Selected Heritable Disorders of Connective Tissue and Disability

Meeting Closed

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #6

January 27 - 28, 2022

Past

About

The Committee on Selected Heritable Connective Tissue Disorders and Disability will hold a virtual meeting that will be closed to the public on Thursday, January 27 through Friday, January 28, 2022. If you have any questions, please contact Torrie Brown (vbrown@nas.edu).

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

1. Paul Volberding
2. Rebecca Bascom
3. Adam Bitterman
4. Antonio Bulbena-Vilarrasa
5. Pradeep Chopra
6. Clair Francomano
7. Walter Frontera
8. Petra Klinge
9. Barbara Kornblau
10. Deborah Krakow
11. Anne Maitland
12. Leslie Russek
13. Eric Singman

The following topics were discussed in the closed sessions:

- Review and edits to draft report
- Remaining tasks and schedule

The following materials (written documents) were made available to the committee in the closed sessions:

- Draft report

Date of posting of Closed Session Summary:

February 03, 2022

Contact

Torrie Brown

vbrown@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #5

December 10, 2021

12:00 AM - 12:00 AM (EST)

Past

About

The Committee on Selected Heritable Connective Tissue Disorders will hold a virtual, closed session meeting on December 10, 2021.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

1. Paul Volberding
2. Rebecca Bascom
3. Adam Bitterman
4. Antonio Bulbena-Vilarrasa
5. Clair Francomano
6. Walter Frontera
7. Petra Klinge
8. Barbara Kornblau
9. Deborah Krakow
10. Cheryl Maier
11. Anne Maitland
12. Reed Pyeritz
13. Leslie Russek
14. Eric Singman

The following topics were discussed in the closed sessions:

- Review and editing of draft report
- Interim tasks and assignments
- Project timeline

The following materials (written documents) were made available to the committee in the closed sessions:

- Draft report

Date of posting of Closed Session Summary:

December 14, 2021

Contact

Torrie Brown

vbrown@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #4

October 7 - 8, 2021

Past

About

The Committee on Selected Heritable Connective Tissue Disorders will hold a virtual closed session meeting on October 7, 2021, and October 8, 2021.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

1. Paul Volberding
2. Rebecca Bascom
3. Adam Bitterman
4. Antonio Bulbena-Vilarrasa
5. Pradeep Chopra
6. Clair Francomano
7. Walter Frontera
8. Petra Klinge
9. Barbara Kornblau
10. Deborah Krakow
11. Cheryl Maier
12. Anne Maitland
13. Reed Pyeritz
14. Leslie Russek
15. Eric Singman

The following topics were discussed in the closed sessions:

- Draft report
- Draft findings and conclusions
- Schedule for assignments

The following materials (written documents) were made available to the committee in the closed sessions:

- Agenda and briefing book

Date of posting of Closed Session Summary:

October 11, 2021

Contact

Torrie Brown

vbrown@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #3

July 9, 2021

12:00 AM - 12:00 AM (EDT)

Past

Agenda

Download the Agenda

About

The Committee on Selected Heritable Connective Tissue Disorders and Disability will hold a virtual meeting on Friday, July 9, 2021. A portion of this meeting will be open to the public from 10:15 a.m. to 11:15 a.m. EDT. If you are interested in attending, please contact Torrie Brown (vbrown@nas.edu) to receive the connection details.

Additional Information

Is it a Closed Session event?

Partially Closed

The following committee members were present at the closed sessions of the event

1. Paul Volberding
2. Rebecca Bascom
3. Adam Bitterman
4. Antonio Bulbena-Vilarrasa
5. Pradeep Chopra
6. Harry Dietz
7. Clair Francomano
8. Walter Frontera
9. Petra Klinge
10. Barbara Kornblau
11. Deborah Krakow
12. Cheryl Maier
13. Anne Maitland
14. Reed Pyeritz
15. Leslie Russek
16. Eric Singman

The following topics were discussed in the closed sessions:

- Draft tables
- Report outline and format
- Work groups and assignments

The following materials (written documents) were made available to the committee in the closed sessions:

- Briefing book
- Draft tables

Date of posting of Closed Session Summary:

July 19, 2021

Contact

Torrie Brown

vbrown@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #2

May 11, 2021

12:00 AM - 12:00 AM (EDT)

Past

Agenda

Download the Agenda

About

On May 11, 2021 the Committee on Selected Heritable Connective Tissue Disorders and Disability will hold a meeting partially open to the public. If you would like more information, including the Zoom connection details, please contact Torrie Brown at vbrown@nas.edu.

Additional Information

Is it a Closed Session event?

Partially Closed

The following committee members were present at the closed sessions of the event

1. Paul Volberding
2. Leslie Russek
3. Antonio Bulbena-Vilarrasa
4. Pradeep Chopra
5. Rebecca Bascom
6. Deborah Krakow
7. Cheryl Maier
8. Walter Frontera
9. Adam Bitterman
10. Clair Francomano
11. Barbara Kornblau
12. Eric Singman
13. Anne Maitland
14. Petra Klinge

The following topics were discussed in the closed sessions:

- Approach to the report
- Future work items

The following materials (written documents) were made available to the committee in the closed sessions:

- Briefing books
- Draft tables and explanation sheet

Date of posting of Closed Session Summary:

May 12, 2021

Contact

Torrie Brown

vbrown@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #1

March 19, 2021

12:00 AM - 12:00 AM (EDT)

Past

About

On March 19, 2021 the Committee on Selected Heritable Connective Tissue Disorders and Disability will hold a closed session meeting.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

1. Paul Volberding
2. Leslie Russek
3. Harry Dietz
4. Walter Frontera
5. Adam Bitterman
6. Antonio Bulbena-Vilarrasa
7. Pradeep Chopra
8. Cheryl Maier
9. Eric Singman
10. Clair Francomano
11. Deborah Krakow
12. Barbara Kornblau
13. Anne Maitland
14. Petra Klinge
15. Reed Pyeritz
16. Rebecca Bascom

The following topics were discussed in the closed sessions:

· Conflict and bias discussion
· Review of task objectives
· Discussion of research goals and questions
· Planning for second meeting

The following materials (written documents) were made available to the committee in the closed sessions:

· Briefing books

Date of posting of Closed Session Summary:

March 23, 2021

Contact

Torrie Brown

vbrown@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

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Selected Heritable Disorders of Connective Tissue and Disability

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Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #6

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #5

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #4

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #3

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #2

Committee on Selected Heritable Connective Tissue Disorders and Disability: Meeting #1