The National Coalition for Cancer Survivorship and the National Cancer Policy Forum hosted a public workshop addressing patient-centered cancer treatment planning. Discussions of the cancer care planning process are often broken down into silos that fail to bring to light the holistic approach necessary for coordinated, comprehensive cancer care. While previous Institute of Medicine (IOM) work has focused on the challenges of care planning for individuals who have completed their treatment (sometimes referred to as follow-up or survivorship care planning), this workshop focused on cancer treatment planning for newly diagnosed cancer patients.
The workshop agenda reflected the need to integrate the patient perspective in cancer treatment planning and highlighted some best practices in care planning that are currently being utilized by a number of practitioners. The workshop included an overview of patient-centered care and cancer treatment planning, as well as sessions on shared decision making, communication in the cancer care setting, and patient experiences with cancer treatment. Models of treatment planning and tools to facilitate its use was also discussed. Workshop presentations and discussions examined changes in oncology practice that could promote patient-centeredness by having patients better understand the goals of treatment through a shared decision-making process with their health care team from the moment of diagnosis onward.
Confirmed speakers:
• Anthony L. Back, M.D., University of Washington
• Marie Bakitas, D.N.Sc., APRN, AOCN, FAAN, Dartmouth-Hitchcock Norris Cotton Cancer Center
• Richard Boyajian, RN, MS, ANP, Dana-Farber Cancer Institute
• Linda Burhansstipanov, MSPH, DrPH, Native American Cancer Research Corporation
• Carolyn Clancy, M.D., Agency for Healthcare Research and Quality
• Elizabeth Clark, Ph.D., ACSW, M.P.H., National Association of Social Workers
• Robert L. Erwin, MS, Marti Nelson Cancer Foundation
• Angelina Esparza, R.N., M.P.H., American Cancer Society
• Robert Erwin, M.S., Marti Nelson Cancer Foundation
• Patricia Ganz, M.D., University of California, Los Angeles
• Mark Gorman, National Coalition for Cancer Survivorship
• Elizabeth Goss, J.D., Turner & Goss LLP
• Sheldon Greenfield, M.D., University of California, Irvine
• Jessie Gruman, Ph.D., Center for Advancing Health
• Russell Hoverman, M.D., Ph.D., US Oncology
• Sherrie Kaplan, Ph.D., M.P.H., University of California, Irvine
• Nancy Keating, M.D., M.P.H., Harvard Medical School
• Deborah Mayer, Ph.D., R.N., AOCN, FAAN, University of North Carolina
• Ann Partridge, M.D., M.P.H., Dana-Farber Cancer Institute
• Jeffrey Peppercorn, M.D., M.P.H., Duke University
• Thomas P. Sellers, M.P.A., National Coalition for Cancer Survivorship
• Karen Sepucha, Ph.D., Massachusetts General Hospital
• Lawrence Shulman, M.D., FACP, Dana-Farber Cancer Institute
• Alison Smith, B.A., B.S.N., R.N., C-Change
• Thomas Smith, M.D., FACP, VCU Massey Cancer Center
• Ed Wagner, M.D., M.P.H., MacColl Institute for Healthcare Innovation
• Anne Willis, M.A., National Coalition for Cancer Survivorship
Planning Committee:
• Betty Ferrell, Ph.D., R.N., FAAN, City of Hope (co-chair)
• Ellen Stovall, National Coalition for Cancer Survivorship (co-chair)
• Anthony Back, M.D., University of Washington
• William Dalton, Ph.D., M.D., H. Lee Moffitt Cancer Center
• Patricia Ganz, M.D., University of California, Los Angeles
• Elizabeth Goss, J.D., Turner & Goss LLP
• Jennifer Hausman, M.P.H., WellPoint
• Andrea Kabcenell, R.N., M.P.H., Institute for Healthcare Improvement
• Sharon Murphy, M.D., IOM Scholar-in-Residence
• Alison Smith, B.A., B.S.N., R.N., C-Change
• Thomas Smith, M.D., FACP, VCU Massey Cancer Center