Person-centered clinical research can positively influence the outcomes of clinical research by providing a more accurate representation of real-world patient experiences. It addresses questions that are informed by patient experiences, needs, and perspectives, and involves patients in all stages of research, including design, activation, enrollment, data collection, completion, and outcome reporting. Although patient-reported outcome measures may offer potential benefits for clinical cancer research, challenges in the completeness, reliability, and validity of the data persist. This workshop examined opportunities to overcome these challenges to advance the conduct of innovative, person-centered clinical cancer research to improve outcomes for all patients.
Planning Committee
Gwen Darien, Patient Advocate Foundation (Co-Chair)
Lawrence Shulman, University of Pennsylvania (Co-Chair)
Gideon Blumenthal, Merck
Gail Eckhardt, Baylor College of Medicine
Roy Herbst, Yale University
Randy Jones, University of Virginia
Shivaani Kummar, Oregon Health & Science University
Larissa Nekhlyudov, Brigham & Women’s Hospital, Dana-Farber Cancer Institute, and Harvard Medical School
Megan O’Meara, Pfizer Oncology
Cleo Ryals, Flatiron Health
Richard Schilsky, University of Chicago
Ann Taylor, Former Chief Medical Officer, AstraZeneca
Robert Winn, Virginia Commonwealth University
Speakers
Gregory Abel, Dana-Farber Cancer Institute; Harvard Medical School
Arun Balakumaran, Pfizer Inc.
Ethan Basch, University of North Carolina at Chapel Hill
Monica Bertagnolli, Former Director, National Institutes of Health
Ruma Bhagat, Genentech
Vishal Bhatnagar, U.S Food and Drug Administration
Edgar Erwin Braendle, AVEO Oncology, an LG Chem company
Howard “Skip” Burris, Sarah Cannon Research Institute
Kristin Carman, Patient-Centered Outcomes Research Institute
Deborah Collyar, Patient Advocates In Research
Ricki Fairley, Touch: The Black Breast Cancer Alliance (BBCA)
Sarah Greene, Cancer Research Advocate
Chanita Hughes-Halbert, University of Southern California
Ji Im, CommonSpirit Health
Pat LoRusso, Yale University
Julia Maués, Guiding Researchers and Advocates to Scientific Partnerships (GRASP)
Susan Mazanec, Case Western Reserve
Lori Minasian, National Cancer Institute
Claire Piccinin, European Organisation for Research and Treatment of Cancer (EORTC)
Bryce Reeve, Duke University School of Medicine
Jeff Yorio, Texas Oncology