Askarova, S., B. Umbayev, A-R. Masoud, A. Kaiyrlykyzy, Y. Safarova, A. Tsoy, F. Olzhayev, and A. Kushugulova. 2020. The links between the gut microbiome, aging, modern lifestyle and Alzheimer’s disease. Frontiers in Cellular and Infection Microbiology 10:104. https://doi.org/10.3389/fcimb.2020.00104.
Barotov, S. 2023. The Herbarium Fund of the Institute of Botany, Plant Physiology and Genetics at the Tajikistan National Academy of Sciences—BRAHMS Records. Last modified December 30, 2023. https://doi.org/10.15468/ntdjg9 (accessed August 4, 2023).
Boscarino, N., R. Cartwright, K. Fox, and K. S. Tsosie. 2022. Federated learning and Indigenous genomic data sovereignty. Nature Machine Intelligence 4(11): 909-911. https://doi.org/10.1038/s42256-022-00551-y.
Carroll, S., Garba, I., Figueroa-Rodríguez, O, Holbrook, J., Lovett, R., Materechera, S., Parsons, M., Raseroka, K., Rodriguez-Lonebear, D., Rowe, R., Sara, R., Walker, J., Anderson, J. and Hudson, M., 2020. “The CARE Principles for Indigenous Data Governance.” Data Science Journal 19(1):43 https://doi.org/10.5334/dsj-2020-043.
Check Point Software Technologies, Ltd. 2022. Check Point Research: Cyber attacks increased 50% year over year. Check Point Blog. January 10, 2022. https://blog.checkpoint.com/security/check-point-research-cyber-attacks-increased-50-year-over-year (accessed January 22, 2024).
Chhay, A. 2022. New type of social engineered phishing. Information Technology. Lawrence Berkeley National Laboratory. https://it.lbl.gov/new-type-of-social-engineered-phishing (accessed August 4, 2023).
CIOMS (Council for International Organizations of Medical Sciences). 2016. International ethical guidelines for health-related research involving humans. https://doi.org/10.56759/rgxl7405.
Convention on Biological Diversity. n.d.a. The Cartagena Protocol on Biosafety. https://bch.cbd.int/protocol/. (accessed July 31, 2023).
Convention on Biological Diversity. n.d.b. The Nagoya Protocol on Access and Benefit-sharing. https://www.cbd.int/abs (accessed July 31, 2023).
Das, S., and M. Lowe. 2018. Nature read in Black and White: Decolonial approaches to interpreting natural history collections. Journal of Natural Science Collections 6:4-14. http://www.natsca.org/article/2509 (accessed January 22, 2024).
Davis, J. n.d. Are natural history museums inherently racist? Natural History Museum. https://www.nhm.ac.uk/discover/news/2019/july/are-natural-history-museums-inherently-racist.html (accessed August 4, 2023).
Dinha, F. 2023. The human factor in cybersecurity: Understanding social engineering. Forbes. April 10, 2023. https://www.forbes.com/sites/forbestechcouncil/2023/04/10/the-human-factor-in-cybersecurity-understanding-social-engineering/?sh=2054f5b86a02 (accessed August 4, 2023).
Eke, D. O., A. Bernard, J. G. Bjaalie, R. Chavarriaga, T. Hanakawa, A. J. Hannan, S. L. Hill, M. Martone, A. McMahon, O. Ruebel, S. Crook, E. Thiels, and F. Pestilli. 2022. International data governance for neuroscience. Neuron 110(4):600-612. https://doi.org/10.1016/j.neuron.2021.11.017.
EMA (European Medicines Agency). 2021. Cyberattack on EMA—Update 5. January 15, 2021. https://www.ema.europa.eu/en/news/cyberattack-ema-update-5 (accessed January 22, 2024).
Errington, T. M., A. Denis, N. Perfito, E. Iorns, and B. A. Nosek. 2021. Challenges for Assessing replicability in preclinical cancer biology. ELife 10(December):e67995. https://doi.org/10.7554/eLife.67995.
EUCAST (European Society of Clinical Microbiology and Infectious Diseases). n.d. The European Committee on Antimicrobial Susceptibility Testing—EUCAST. https://www.eucast.org (accessed August 3, 2023).
