Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop (2016)

Chapter: Appendix B: Workshop Agenda

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Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
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Appendix B

Workshop Agenda

Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Medical Needs

December 9-10, 2015

The National Academies Keck Center
500 Fifth Street, NW
Washington, DC 20001

AGENDA

Day 1: Wednesday, December 9, 2015

8:30 a.m. Welcome and Workshop Overview
8:45 a.m. Introductory Session, “Perspectives from Individuals and Family Members”
Moderator: Stephen M. Shore, Ed.D., Adelphi University
  • J-Jaye Hurley, Parent Advocate and Autism Response Team Coordinator, Autism Speaks
  • Jill Plevinsky, M.A., Founding Chair, Patient Advisory Council, ImproveCareNow
  • Victoria Costello, M.F.A., Parent Advocate, Science Journalist, and Public Library of Science
10:00 a.m. Keynote Presentation, “Disability Names and Numbers: Challenges and Opportunities in Nosology, Epidemiology, and Equity/Disparity”
Moderator: Deborah Klein Walker, Ed.D., Abt Associates and American Orthopsychiatric Association
  • Maureen S. Durkin, Ph.D., Dr.P.H., M.P.H., University of Wisconsin–Madison
Page 88 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
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11:00 a.m. Panel One, “Children with Serious Medical Conditions and the Behavioral Health Implications”
Moderator: Mary Ann McCabe, Ph.D., ABPP, George Washington University School of Medicine, George Mason University
  • Anne E. Kazak, Ph.D., ABPP, Nemours Children’s Health System and Sidney Kimmel Medical School of Thomas Jefferson University
  • Robin S. Everhart, Ph.D., Virginia Commonwealth University
  • Amy J. Houtrow, M.D., Ph.D., M.P.H., Children’s Hospital of Pittsburgh of UPMC
  • Torrie Dunlap, CPLP, Kids Included Together
1:30 p.m. Panel Two, “Early Identification and Interventions for Developmental Disabilities Emerging in Childhood”
Moderator: Craig J. Newschaffer, Ph.D., Drexel University
  • Heather Johnson, DNP, FNP-BC, FAANP, Uniformed Services University of the Health Sciences Graduate School of Nursing
  • Nathan A. Call, Ph.D., BCBA-D., Marcus Autism Center, Emory University School of Medicine
  • Connie Kasari, Ph.D., University of California, Los Angeles
  • David S. Mandell, Sc.D., University of Pennsylvania School of Medicine
3:15 p.m. Panel Three, “Early Identification and Interventions for Youth and Adolescents with Serious Behavioral Health Conditions”
Moderator: Kirsten Beronio, J.D., Office of the Assistant Secretary for Planning and Evaluation
  • Mary Fristad, Ph.D., ABPP, Ohio State University Medical Center
  • Robert K. Heinssen, Ph.D., ABPP, National Institute of Mental Health
  • Lisa Dixon, M.D., M.P.H., Columbia University Medical Center and New York State Psychiatric Institute
  • Shay Bilchik, J.D., Georgetown University Center for Juvenile Justice Reform
Page 89 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
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4:45 p.m. Armchair Discussion/Reflections from Moderators (full group Q and A)
Moderator: Maureen S. Durkin, Ph.D., Dr.P.H., M.P.H., University of Wisconsin–Madison
5:30 p.m. Closing Remarks and Adjourn

Day 2: Thursday, December 10, 2015

8:30 a.m. Welcome, Brief Recap of Day 1, and Overview for Day 2
8:45 a.m. Panel Four, “Media and Public Perceptions/Misperceptions of Children with Disabilities”
Moderator: Andy Shih, Ph.D., Autism Speaks, and Donald Wertlieb, Ph.D., American Orthopsychiatric Association and Tufts University
  • Steve Silberman, Science Writer and Author of NeuroTribes: The Legacy of Autism and the Future of Neurodiversity
  • Susan M. Lanzoni, Ph.D., Historian of Science and Writer, Harvard University
  • Victoria Costello, M.F.A., Parent Advocate, Science Journalist, and Public Library of Science
  • Tony Foleno, M.A., The Ad Council
  • Emily J. Willingham, Ph.D., Freelance Writer
10:30 a.m. Interactive Breakout Group Sessions (unavailable to Webcast audience)
  • Group 1: Considerations for when an evidence base is lacking Moderator: C. Hendricks Brown, Ph.D., Northwestern University, and Emily Lichvar, Ph.D., Center for Mental health Services, Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services
  • Group 2: Community engagement and partnerships for development and implementation of solutions Moderator: Kelly J. Kelleher, M.D., The Research Institute at Nationwide Children’s Hospital, and Angela Lello, M.P.A., Autism Speaks
Page 90 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
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  • Group 3: This breakout group is offered to participants of both the December 7-8 “National Symposium on Designing Systems That Work for Children with Complex Health Care Needs” and the December 9-10 “Workshop on Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Medical Needs”
    Moderators: Andy Shih, Ph.D., Autism Speaks, and Ed Schor, M.D., Lucile Packard Foundation for Children’s Health
11:45 a.m. Report-back from breakout groups
12:45 p.m. Workshop Reflections
1:00 p.m. Adjourn Workshop
Page 87 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
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Page 88 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
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Page 88
Page 89 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
Save
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Page 89
Page 90 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
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Page 90
Next Chapter: Appendix C: Biosketches of Workshop Speakers and Moderators
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