Autism and Developmental Disabilities Monitoring (ADDM) Network

http://www.cdc.gov/ncbddd/autism/addm.html

Sponsor: Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities

Child demographic characteristics, including sex, race/ethnicity, and year of birth

Previous diagnoses of intellectual disability and cerebral palsy

Use of special education services

Previous and current special education exceptionality (eligibility) classification

Results from standardized developmental assessments (such as IQ)

Previous diagnosis of ASD

Clinical features, symptoms, and behaviors associated with ASD, intellectual disability, or cerebral palsy

Age of child when first symptoms noted and at first diagnosis of ASD, intellectual disability, or cerebral palsy

Other developmental and mental disorders that occur with ASD, intellectual disability, and cerebral palsy (e.g., attention deficit hyperactivity disorder [ADHD])

Selected sample based on grantees.

Fourteen ADDM Network sites for 2008. Children aged 8 years with evidence documented in abstracted evaluations indicating the presence of autistic disorder; pervasive developmental disorder, not otherwise specified; or Asperger’s disorder.

Biennial (even years): 2000, 2002, 2004, 2006, and 2008.

National Health and Nutrition Examination Survey (NHANES)

http://www.cdc.gov/nchs/nhanes.htm

Sponsor: CDC National Center for Health Statistics

In-person household interviews

Nutritional assessments

Laboratory tests

Physical examinations

DNA repository

Health care use

Mental, behavioral, and emotional problems of children

Numerous diseases, medical conditions, and health indicators

Age/topic/method/dates: 12+/Depression screener/ (CAPI)/2005, 2006 12–19/Conduct disorders/ (ACASI)/1999 on 8–19/Depression/ (CDISC)/2000–2004 8–15/ADHD/(parent CDISC)/2000–2004 8–15/Conduct disorders/(parent CDISC)/2000–2004 8–15/Depression/(parent CDISC)/2000–2004 No data yet published.

Use of mental health care services

Activity limitations because of poor physical or mental health

Mental disorder diagnosis using the National Institute of Mental Health Diagnostic Interview Schedule for Children (1999–2004: generalized anxiety disorder and panic disorder; 2000–2004: eating disorders, elimination disorders, major depression/dysthymic disorder, ADHD, and conduct disorder); ages 8–15 years, varying by module

Depression screener (PHQ-9; since 2005)

Mentally unhealthy days (since 2001)

Nationally representative sample.

5,000 people per year, including approximately 1,000 persons aged 12–19 years.

Oversampling, which changes periodically; in 2011–2012 and 2013–2014, oversample of Hispanics, blacks, Asians, and older adults.

National Survey of Children’s Health (NSCH)

http://www.cdc.gov/nchs/slaits/nsch.htm

Sponsor: Health Resources and Services Administration

Administrator: CDC National Center for Health Statistics

Physical, emotional, and dental health

Children with special health care needs

Health care access, use, and barriers

Questions asked for ADHD, depression, anxiety, oppositional defiant disorder, behavioral or conduct problems, autism, developmental delay, Tourette syndrome:

Has a doctor or other health care provider ever told you that selected child (SC) had…?

Does SC currently have…? Would you describe his/her … as mild, moderate, or severe?

In case of ADHD, a fourth question is asked:

Is SC currently taking medication for ADD or ADHD?

Results not yet published.

Activity, social, or learning limitation resulting from mental, emotional, or behavior problems

Common acute and chronic conditions (including learning disability, ADHD, depression, anxiety, behavior and conduct disorders, ASD, Tourette syndrome, and epilepsy)

Social behavior, emotional difficulties, and school engagement

Mental health care treatment and services used

Representative sample nationally and within each state of households with children. Data collected from responsible adult by telephone.

Approximately 95,000 children aged ≤17 years.

Periodic: data collected approximately every 4 years and currently available for 2003, 2007, and 2011–2012.

National Survey on Drug Use and Health (NSDUH)

https://nsduhweb.rti.org

Sponsor: Substance Abuse and Mental Health Services Administration

Health conditions

Health care use

Designed to produce drug and alcohol use incidence and prevalence estimates and report the consequences and patterns of use and abuse in the general U.S. civilian population ages 12 and older. Since 1994, questions added on mental health and access to care. Treatment for youth ages 12–17 is defined as receiving treatment or counseling for problems with behaviors or emotions from specific mental health or other health professionals in school, home, or from other outpatient or inpatient settings in the past year

A module on lifetime and past year prevalence of major depressive episode (MDE), severity of the MDE as measured by role impairments, and treatment for depression was administered to adults ages 18 or older and youth ages 12–17, from 2004 to 2006; 8.5 percent of youth had an episode of MDE in the past 12 months (see http://oas.samhsa.gov/2k8/youthDepress/youthDepress.pdf)

Lifetime and past year major depressive episode

Level of impairment resulting from major depressive disorder, substance use, and substance use disorder

Mental health service use

State and nationally representative sample.

7,200 primary sampling units each year and approximately 70,000 respondents aged ≥12 years, including 23,000 aged 12–17 years and 23,000 aged 18–25 years.

Annual and continuous since 1992.

Data includes 397

Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV) diagnoses.

National Comorbidity Survey-Adolescent Supplement (NCS-A)

http://www.hcp.med.harvard.edu/ncs

Lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders: anxiety disorders, mood disorders, behavior disorders, substance disorders

Identify risk and protective factors for the onset and persistence of these disorders

Describe patterns and correlates of service use for these disorders