Forecasting Costs for Preserving, Archiving, and Promoting Access to Biomedical Data

Webinar

Forecasting Data Costs for Storage Providers: Webinar on Biomedical Data Preservation

August 27, 2020

12:00 PM - 1:00 PM (ET)

Past

Materials

Webinar Slides - Forecasting Costs for Data Storage Providers

About

Aug 27, 12-1pm EDT: Data Storage Providers

Speakers discussed how scientific data repositories and program managers can help make data more discoverable, aid in the development and adoption of data and metadata standardization and best practices, and help users better understand their storage options.

Moderator: Ilkay Altintas (UCSD)
Speaker 1: Clifford Lynch (Calition for Networked Information)
Speaker 2: Brian Nosek (Center for Open Science)
Speaker 3: Alex Ropelewski (Brain Image Library)

Preserving and promoting access to data from biomedical research accelerates scientific discovery and improves health outcomes. In order to plan for the disposition of these increasingly complex data sets, researchers and data archivists need to be able to accurately budget for the costs associated with long-term data curation.
Our recent report, Life Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs, examines approaches for forecasting costs for preserving, archiving, and promoting access to biomedical research data. This report provides a comprehensive conceptual framework for cost-effective decision making that encourages data accessibility and reuse for researchers, data managers, data scientists, and institutions that support platforms that enable biomedical research data preservation, discoverability, and use.
This webinar series will focus on approaches for research communities, funding organizations, and data storage Providers. Discussions will focus on biomedical research but will be applicable to the broader scientific enterprise.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Contact us

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Webinar

Forecasting Data Costs for Funders: Webinar on Biomedical Data Preservation

August 20, 2020

12:00 PM - 1:00 PM (ET)

Past

Materials

Webinar Slides - Forecasting Biomedical Data Costs for Funders

About

Aug 20, 12-1pm EDT: Funding Organizations
Speakers addressed how research funders can encourage and foster sustainable data management practices. (view recording)

Moderator: Margaret Levenstein (University of Michigan)
Speaker 1: Alexa McCray (Harvard Medical School)
Speaker 2: Amy Friedlander (National Science Foundation)
Speaker 3: Mike Lauer (National Institutes of Health)

Preserving and promoting access to data from biomedical research accelerates scientific discovery and improves health outcomes. In order to plan for the disposition of these increasingly complex data sets, researchers and data archivists need to be able to accurately budget for the costs associated with long-term data curation.
Our recent report, Life Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs, examines approaches for forecasting costs for preserving, archiving, and promoting access to biomedical research data. This report provides a comprehensive conceptual framework for cost-effective decision making that encourages data accessibility and reuse for researchers, data managers, data scientists, and institutions that support platforms that enable biomedical research data preservation, discoverability, and use.
This webinar series will focus on approaches for research communities, funding organizations, and data storage Providers. Discussions will focus on biomedical research but will be applicable to the broader scientific enterprise.?

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Contact us

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Webinar

Forecasting Data Costs for Researchers: Webinar on Biomedical Data Preservation

August 13, 2020

12:00 PM - 1:00 PM (ET)

Past

Materials

Webinar Slides - Forecasting Data Costs for Biomedical Researchers

About

Aug 13, 12-1pm EDT: Researchers
Speakers discussed how researchers can plan for the life cycle of their data and how to create an environment conducive to cost forecasting of sustainable data management.

Moderator: Lars Vilhuber (Cornell)
Speaker 1: Maryann Martone (UCSD)
Speaker 2: Lance Waller (Emory University)
Speaker 3: Robert Williams (University of Tennessee)

Preserving and promoting access to data from biomedical research accelerates scientific discovery and improves health outcomes. In order to plan for the disposition of these increasingly complex data sets, researchers and data archivists need to be able to accurately budget for the costs associated with long-term data curation.
Our recent report, Life Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs, examines approaches for forecasting costs for preserving, archiving, and promoting access to biomedical research data. This report provides a comprehensive conceptual framework for cost-effective decision making that encourages data accessibility and reuse for researchers, data managers, data scientists, and institutions that support platforms that enable biomedical research data preservation, discoverability, and use.
This webinar series will focus on approaches for research communities, funding organizations, and data storage Providers. Discussions will focus on biomedical research but will be applicable to the broader scientific enterprise.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Contact us

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Webinar

Public Briefing Webinar: Forecasting Costs for Biomedical Data Preservation

July 20, 2020

2:00 PM - 3:00 PM (ET)

Past

Materials

Public Briefing Slides

About

Join the National Academies of Science, Engineering, and Medicine for a public briefing webinar about our recent report on life cycle decisions for biomedical research data.

About this Event

Preserving and promoting access to data from biomedical research accelerates scientific discovery and improves health outcomes. In order to plan for the disposition of these increasingly complex data sets, researchers and data archivists need to be able to accurately budget for the costs associated with long-term data curation.

