Hosted by the Committee on Childhood Cancers and Disability
November 4, 2019
Keck Center of the National Academies
Room 206
500 Fifth Street, NW
Washington, DC 20001
| 10:45 a.m. | Welcome and Introductions Paul Volberding, M.D., Committee Chair Gina Clemons, Associate Commissioner, Office of Disability Policy, U.S. Social Security Administration (SSA) |
| 11:00 a.m. |
SSA Presentations Relevant to the Committee’s Task
|
| Cassandra Assefa, Policy Analyst, Office of Medical Policy, SSA | |
| 11:30 a.m. | Discussion of SSA Processes and the Statement of Task Committee Members and SSA Staff |
| 12:30 p.m. | Break for Lunch |
| 1:30 p.m. | Pediatric Cancers and Disability Leslie L. Robison, Ph.D., Chair, Department of Epidemiology and Cancer Control, St. Jude Children’s Research Hospital |
| 2:00 p.m. | Questions and Discussion Committee Members and SSA Staff |
| 2:55 p.m. | Summary and Closing Remarks Paul Volberding, M.D., Committee Chair |
| 3:00 p.m. | Adjourn |
Hosted by the Committee on Childhood Cancers and Disability
January 21, 2020
Keck Center of the National Academies
Room 101
500 Fifth Street, NW
Washington, DC 20001
| 9:30 a.m. | Welcome and Introductions Paul Volberding, M.D., Committee Chair |
| 9:40 a.m. | Psychosocial Functioning Christopher J. Recklitis, Ph.D., M.P.H., Perini Family Survivors’ Center, Dana-Farber Cancer Institute |
| 10:40 a.m. | Break |
| 10:55 a.m. | Neurocognitive Functioning Kristina K. Hardy, Ph.D., Division of Neuropsychology, Children’s National Health System |
| 11:55 a.m. | Break for Lunch |
| 1:00 p.m. | Physical Functioning Kirsten K. Ness, PT, Ph.D., FAPTA, Department of Epidemiology and Cancer Control, St. Jude Children’s Research Hospital |
| 2:00 p.m. | Functioning in Children During and Following Cancer Treatment Lisl Schweers, LCSW, OSW-C, Cancer and Blood Disease Institute, Children’s Hospital Los Angeles |
| 3:00 p.m. | Break |
| 3:10 p.m. |
Panel Discussion: Functioning in Pediatric Cancer Patients and Survivors Moderator: Barbara L. Jones, Ph.D., M.S.W., Committee Member
|
| 4:25 p.m. | Closing Remarks Paul Volberding, M.D., Committee Chair |
| 4:30 p.m. | Adjourn |
Hosted by the Committee on Childhood Cancers and Disability
February 24, 2020
National Academy of Sciences Building
Board Room
2101 Constitution Avenue, NW
Washington, DC 20418
| 9:30 a.m. | Welcome and Introductions Paul Volberding, M.D., Committee Chair |
| 9:35 a.m. | Pain and Childhood Cancers Nicole M. Alberts, Ph.D., St. Jude Children’s Research Hospital |
| 10:35 a.m. | Break |
| 10:50 a.m. | Pain Treatment and Effects of Pain Treatment Elliot Krane, M.D., Stanford Children’s Health |
| 11:50 a.m. | Closing Remarks Paul Volberding, M.D., Committee Chair |
| 12:00 p.m. | Adjourn Public Session |