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The undertaking of research in human participants often includes development of clinical laboratory test results associated with an individual research participant. Depending in part on the specified arrangement for sharing individual research results laid out in the informed consent document, the results of laboratory tests conducted in the context of research may or may not be shared with the individual.
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Returning Individual Research Results to Participants: Guidance for a New Research Paradigm
Consensus Study Report
·2018
When is it appropriate to return individual research results to participants? The immense interest in this question has been fostered by the growing movement toward greater transparency and participant engagement in the research enterprise. Yet, the risks of returning individual research results—suc...
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