Our recent report, Life Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs, examines approaches for forecasting costs for preserving, archiving, and promoting access to biomedical research data. This report provides a comprehensive conceptual framework for cost-effective decision making that encourages data accessibility and reuse for researchers, data managers, data scientists, and institutions that support platforms that enable biomedical research data preservation, discoverability, and use.

Learn more about the report by joining us for a public briefing webinar on July 20, 2020 from 2-3pm ET. During the webinar, members of the committee will discuss the key findings and conceptual framework presented in the report, followed by a Q&A session with the audience.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Contact us

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Webcast

Forecasting Costs for Preserving, Archiving, and Promoting Access to Biomedical Data (Site Visits Recap)

December 4, 2019

2:00 PM - 3:30 PM (ET)

Past

About

National Academies' staff and study committee members will give a summary of site visits to San Diego, CA; Washington, DC; Boston, MA; and Seattle, WA.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Tyler Kloefkorn

(202) 334-1929
tkloefkorn@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Site visit to Amazon Web Services, Institute for Systems Biology, Allen Institute, and Fred Hutchinson Cancer Research Center

October 23 - 25, 2019

Past

About

This site visit will explore economic considerations and possible disruptors for future data storage, archiving, and preservation.

Anyone who would like to observe must contact Tyler Kloefkorn by October 14th in order to request site access.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Tyler Kloefkorn

(202) 334-1929
tkloefkorn@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Site visit at the Dana-Farber Cancer Institute, Harvard University, and Broad Institute.

September 25 - 26, 2019

Past

About

This site visit will explore data needs, challenges, and opportunities through a series of discussions with diverse biomedical researchers.

Anyone who would like to observe must contact Tyler Kloefkorn by September 16th in order to request site access.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Tyler Kloefkorn

(202) 334-1929
tkloefkorn@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Site visit to the National Institutes of Health

September 18 - 19, 2019

Past

About

Discussions with NIH staff about forecasting biomedical data costs and community-specific considerations.

Anyone who would like to observe must contact Tyler Kloefkorn by September 9th in order to request site access.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Tyler Kloefkorn

(202) 334-1929
tkloefkorn@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Site visit at the National Center for Microscopy and Imaging Research and the UCSD/SDSC Advanced Cyber-Infrastructure Development Lab

September 11 - 12, 2019

Past

About

This site visit will explore topics such as the current pipeline and challenges for making data from your user community accessible and resusable, data integration tools, anticipated research needs, emerging data standards, and challenges/opportunities with managing a public data resources.

Anyone who would like to observe must contact Tyler Kloefkorn by September 3rd in order to request site access.

Additional Information

Is it a Closed Session event?

Not Closed

Contact

Tyler Kloefkorn

(202) 334-1929
tkloefkorn@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Committee Meeting #5: Forecasting Costs for Preserving, Archiving, and Promoting Access to Biomedical Data

October 29 - 30, 2019

Past

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

David Chu, Michelle Meyer, David Maier, Maryann Martone, G. Sayeed Choudhury, Clifford Lynch, Alexa McCray, William Stead, Lars Vilhuber (remotely)

The following topics were discussed in the closed sessions:

The committee discussed the report organization and content, and discussed strategies for completion.

The following materials (written documents) were made available to the committee in the closed sessions:

No written documents were made available to the committee during closed session.

Date of posting of Closed Session Summary:

November 05, 2019

Contact

Contact us

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Closed

Committee Meeting #4: Forecasting Costs for Preserving, Archiving, and Promoting Access to Biomedical Data

September 17 - 18, 2019

Past

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

David Chu, Alexa McCray, William Stead, David Maier, Clifford Lynch, Lars Vilhuber, Michelle Meyer, Maggie Levenstein, Maryann Martone, Ilkay Altintas

The following topics were discussed in the closed sessions:

Committee members provided a summary of San Diego site visits, and discussed factors about the value of data, and deliberated on the final report contents and organization.

The following materials (written documents) were made available to the committee in the closed sessions:

No written materials were made available to the committee in closed session.

Date of posting of Closed Session Summary:

November 05, 2019

Contact

Sammantha Magsino

(202) 334-3039
smagsino@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting

Committee Meeting #3: Forecasting Costs for Preserving, Archiving, and Promoting Access to Biomedical Data

May 6 - 7, 2019

Past

Agenda

Download the Agenda

About

Committee on Forecasting Costs for Preserving, Archiving, and Promoting Access to Biomedical Data

Board on Mathematical Sciences and Analytics

National Academies of Sciences, Engineering, and Medicine

May 6-7, 2019

Keck Center of the National Academy of Sciences, Engineering, and Medicine

500 5th Street NW

Washington, DC 20001

Room 106

DRAFT Agenda

Day 1 May 6, 2019

8:30 am –10:00 am

CLOSED SESSION—Committee and NAS Staff Only

10:00 am – 11:45 am

OPEN SESSION DISCUSSION—DIGITAL DATA ARCHIVING DISRUPTORS

10:00 Welcome, introductions, and statement of meeting objectives

David Chu, Committee Chair

10:05 Disruptors in Digital Archiving: Presentation from the U.S. National Archives

Leslie Johnston, Director of Digital Preservation, U.S. National Archives

Prompting Questions:

What models do you use to budget for data preservation?
How do you factor in unexpected cost or budget allocation fluctuations related to data preservation?
What disruptors have affected appraisal/reappraisal and redaction decisions, how?
How have those disruptions affected decisions regarding preservation of existing data? Planning for future data?
If you employ a cloud-based strategy, what happens if a cloud vendor’s services are no longer available?
How do you think about format obsolescence?

