 1:00–2:35 P.M. | SESSION III: THE ROLE OF INDUSTRY AND VENTURE CAPITAL Discussion Provocateur: |
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Wylie Burke, Roundtable Co-Chair Professor and Chair Department of Bioethics and Humanities University of Washington, Seattle |
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| 1:00–1:20 P.M. | Lost in Translation: The Systematic and Comprehensive |
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Geoffrey Duyk Partner and Managing Director TPG Biotech |
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| 1:20–1:40 P.M. | Translating Genomic Science into Clinical Practice: Time for Innovative Business Models |
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Randy Scott Chairman and Chief Executive Officer InVitae |
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| 1:40–2:30 P.M. | Discussion with Speakers and Attendees |
| 2:30–2:35 P.M. | Session Distillation and Potential Next Steps |
|
Wylie Burke, Roundtable Co-Chair Professor and Chair Department of Bioethics and Humanities University of Washington, Seattle |
|
| 2:35–4:10 P.M. | SESSION IV: THE ROLE OF ADVOCACY IN FACILITATING BASIC SCIENTIFIC RESEARCH Discussion Provocateur: |
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Sharon Terry, Roundtable Co-Chair President and Chief Executive Officer Genetic Alliance |
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| 2:35–2:55 P.M. | Purpose of Advocacy—Helping to Solve Important Problems |
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Pat Furlong Founding President and Chief Executive Officer Parent Project Muscular Dystrophy |
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| 2:55–3:15 P.M. | Bridging the Gap Between Basic and Clinical Research |
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Todd Sherer Chief Executive Officer The Michael J. Fox Foundation for Parkinson’s Research |
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| 3:15–4:05 P.M. | Discussion with Speakers and Attendees |
| 4:05–4:10 P.M. | Session Distillation and Potential Next Steps |
|
Sharon Terry, Roundtable Co-Chair President and Chief Executive Officer Genetic Alliance |
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| 4:10–4:25 P.M. | BREAK |
| 4:25–5:30 P.M. | SESSION V: NEXT STEPS |
| 4:25–5:30 P.M. | LEADING THE STRATEGY FOR MORE EFFICIENT AND EFFECTIVE TRANSLATION Discussion Provocateur: |
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Geoffrey Ginsburg Director, Center for Genomic Medicine Institute for Genomic Sciences & Policy Duke University |
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Discussants:
William J. Rutter Chairman/Chief Executive Officer and Founder Synergenics, LLC |
|
|
Daniel Geschwind Gordon and Virginia MacDonald Distinguished Chair in Human Genetics and Professor of Neurology and Psychiatry, University of California, Los Angeles, School of Medicine |
|
|
Geoffrey Duyk Partner and Managing Director, TPG Biotech |
|
|
Todd Sherer Chief Executive Officer, The Michael J. Fox Foundation for Parkinson’s Research |
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| 5:30–5:45 P.M. | SESSION VI: CONCLUSION |
| 5:30–5:45 P.M. | CONCLUDING REMARKS |
|
Wylie Burke, Roundtable Co-Chair Professor and Chair Department of Bioethics and Humanities University of Washington, Seattle |
|
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Sharon Terry, Roundtable Co-Chair President and Chief Executive Officer Genetic Alliance |
|
| 5:45 P.M. | ADJOURN |
