Privacy Issues in Biomedical and Clinical Research (1998)

Chapter: Appendix B: Agenda

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Suggested Citation: "Appendix B: Agenda." National Research Council. 1998. Privacy Issues in Biomedical and Clinical Research. Washington, DC: The National Academies Press. doi: 10.17226/6326.
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Appendix B Agenda

7:30 am

Light Breakfast

8:00

Welcome

Ray White, Ph.D. University of Utah, Salt Lake City

8:15

Panel One: Public Concerns About the Use of Genetic Information

Vicky Whittemore, Ph.D. National Tuberous Sclerosis Association & Alliance Genetic Support Group

Paul Billings, M.D. Veterans Administration Hospital, Grand Prairie, Texas

8:45

Discussion

9:15

Coffee Break

9:30

Panel Two: Current Safeguards Used to Maintain Privacy in Genetic Research

Leo Whelan, JD Mayo Clinic - IRB Member

Sherri Bale, Ph.D. NIAMS, NIH - IRB Member for CDC

Pieter de Jong, Ph.D. Roswell Park Cancer Institute, Buffalo, NY
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Suggested Citation: "Appendix B: Agenda." National Research Council. 1998. Privacy Issues in Biomedical and Clinical Research. Washington, DC: The National Academies Press. doi: 10.17226/6326.
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10:00

Discussion

10:30

Panel Three: Informed Consent and Research

Sue Rose, Ph.D. Department of Energy

Gene Carstea, Ph.D. Saint Mary's Medical Center, Grand Junction, CO

Barbara Handelin, Ph.D. Handelin Associates

11:00

Discussion

11:30

Working Lunch

12:15

Current Legislation Related to Genetic Research

Irene Stith-Coleman Congressional Research Service, Washington, D.C.

12:30

Discussion

12:45

Panel Four: Researcher Concerns About Restrictions on Genetic Research

Ray White, Ph.D. University of Utah, Salt Lake City

David Korn, M.D. Stanford University and Senior Vice President, AAMC

Eleanor Kerr SmithKline Beecham

1:15

Discussion

1:45

Wrap up

2:00

Adjourn
Page 33 Cite Bookmark
Suggested Citation: "Appendix B: Agenda." National Research Council. 1998. Privacy Issues in Biomedical and Clinical Research. Washington, DC: The National Academies Press. doi: 10.17226/6326.
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Page 33
Page 34 Cite Bookmark
Suggested Citation: "Appendix B: Agenda." National Research Council. 1998. Privacy Issues in Biomedical and Clinical Research. Washington, DC: The National Academies Press. doi: 10.17226/6326.
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Page 34
Next Chapter: Appendix C: A Comment by Frederick R. Anderson
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