Questions and discussion

11:05 Disruptors in the Cloud

Vamshidhar Kommineni, Principal Project Manager, Azure Blob Storage, Microsoft

Prompting questions:

What changes in technologies, data volumes & types, and data uses might appear in the next 5-10-25 years that would be disruptive to cost models and risk assessment for data preservation, archiving and access?
How do you forecast total cost of ownership of a cloud-based archive based archive over a 5-year life span? Over 10 years?
What specific steps does your organization take to prepare for any of these eventualities?

12:05 Lunch—available for purchase in the refectory

1:00 Indicators of data management costs at CERN

Simone Campana, Deputy Project Leader of the Worldwide Computing Grid

Prompting questions:

How does CERN determine what the lifespan of data saved?
CERN has long time lines and the data generating rate is reported to be 25 PetaB/year. How does CERN plan for storage costs? What is CERN's idea of a planning tool?
Zenodo - a general-purpose open-access repository - is run "as a marginal activity" - What does that imply for cost forecasting (e.g., how can CERN assume that it remains marginal)?
How has the archival infrastructure evolved at CERN? How do they expect it to evolve? How open is CERN about its forecasting assumptions?

1:40 Open session adjourns

Additional Information

Is it a Closed Session event?

Partially Closed

The following committee members were present at the closed sessions of the event

David Chu, Margaret Levenstein, David Maier, Alexa McCray, Lars Vilhuber, Clifford Lynch, Michelle Meyer, and William Stead (remotely).

The following topics were discussed in the closed sessions:

The committee discussed current drafts of its report and deliberated on report contents.

The following materials (written documents) were made available to the committee in the closed sessions:

No written documents were made available to the committee during closed session.

Date of posting of Closed Session Summary:

November 05, 2019

Contact

Selam Araia

(202) 334-1923
saraia@nas.edu

Location

Keck Center

500 5th St NW

Washington DC 20001, USA

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting

Committee Meeting #2: Forecasting Costs for Preserving, Archiving, and Promoting Access to Biomedical Data

March 12 - 13, 2019

Past

Agenda

Download the Agenda

Additional Information

Is it a Closed Session event?

Partially Closed

The following committee members were present at the closed sessions of the event

David Chu, G. Sayeed Choudhury, Maria Giovanni, David Maier (remotely), Charles Manski, Maryann Martone, Alexa McCray, Michelle Meyer, Bill Stead, Lars Vilhuber

The following topics were discussed in the closed sessions:

Organization of the committee's report, fundamentals of the framework to be recommended, information gathering, future meetings, and workshop planning.

The following materials (written documents) were made available to the committee in the closed sessions:

No materials were made available to the committee in closed session.

Date of posting of Closed Session Summary:

March 25, 2019

Contact

Selam Araia

(202) 334-1923
saira@nas.edu

Location

Keck Center

500 5th St NW

Washington DC 20001, USA

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting

Committee Meeting #1: Forecasting Costs for Preserving, Archiving, and Promoting Access to Biomedical Data

February 27 - 28, 2019

Past

Agenda

Download the Agenda

Additional Information

Is it a Closed Session event?

Partially Closed

The following committee members were present at the closed sessions of the event

All committee members were present for closed sessions (Giovanni and Vilhuber participated remotely).

The following topics were discussed in the closed sessions:

The committee held its bias and composition discussion led by Michelle Schwalbe. Other topics included:
Potential use cases for cost estimation framework
Lifecycle of data
Conceptual workflow models
Future meeting planning and information gathering strategies

The following materials (written documents) were made available to the committee in the closed sessions:

No written materials were made available to the committee during closed session.

Date of posting of Closed Session Summary:

March 04, 2019

Contact

Selam Araia

(202) 334-1923
saraia@nas.edu

Location

National Academy of Sciences Building

2101 Constitution Ave NW

Washington DC 20418, USA

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

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Forecasting Costs for Preserving, Archiving, and Promoting Access to Biomedical Data

Dropdown items

Forecasting Data Costs for Storage Providers: Webinar on Biomedical Data Preservation

Forecasting Data Costs for Funders: Webinar on Biomedical Data Preservation

Forecasting Data Costs for Researchers: Webinar on Biomedical Data Preservation

Public Briefing Webinar: Forecasting Costs for Biomedical Data Preservation