Recently completed
On September 29-30, 2025, a planning committee of the National Academies of Sciences, Engineering, and Medicine hosted a 1.5-day public workshop that examined opportunities to advance the conduct of innovative, person-centered clinical cancer research.
Description
A planning committee of the National Academies of Sciences, Engineering, and Medicine will organize and host a 1.5-day public workshop that will examine opportunities to advance the conduct of innovative, person-centered clinical cancer research. The workshop will feature invited presentations and panel discussions on topics that may include:
- Challenges in enabling clinical cancer research, and opportunities to enhance person-centeredness and innovation in clinical cancer research.
- Strategies to embed person-centered principles across the design and conduct of clinical cancer research, including:
- prioritization of research questions and outcomes that matter to patients,
- inclusion of validated quality-of-life endpoints, and
- patient involvement in the design and conduct of clinical studies, as well as reporting of study results.
- Challenges and opportunities to routinely collect, report, and act on patient-reported outcome measures in clinical cancer research.
- Ways to support the oversight and regulation of novel person-centered clinical research methods.
- Opportunities to expand availability of clinical cancer research to patients, especially in community settings of care.
The planning committee will develop the agenda for the workshop sessions, select and invite speakers and discussants, and moderate the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
Contributors
Sponsors
American Association for Cancer Research
American Cancer Society
American College of Radiology
American Society of Clinical Oncology
Association of American Cancer Institutes
Association of Community Cancer Centers
Bristol Myers Squibb
Cancer Support Community
Centers for Disease Control and Prevention
Flatiron Health
Merck
National Cancer Institute
National Comprehensive Cancer Network
National Institutes of Health
Novartis Oncology
Oncology Nursing Society
Partners In Health
Patient Advocate Foundation
Pfizer Inc.
Sanofi
Society for Immunotherapy of Cancer
Staff
Francis Amankwah
Lead
Sharyl Nass
Lead
Jennifer Zhu
Makeda Haughton
Anna Adler