Skip to main content

Innovative Person-Centered Clinical Cancer Research: A Workshop

A senior couple meets with their doctor at the medical building.

Recently completed

On September 29-30, 2025, a planning committee of the National Academies of Sciences, Engineering, and Medicine hosted a 1.5-day public workshop that examined opportunities to advance the conduct of innovative, person-centered clinical cancer research.

Description

A planning committee of the National Academies of Sciences, Engineering, and Medicine will organize and host a 1.5-day public workshop that will examine opportunities to advance the conduct of innovative, person-centered clinical cancer research. The workshop will feature invited presentations and panel discussions on topics that may include:

  • Challenges in enabling clinical cancer research, and opportunities to enhance person-centeredness and innovation in clinical cancer research.
  • Strategies to embed person-centered principles across the design and conduct of clinical cancer research, including:
    • prioritization of research questions and outcomes that matter to patients,
    • inclusion of validated quality-of-life endpoints, and
    • patient involvement in the design and conduct of clinical studies, as well as reporting of study results.
  • Challenges and opportunities to routinely collect, report, and act on patient-reported outcome measures in clinical cancer research.
  • Ways to support the oversight and regulation of novel person-centered clinical research methods.
  • Opportunities to expand availability of clinical cancer research to patients, especially in community settings of care.

The planning committee will develop the agenda for the workshop sessions, select and invite speakers and discussants, and moderate the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

Contributors

Sponsors

American Association for Cancer Research

American Cancer Society

American College of Radiology

American Society of Clinical Oncology

Association of American Cancer Institutes

Association of Community Cancer Centers

Bristol Myers Squibb

Cancer Support Community

Centers for Disease Control and Prevention

Flatiron Health

Merck

National Cancer Institute

National Comprehensive Cancer Network

National Institutes of Health

Novartis Oncology

Oncology Nursing Society

Partners In Health

Patient Advocate Foundation

Pfizer Inc.

Sanofi

Society for Immunotherapy of Cancer

Staff

Francis Amankwah

Lead

Sharyl Nass

Lead

Jennifer Zhu

Makeda Haughton

Anna Adler

Subscribe to Email from the National Academies
Keep up with all of the activities, publications, and events by subscribing to free updates by email.