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Strategies and Interventions to Strengthen Support for Family Caregiving and to Alleviate Caregiver Burden: A Workshop

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A committee-supported project or activity that has been completed and for which output dissemination has begun. Its committee has been disbanded and closeout procedures are underway.

This workshop will discuss evidence-based interventions and strategies that effectively address the physical, mental, and financial challenges of caregiving. The 1.5 day workshop will take place June 5 – 6, 2025 in Washington, DC. Registrants may attend all sessions in-person or virtually.

Description

A National Academies of Sciences, Engineering, and Medicine planning committee will organize a 1.5-day public workshop that will examine evidence-based interventions and strategies that effectively address the physical, mental, and financial burdens of caregiving for cancer and other serious illnesses, with an emphasis on the role of palliative care. The workshop will feature invited presentations and panel discussions to explore the following topics:

  • Strategies and interventions to address the range of challenges associated with caregiving: psychological, emotional, physical, and financial/economic burden, including increased risk of suicide among caregivers
  • The critical role of palliative care in interventions to ease caregiver burden
  • Special needs of different caregiver populations (e.g., children, older adults)
  • Ways to scale and spread successful programs and interventions
  • Policy opportunities to support family caregivers, including employer/workplace-based policies and programs

The planning committee will develop the agenda for the workshop sessions, select and invite speakers and discussants, and moderate the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

Collaborators

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Sponsors

American Academy Of Hospice And Palliative Medicine

American Association for Cancer Research

American Cancer Society

American Geriatrics Society

Association of Professional Chaplains

Blue Cross Blue Shield Association

Blue Cross Blue Shield of Massachusetts

Cambia Health Foundation

Catholic Health Association

Cedars-Sinai Health System

Center to Advance Palliative Care

Centers for Disease Control and Prevention

Coalition to Transform Advanced Care

Department of Health and Human Services

Flatiron Health

Hospice and Palliative Nurses Association

Memorial Sloan Kettering Cancer Center

Merck

National Association of Social Workers

National Coalition for Hospice and Palliative Care

National Comprehensive Cancer Network

National Hospice and Palliative Care Organization

National Institutes of Health

National Palliative Care Research Center

National Patient Advocate Foundation

Novartis Oncology

Oncology Nursing Society

Partners In Health

Patient-Centered Outcomes Research Institute

Pfizer Inc.

The California State University Shiley Haynes Institute for Palliative Care

The John A. Hartford Foundation

The Sheri and Les Biller Family Foundation

The Society of Pain and Palliative Care Pharmacists

Staff

Rebecca English

Lead

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