Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action (2020)
Chapter: Appendix B: Literature Search Terms and Strategy
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Appendix A: Public Meeting Agendas and Submissions to the Committee
Appendix B
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Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
Appendix B
Literature Search Terms and Strategy
| Search No. | Search Terms | |
|---|---|---|
| Sickle Cell Disease OR Sickle Cell Trait.mp [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, unique identifier] | ||
| AND | ||
| Introduction | # found: 9,588 | |
| 1 | *Legislation OR Law | |
| 2 | *Epidemiology | |
| 3 | *Prevalence | |
| 4 | *Incidence | |
| 5 | *Health Outcomes OR Outcome Measures | |
| 6 | *Risk Factors | |
| 7 | *Complications (stroke, ACS, pain crises, kidney and heart issues, etc.) | |
| 8 | *Thalassemia | |
| 9 | *Heredity | |
| 10 | *Anemia | |
| 11 | *Hemoglobinopathy | |
| 12 | *Gene | |
| 13 | *Pain Crisis/Vaso-Occlusive Crises | |
| 14 | *Hemoglobin S | |
continued
Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
| Search No. | Search Terms | |
|---|---|---|
| 15 | *Homozygosity | |
| 16 | *Red Blood Cells | |
| 17 | Morbidity | |
| 18 | Mortality | |
| 19 | Pathophysiology | |
| 20 | Global Burden | |
| Structural Determinants | # found: 1,373 | |
| 21 | *Economic Burden OR Unmet Need OR Burden of Health OR Burden of Illness | |
| 22 | *Health Disparities | |
| 23 | *Cost | |
| 24 | *Cost of Care | |
| 25 | *Financial Impact OR Economic Hardship OR Poverty | |
| 26 | *Life Course OR Life Course Perspective OR | |
| Life course | ||
| 27 | *Education | |
| 28 | *Employment | |
| 29 | Bias (search before 1990) | |
| 30 | Health Literacy | |
| 31 | Stigma (search before 1990) | |
| 32 | Discrimination (search before 1990) | |
| 33 | Racism (search before 1990) | |
| Screening Surveillance | # found: 1,405 | |
| 34 | *Federal Programs OR State Programs OR Local Programs | |
| 35 | *Surveillance | |
| 36 | *Registries | |
| 37 | *Screening OR Prevention | |
| 38 | *Screening (newborn, etc.) | |
| 39 | *Limitations | |
| 40 | *Bioethics | |
| 41 | *Ethics | |
| 42 | *Medical Ethics | |
| 43 | *Genetic Counseling | |
| 44 | *Reproductive Counseling |
Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
| Search No. | Search Terms | |
|---|---|---|
| Health Care Organization and Delivery | # found: 2,428 | |
| 45 | *Healthcare Barriers | |
| 46 | *Access to Care | |
| 47 | *Care Delivery | |
| 48 | **Insurance | |
| 49 | **Medicaid | |
| 50 | **Medicare | |
| 51 | **Commercial insurance | |
| 52 | **Commercial Payers | |
| 53 | **Payers | |
| 54 | **Payment policy | |
| 55 | *Disease Management | |
| 56 | *Care Management | |
| 57 | *Pain Management | |
| 58 | *Psychosocial Effects | |
| 59 | Geographical Barriers | |
| 60 | Emergency Care OR Emergency Department | |
| 61 | Mental Health | |
| 62 | Behavioral Health | |
| 63 | Cognitive Deficit OR Cognitive Impairment | |
| 64 | Transcranial Doppler | |
| 65 | Federally Qualified Healthcare Centers | |
| Quality of Care | # found: 715 | |
| 66 | *“Best Practices for Care” | |
| 67 | *Pediatric Care | |
| 68 | *Adult Care | |
| 69 | *Quality of Life | |
| 70 | **Patient-centered | |
| 71 | **Clinical guidelines | |
| 72 | **Primary care providers | |
| 73 | **Clinical guidelines | |
| 74 | *Patient Engagement OR Family Engagement |
continued
Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
| Search No. | Search Terms | |
|---|---|---|
| Workforce Issues | # found: 1,091 | |
| 75 | *Workforce Development OR Workforce Needs | |
| 76 | *Community Health Workers | |
| 77 | *Employment | |
| 78 | **Advanced practice nurse | |
| 79 | **Advanced practiced provider | |
| 80 | **Nursing OR Nurses OR Nurse Practitioners | |
| 81 | **Family physicians | |
| 82 | Hospitalists | |
| 83 | Benign Hematology | |
| 84 | Training (Medical students OR Residents) | |
| Internal Medicine | ||
| Social Workers | ||
| Psychologists | ||
| Advocacy and Community Engagement | # found: 569 | |
| 85 | *Patient Advocacy | |
| 86 | *Community Engagement | |
| 87 | *Funding | |
| 88 | *Research | |
| 89 | *Patient Education OR Family Education | |
| 90 | *Social Support | |
| 91 | Policy | |
| Current and Innovative Therapeutic Approaches and the Search for a Cure | # found: 5,611 | |
| 92 | *Treatment | |
| 93 | *Non-pharmacological Therapies | |
| 94 | *Skill-based Therapies | |
| 95 | *Educational OR Psychological Therapies | |
| 96 | *Gene editing OR Gene Replacement | |
| 97 | *Stem Cell Therapy OR Hematopoietic Stem Cells | |
| 98 | *Hydroxyurea | |
| 99 | *Endari/L-glutamine | |
| 100 | *Epigenetics | |
| 101 | Clinical Trials |
Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
| Search No. | Search Terms | |
|---|---|---|
| NASEM/IOM Studies | # found: 6 | |
| 102 | NIH COPD Action Plan | |
| 103 | NASEM: Rare Diseases and Orphan Products: Accelerating Research and Development Report | |
| 104 | NASEM: Communities in Action: Pathways to Health Equity Report | |
| 105 | NASEM: Epilepsy Across the Spectrum: Promoting Health and Understanding Report | |
| 106 | NASEM: A National Strategy for the Elimination of Hepatitis B and C: Phase Two Report | |
| 107 | NASEM: Unequal Treatment Report |
Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
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Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
Suggested Citation:
"Appendix B: Literature Search Terms and Strategy." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press.
doi: 10.17226/25632.
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