European Commission. n.d. European health data space. https://health.ec.europa.eu/ehealth-digital-health-and-care/european-health-data-space_en (accessed May 12, 2023).
Everett, D. 2023. Data governance vs data management: What’s the difference? Informatica. Last published June 29, 2023. https://www.informatica.com/blogs/data-governance-vs-data-management-whats-the-difference.html (accessed August 4, 2023).
Funk, C., M. Hefferon, B. Kennedy, and C. Johnson. 2019. Trust and mistrust in Americans: Views of scientific experts. Pew Research Center Science & Society Blog. August 2, 2019. https://www.pewresearch.org/science/2019/08/02/trust-and-mistrust-in-americans-views-of-scientific-experts (accessed January 22, 2024).
GA4GH (Global Alliance for Genomics and Health). n.d. https://www.ga4gh.org (accessed August 3, 2023).
Gabelica, M., R. Bojčić, and L. Puljak. 2022. Many Researchers were not compliant with their published data sharing statement: A mixed-methods study. Journal of Clinical Epidemiology 150(October):33-41. https://doi.org/10.1016/j.jclinepi.2022.05.019.
GBIF (Global Biodiversity Information Facility). n. n.d.a. Global Biodiversity Information Facility. https://www.gbif.org (accessed August 4, 2023).
GBIF. n.d.b. Kazakhstan. https://www.gbif.org/country/KZ/summary (accessed August 3, 2023).
GO FAIR. n.d. FAIR principles. https://www.go-fair.org/fair-principles (accessed August 3, 2023).
India Stack. n.d. FAQ. https://indiastack.org/faq.html (accessed August 3, 2023).
Kaiyrlykyzy, A., S. Kozhakhmetov, D. Babenko, G. Zholdasbekova, D. Alzhanova, F. Olzhayev, A. Baibulatova, A. R. Kushugulova, and S. Askarova. 2022a. Study of gut microbiota alterations in Alzheimer’s dementia patients from Kazakhstan. Scientific Reports 12(1):15115. https://doi.org/10.1038/s41598-022-19393-0.
Kaiyrlykyzy, A., B. Umbayev, A-R. Masoud, A. Baibulatova, A. Tsoy, F. Olzhayev, D. Alzhanova, G. Zholdasbekova, K. Davletov, A. Akilzhanova, and S. Askarova. 2022b. Circulating adiponectin levels, expression of adiponectin receptors, and methylation of adiponectin gene promoter in relation to Alzheimer’s disease. BMC Medical Genomics 15(1):262. https://doi.org/10.1186/s12920-022-01420-8.
Local Contexts. n.d. Grounding Indigenous rights. https://localcontexts.org (accessed August 4, 2023).
Mackey, T. K., A. J. Calac, B. S. Chenna Keshava, J. Yracheta, K. S. Tsosie, and K. Fox. 2022. Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data. Cell 185(15):2626-2631. https://doi.org/10.1016/j.cell.2022.06.030.
McCartney, A. M., M. A. Head, K. S. Tsosie, B. Sterner, J. R. Glass, S. Paez, J. Geary, and M. Hudson. 2023. Indigenous peoples and local communities as partners in the sequencing of global eukaryotic biodiversity. NPJ Biodiversity 2(1):1-12. https://doi.org/10.1038/s44185-023-00013-7.
MDL. 2017. NotPetya Ransomware disrupts Merck vaccine production. Cybersecurity. University of Hawai’i–West O’ahu. https://westoahu.hawaii.edu/cyber/regional/gceus-news/notpetya-ransomware-disrupts-merck-vaccine-production (accessed August 4, 2023).
NASEM and NAM (National Academies of Sciences, Engineering, and Medicine and National Academy of Medicine). 2023. Toward equitable innovation in health and medicine: A framework. Washington, DC: The National Academies Press. https://doi.org/10.17226/27184.
National Institute of Standards and Technology. n.d. Cybersecurity. Computer Security Resource Center. U.S. Department of Commerce. https://csrc.nist.gov/glossary/term/cybersecurity (accessed August 4, 2023).
Native BioData Consortium. n.d. https://nativebio.org (accessed August 4, 2023).
