Skip to main content
Our Work

Selected Heritable Disorders of Connective Tissue and Disability

Completed

Topics

The U.S. Social Security Administration has requested the National Academies of Sciences, Engineering, and Medicine establish an ad hoc committee to review certain heritable conditions related to connective tissues, including but not necessarily limited to Ehlers-Danlos syndrome and Marfan syndrome. The Committee will use published evidence and professional experience to develop a report that will examine the diagnosis, treatment, and prognosis of the selected conditions, as well as levels of associated functional limitation, in adults and children in the U.S. population.

About Past Events
Meetings

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #6

  • January 27 - 28, 2022
  • Closed
  • Meeting
  • Past

The Committee on Selected Heritable Connective Tissue Disorders and Disability will hold a virtual meeting that will be closed to the public on Thursday, January 27 through Friday, January 28, 2022. I...

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #5

  • December 10, 2021
  • 12:00 AM - 12:00 AM (EST)
  • Closed
  • Meeting
  • Past

The Committee on Selected Heritable Connective Tissue Disorders will hold a virtual, closed session meeting on December 10, 2021.

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #4

  • October 7 - 8, 2021
  • Closed
  • Meeting
  • Past

The Committee on Selected Heritable Connective Tissue Disorders will hold a virtual closed session meeting on October 7, 2021, and October 8, 2021.

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #3

  • July 9, 2021
  • 12:00 AM - 12:00 AM (EDT)
  • Meeting
  • Past

The Committee on Selected Heritable Connective Tissue Disorders and Disability will hold a virtual meeting on Friday, July 9, 2021. A portion of this meeting will be open to the public from 10:15 a.m....

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #2

  • May 11, 2021
  • 12:00 AM - 12:00 AM (EDT)
  • Meeting
  • Past

On May 11, 2021 the Committee on Selected Heritable Connective Tissue Disorders and Disability will hold a meeting partially open to the public. If you would like more information, including the Zoom...
Subscribe to Email from the National Academies
Keep up with all of the activities, publications, and events by subscribing to free updates by email.