Completed
On December 15, 2016, the Roundtable on Quality Care for People with Serious Illness hosted a public workshop examining the challenges and opportunities associated with identifying and integrating the voice of seriously ill patients of all ages and their caregivers into person-centered care throughout the continuum of care.
Featured publication
Workshop
·2017
Millions of people—infants, children, adults, and their families—are currently coping with serious illness in the United States. Efforts are intensifying to improve overall care quality through the delivery of person-centered and family-oriented services, for patients of all ages and across disease...
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Description
An ad hoc committee will plan, organize, and host a one-day public workshop to examine issues pertaining to integrating the voice of patient and family caregivers into the delivery of care for people of all ages with serious illness.
The workshop will feature invited presentations and panel discussions on topics that may include:
• Examination of the current challenges and needs related to integrating the patient and caregiver voice into serious illness care
• Shared decision-making in the context of serious illness care
• Ways to enhance patient knowledge and understanding of treatment options
• Ways to facilitate and support engagement of the patient and family caregivers in the
decisions regarding serious illness care
• Evidence gaps and challenges that may impede the integration of patient and family preferences into serious illness care, and opportunities to address them
• Disparities in care related to social determinants of health including factors such as age, race, ethnicity, socioeconomic status, and geography
• Unique needs of pediatric patients and families
The planning committee will develop the agenda for the workshop, select speakers and discussants, and moderate the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
Collaborators
Sponsors
Aetna (different from the Aetna Foundation)
Altarum Institute
American Academy Of Hospice And Palliative Medicine
American Cancer Society
American Geriatrics Society
Anthem
Ascension Health
Association of Professional Chaplains
Association of Rehabilitation Nurses
Blue Cross and Blue Shield of North Carolina
Blue Cross Blue Shield Association
Blue Cross Blue Shield of Massachusetts
Bristol Myers Squibb
California state university institute for palliative care
Cambia Health Solutions
Cedars-Sinai Health System
Center to Advance Palliative Care
Centers for Medicare & Medicaid Services
Coalition to Transform Advanced Care
Excellus BlueCross BlueShield
Federation of American Hospitals
Gordon and Betty Moore Foundation
Hospice and Palliative Nurses Association
Kaiser Permanente
National Academy of Medicine
National Coalition for Hospice and Palliative Care
National Hospice and Palliative Care Organization
National Palliative Care Research Center
National Patient Advocate Foundation
National Quality Forum
New York Academy of Medicine
Oncology Nursing Society
Patient-Centered Outcomes Research Institute
Social Work Hospice and Palliative Care Network
Supportive Care Coalition
Susan G. Komen
The Greenwall Foundation
The John A. Hartford Foundation
Staff
Laurene Graig
Lead
Major units and sub-units
Health and Medicine Division
Lead
Board on Health Care Services
Lead
Board on Health Sciences Policy
Lead