NIH (National Institutes of Health). n.d. 2023 NIH Data Management and Sharing Policy. https://oir.nih.gov/sourcebook/intramural-program-oversight/intramural-data-sharing/2023-nih-data-management-sharing-policy (accessed August 3, 2023).
NITI Aayog (National Institution for Transforming India). 2020. Data empowerment and protection architecture: Draft for discussion. https://www.niti.gov.in/sites/default/files/2020-09/DEPA-Book.pdf (accessed January 22, 2024).
Osborne, C. 2021. Oxford University lab with COVID-19 research links targeted by hackers. ZDNET. https://www.zdnet.com/article/oxford-university-biochemical-lab-involved-in-covid-19-research-targeted-by-hackers (accessed August 4, 2023).
Pain, E. 2016. French institute agrees to share patent benefits after biopiracy accusations. Science. February 10, 2016. https://www.science.org/content/article/french-institute-agrees-share-patent-benefits-after-biopiracy-accusations (accessed August 4, 2023).
PHA4GE (Public Health Alliance for Genomic Epidemiology). n.d. https://pha4ge.org (accessed July 2, 2021).
Puttaswamy, J. K. S. n.d. In the Supreme Court of India Civil Original Jurisdiction. https://www.humandignitytrust.org/wp-content/uploads/resources/Puttaswamy-v.Union-of-India-full-judgment.pdf (accessed on February 13, 2024).
Re3data.org (Registry of Research Data Repositories). n.d. GISAID. https://doi.org/10.17616/R3Q59F (accessed January 22, 2024).
Ryabushkina, N. A., S. Abugalieva, and Y. Turuspekov. 2016. [Problems of study and conservation of flora biodiversity in Kazakhstan] ПРOБЛЕМА ИЗУЧЕНИЯ И COXРАНЕНИЯ БИOРАЗНOOБРАЗИЯ ФЛOРЫ КАЗАХСТАНА. Eurasian Journal of Biotechnology 3(July):13-23. https://doi.org/10.11134/btp.3.2016.2.
Tedersoo, L., R. Küngas, E. Oras, K. Köster, H. Eenmaa, A. Leijen, M. Pedaste, M. Raju, A. Astapova, h. Lukner, K. Kogermann, and T. Sepp. 2021. Data sharing practices and data availability upon request differ across scientific disciplines. Scientific Data 8(1):192. https://doi.org/10.1038/s41597-021-00981-0.
UNESCO (United Nations Educational, Scientific and Cultural Organization). 2017. Recommendation on Science and Scientific Researchers. https://www.unesco.org/en/legal-affairs/recommendation-science-and-scientific-researchers (accessed August 3, 2023).
UNESCO. 2023. UNESCO recommendation on open science. https://www.unesco.org/en/open-science/about (accessed August 3, 2023).
Vos, T., S. S. Lim, C. Abbafati, K. M. Abbas, M. Abbasi, and the GBD 2019 Diseases and Injuries Collaborators. 2020. Global burden of 369 diseases and injuries in 204 countries and territories, 1990–2019: A systematic analysis for the Global Burden of Disease Study 2019. The Lancet 396(10258):1204-1222. https://doi.org/10.1016/S01406736(20)30925-9.
WHO (World Health Organization). 2010. Responsible life sciences research for global health security: A guidance document. https://www.ncbi.nlm.nih.gov/books/NBK305040 (accessed January 22, 2024).
WHO. 2022a. Global guidance framework for the responsible use of the life sciences: Mitigating biorisks and governing dual-use research. https://www.who.int/publicationsdetail-redirect/9789240056107 (accessed August 4, 2023).
WHO. 2022b. Sharing and reuse of health-related data for research purposes: WHO policy and implementation guidance. https://www.who.int/publications-detail-redirect/9789240044968 (accessed August 3, 2023).
Zhunussova, G., G. Afonin, S. Abdikerim, A. Jumanov, A. Perfilyeva, D. Kaidarova, and L. Djansugurova. 2019. Mutation spectrum of cancer-associated genes in patients with early onset of colorectal cancer. Frontiers in Oncology 9(August):673. https://doi.org/10.3389/fonc.2019.00673.
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