Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary (2015)
Chapter: Appendix C: Statement of Task
An ad hoc planning committee will organize and conduct a public workshop to examine how various systems are capturing and making use of genomic data to advance patient care and research. The workshop goal will be to evaluate the challenges, opportunities, and best practices for translating genomic data into knowledge that can inform both basic research and clinical care. In this context, various sources, tools, and methodology for the assessment of data related to the health care system may be considered. A diverse stakeholder group which may be composed of electronic health record developers and health information technology professionals, clinical providers, academic researchers, patient groups, and government representatives will be invited to present their perspectives. The planning committee will develop the workshop agenda, select speakers and discussants, and moderate the discussions. An individually authored summary of the workshop will be prepared by a designated rapporteur in accordance with institutional policy and procedures.
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